Search found 5610 matches
- Thu Jan 30, 2020 5:02 pm
- Forum: Prescription Medications
- Topic: Did Rotigotine help you?
- Replies: 4
- Views: 780
Re: Did Rotigotine help you?
Enigmaman, since your problem is PLMS and not RLS, do you think that it might be possible that when you stopped the patch that your PLMS returned to its old level and that your legs are tired because you have been kicking all night? In a 2.5 month period, you could have lost some of the muscle tone ...
- Thu Jan 30, 2020 12:56 am
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to Crazy legs
Wednesday, January 29
Welcome to
Crazy legs, who RLS causes loss of sleep low energy level during the day.
Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to help you out.
Welcome to
Crazy legs, who RLS causes loss of sleep low energy level during the day.
Please post a note telling us what you are doing to manage your RLS and asking any questions that you have. We would love to be able to help you out.
- Tue Jan 28, 2020 3:00 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to Carol Edwards
Tuesday, January 28 Welcome to Carol Edwards, who has had RLS for at least 10 years now. It stops her from getting to sleep and often continues thru the night. She can't do movies or anywhere she has to sit still. So, she needs answers. Carol, if you will post a note telling us what you do to manage...
- Tue Jan 28, 2020 12:34 am
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to Garypic
Monday, January 27 Welcome to Garypic, who has been treated for RLS as far back as the late 80s and has tried most if not all the Meds in the pipeline with different degrees of improvement. His concern is the lack of knowledge that most doctors hold. It appears that they treat RLS as a one size fits...
- Mon Jan 27, 2020 2:37 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to SandyP
Monday, January 27
Welcome to
SandyP, who is struggling with worsening RLS. She is looking for resources and support so she can manage her symptoms.
Please post a note telling us about what you are currently doing to manage your symptoms so that we can offer some suggestions for improvement.
Welcome to
SandyP, who is struggling with worsening RLS. She is looking for resources and support so she can manage her symptoms.
Please post a note telling us about what you are currently doing to manage your symptoms so that we can offer some suggestions for improvement.
- Mon Jan 27, 2020 1:47 am
- Forum: General Topics: RLS
- Topic: A complete RLS theory; oxalates and mast cells?
- Replies: 10
- Views: 2086
Re: A complete RLS theory; oxalates and mast cells?
XenMan, not all current research is focused on brain neurology although some of the biggest strides have come in this area. A year or two ago, Penn State published some work where they looked at venous blood flow in the legs. They found that RLS patients have higher flow under normal conditions but ...
- Sun Jan 26, 2020 4:00 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to debk67
Sunday, January 26 Welcome to debk67, who has suffered with RLS for 30 years and medication that used to work is no longer working. She is hoping to learn from other's experiences and contribute from her own. Please post a note and tell us about the medication that is no longer working. We can proba...
- Sun Jan 26, 2020 3:49 pm
- Forum: General Topics: RLS
- Topic: RLS or something else? Part 2
- Replies: 92
- Views: 27095
Re: RLS or something else? Part 2
The idea of a connection between RLS and mast cells is intriguing to me. I have had various allergy problems ever since I was 4 yrs old. After reading through the info on MCAS, there is a good chance that I have it even though I have never been diagnosed with it. I take several of the meds used to t...
- Sun Jan 26, 2020 2:51 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to Debl1
Sunday, January 26 Welcome to Debl1, whose RLS has affected her life in numerous ways; lack of sleep, embarrassing episodes in front of strangers (friends and family don't mind and try to help), taken her confidence which she needed to recover from two botched replacement operations. She is often fo...
- Sat Jan 25, 2020 9:53 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to Brendan
Saturday, January 25 Welcome to Brendan, who is a 51 year old male in USA. He has been taking a DA (Ropinerole) for almost 20 years. From 47 to 51 years old, experiencing (severe) DA augmentation. In early 2020, he tried to get off DA completely (with no substitute) but his symptoms went absolutely ...
- Sat Jan 25, 2020 1:17 am
- Forum: General Topics: RLS
- Topic: Emergency Room Nightmare
- Replies: 23
- Views: 3476
Re: Emergency Room Nightmare
A bit of an update. I found out two days ago that the attorney for another previous patient filed a lawsuit against the psyc hospital while I was there. The lawsuit alleges criminal activity by the hospital's parent company. My attorney has been in contact with them and we will probably cooperate. T...
- Fri Jan 24, 2020 2:54 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to jrexford35
Friday, January 24 Welcome to jrexford35, who has struggled with RLS for years and is currently in a very bad pattern of RLS. jrexford has tried lots of different remedies, none of which work in the long term. Please post a note telling us about these remedies. There are long term solutions that we ...
- Fri Jan 24, 2020 2:51 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to roger
Friday, January 24 Welcome to roger, who has been suffering from RLS for the past 25 years. He used to wake up and beat on his knees just to make it stop until he went to the doctor and found out about RLS. Even now the medicines don't always work. He feels as though at times he wants to remove my l...
- Thu Jan 23, 2020 11:49 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to cstephens.mhc
Thursday, January 23 Welcome to cstephens.mhc, whose RLS has gotten steadily worse over the years and until recently was afraid of getting old. cstephens envisioned age 90, frail and standing in the evening. Not a pretty vision! Please post a note telling us what you do to manage your RLS and asking...
- Thu Jan 23, 2020 9:39 pm
- Forum: Just Joined?
- Topic: JANUARY 2020 New Members
- Replies: 56
- Views: 5249
Welcome to ktonetti
Thursday, January 23 Welcome to ktonetti, whose RLS has thrown off her sleep which throws off her entire day. She is afraid to go back to work because she fears that she will not have enough rest to perform well. Please post a note telling us what you are doing to manage your RLS. We can probably pr...