Restless Legs Syndrome (RLS) Discussion Board

It is a lonely disorder isn't it? This community is like an oasis for many of us. Even if there isn't anything helpful here (and there is a lot!), just knowing that everyone who reads it REALLY GETS IT is the most indescribable feeling! Vent away. We're here and will listen. If you want, do some rea...

Becat, Hazel or I can move the topic if you want. Just let us know. I'm not sure moving it will help, but it's possible that some people are more likely to read it in General. People don't often log on everyday, so it may take a week or two to get a lot of responses. It's a hard disorder to understa...

Update: I started having some GI issues, cramping, bloating, gas, pain, diarrhea. So, it seems that either something in the formula is causing problems, or it is that dairy is bothering me again. I am lactose intolerant, but because the methadone is like concrete, eating dairy hasn't bothered me one...

I was out yesterday buying some other supplements and looked at this. Ouch! the price tag is awfully high. How much to you take? And when do you take it? Since the new research seems to be saying that we are not making the dopamine at night for bedtime, it seems that we would want to take it in the ...

In short, RLS is definitely related to an inability of the brain to uptake and use iron. They just don't know how to correct it yet, and taking iron doesn't always help. And, yes, surgery of any kind can worsen RLS, and back surgery or injury is also documented to induce RLS in some, or worsen it in...

It really is awful to wake up to those bright lights at 6 AM when you JUST got to sleep an hour before And, how can the doctor know if the Requip is really working if you don't take it? I know the argument - know he knows how it is without meds, but you already told him how bad it is! Seems that the...

RLS is indeed linked to an inability of the brain to uptake iron. The problem is that taking iron doesn't always have any effect, and taking iron is you aren't low can actually be bad for you. For more info on iron, how much to take, why it is a problem (and more), see the sticky post, managing your...

Have you tried the doctor list on this site? It is not a perfect list, I must caution, but you could at least look at it an see if any of the doctors on it are close to you. I did that, then I called each of them and talked to the nurses to find out what they thought about the doctor's knowledge of ...

Zachary, sometimes docs are more favorable if you have a little documenation with you. If you're pretty positive it's RLS, you could print out some stuff from this site (or any other "reputable" one that he/she would listen to) and take it with you. On the other hand, I've found from experience that...

Susan, it may be that you are thinking of augmentation, which is where the RLS worsens from taking a dopamine agonist. Here are some threads where it is discussed: A definition of augmentation and othe terms is here: m A recent thread about augmentation: m Somewhere is this thread, there is at least...

Ray, how long were you on the Requip? Forgive my memory, but I can't remember what you said in your prior posts

Ann

Craft, I'd be curious if the Newsletter's recommendation to use Tramadol is based on using for any condition, or just in general. I have never used it, but there are a lot of people with RLS that find it extremely effective. If I am understanding it, they are saying to not use it because it can be a...

It's still working, and I stopped the stool softener completely. I started iron over a year ago and between it and the opioids, I haven't been "normal" in the potty department since! I can't tell you how nice is it to just have a normal BM - I think I'm like a 2 year old who wants her mom to come lo...

Hazel, just wanted to say thanks for taking the time to be a moderator on this board. Becat and I appreciate having someone, as we have missed Trev (both for what he did and because we liked him). You already are a positive force here. If anyone else is interested in becoming a moderator in the futu...

Dear Guest, I can't speak for Randy, but I think most of us here have relatively thick skin (except when we haven't slept for awhile and then we can be a little emotional ), so for me (who's been sleeping as good as appears possible) no offense taken. It is a huge balance we have to achieve and that...