Search found 101 matches

by Orrel
Wed Apr 22, 2015 8:55 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 98
Views: 10149

Re: Neupro

David: You mentioned experiencing moderate to severe dizziness from taking pramipexole ER. I experience lightheadedness taking Neupro 2 mg, something I did not experience when taking .5 mg of ordinary pramipexole. I put the patch on at 9 p.m. every evening. I experience the lightheadedness shortly a...
by Orrel
Sun Apr 19, 2015 9:04 pm
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 158
Views: 141346

Re: Is your DA causing augmentation?

Richviv: As Views mentioned I did use your method (2 mg patch to get off .5 mg. pramipexole which I slowly reduced over a period of weeks). It was not a smooth transition and I continue to have lots of night WED. In fact I'm not really any better than what I was on the pramipexole even after I added...
by Orrel
Sat Apr 11, 2015 11:35 pm
Forum: Augmentation
Topic: Article/interview w/Dr Buchfuhrer about augmentation
Replies: 12
Views: 5749

Re: Article/interview w/Dr Buchfuhrer about augmentation

I have been off pramipexole for about 17 days, having used the 2 mg Neupro patch and 225 mg of Lyrica. I am still experiencing considerable symptoms which to me are either the residual effects of the augmented pramipexole, or the effects of the patch which also has augmented and which I continue to ...
by Orrel
Thu Apr 02, 2015 4:49 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 98
Views: 10149

Re: Neupro

Rustsmith: I am having a similar experience with 2 mg Neupro using Lyrica as the second drug. See my April 1 posting under Getting Off Mirapex. I am wondering if I'm augmenting on Neupro or I need a 3mg. patch. I only started the patch on Nov.23, 2014. Did Dr. Ondo think that you were augmenting or ...
by Orrel
Wed Apr 01, 2015 11:20 pm
Forum: Prescription Medications
Topic: Getting off mirapex
Replies: 46
Views: 6084

Re: Getting off mirapex

I have been gradually reducing my pramipexole from .5 mg to zero, using the 2 mg Neupro patch and lately 225 mg of Lyrica. I was led to believe that as a longer-acting dopamine agonist the patch would be a good covering agent to avoid the hell of getting off the augmented pramipexole. Although thing...
by Orrel
Thu Mar 12, 2015 10:50 am
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 18498

Re: Pramipexole Problems

If we need an opioid to help us get off pramipexole, is it difficult to get off the
opioid once the weaning process is complete? Also, how does one know when
the weaning process is complete and the pramipexole is out of the system?
by Orrel
Wed Mar 11, 2015 5:11 pm
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 18498

Re: Pramipexole Problems

It's virtually impossible to wean oneself off pram without a covering agent e.g. an opioid. Even cutting back is difficult. The WED goes into major overdrive because the body is being deprived of a drug to which it has become addicted. I need someone who understands WED and can get me off pram. I ha...
by Orrel
Sun Mar 08, 2015 8:12 pm
Forum: General Topics: RLS
Topic: Rant - be forewarned
Replies: 15
Views: 1658

Re: Rant - be forewarned

Like you I am having difficulty in finding a specialist who knows how to treat RLS. I am seriously contemplating seeing Dr.Buchfuhrer or Dr.Earley. This will be at my own personal expense and will involve considerable travel. We can't control whether or not we have RLS nor the effectiveness of the v...
by Orrel
Thu Feb 19, 2015 6:29 pm
Forum: Prescription Medications
Topic: Getting off Lyrica
Replies: 10
Views: 1136

Re: Getting off Lyrica

After being on pregabalin at 75 mg for four days I found myself this morning with "brain fog", feeling very spacey. My wife went to the doctor this morning and during the course of the appointment mentioned this to her. The doctor said I should not be driving and suggested that I switch to...
by Orrel
Wed Feb 18, 2015 2:11 pm
Forum: Prescription Medications
Topic: Getting off Lyrica
Replies: 10
Views: 1136

Re: Getting off Lyrica

ViewsAskew: You were also wondering about using pregabalin to get off pramipexole. In the Nightwalkers magazine (Fall 2014 p.8 bottom of left hand column), substituting a different class of drug like pregabalin while the dopamine agonist is withdrawn is discussed. The article admits that this may ha...
by Orrel
Wed Feb 18, 2015 8:56 am
Forum: Prescription Medications
Topic: Getting off Lyrica
Replies: 10
Views: 1136

Re: Getting off Lyrica

ViewsAskew: The 2014 Spring edition of NightWalkers mentions that oregabalin augments at a much lower rate than pramipexole. An article in the New England Journal of Medicine (May 22, 2014) is about a trial by R.P. Allen "Pregabalin versus pramipexole for Restless Leg Syndrome" It says tha...
by Orrel
Wed Feb 18, 2015 2:38 am
Forum: Prescription Medications
Topic: Getting off Lyrica
Replies: 10
Views: 1136

Getting off Lyrica

Many write about the hell of getting off Mirapix. From what I read, it is just as hellish to get off Lyrica. In order for me to get off Neupro and Mirapix, my WED specialist has put me on Lyrica. I started slowly with 75 mg. on Sunday night and will reach the maximum of 300 mg. on March 29. I hope I...
by Orrel
Sun Feb 15, 2015 9:06 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 98
Views: 10149

Re: Neupro

There seems to be a resistance to using opioids among the doctors where I live. Even my pharmacist grimaced a bit when I talked to him about methadone etc. Perhaps I will have to lean on my doctor if the going gets really rough. He seems to have lots of experience with WED. Parkinsons and WED are hi...
by Orrel
Sat Feb 14, 2015 11:15 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 98
Views: 10149

Re: Neupro

Polar Bear: My WED doctor finally returned my call this morning. When I told him that Neupro and pram were giving me such a terrible experience, he wants me to go on Lyrica. The side effects of this drug don't sound too jolly but what choice do I have? My son thinks I should try marijuana. BTW, I al...
by Orrel
Sat Feb 14, 2015 1:06 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 98
Views: 10149

Re: Neupro

[quote="Polar Bear"]If you are already on the 4mg patches it would be a big jump to go to 6mg without medical supervision. We are all very fearful of augmentation. I think I have already augmented on Neupro. I thought it was relatively easy to get off pram. by using a longer-acting DA like...