Search found 5610 matches

by Rustsmith
Fri May 10, 2019 11:28 am
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to mcmags

Friday, May 10 Welcome to mcmags, who has not found a successful treatment yet and is exhausted and uncomfortable. mcmags believes that this is worse than pain. Most of us would agree. If you will post a note telling us about the treatments that have not worked, we can probably offer some suggestion...
by Rustsmith
Fri May 10, 2019 11:25 am
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to graycedee

Friday, May 10 Welcome to graycedee, who has been diagnosed with severe RLS and is currently on tramadol/gabapentin after bad augmentation with mirapex. The RLS Foundation has been a wonderful support. Glad to hear that you have already been in contact with the Foundation. Please post a note telling...
by Rustsmith
Fri May 10, 2019 11:22 am
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to Susanhooper

Friday, May 10 Welcome to Susanhooper, who has suffered with RLS since she was 30 and now she is 76. She takes medication daily and would love a cure. We all look forward to a cure. Please post a note telling us what medication you are taking and how well it is working so that maybe we can help sugg...
by Rustsmith
Fri May 10, 2019 11:02 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 180
Views: 29786

Re: Cannabis

I don't know if anything is started yet for RLS, probably not since we haven't heard anything from the Foundation. But the Univ. of Colorado pharmacy department (Dr. Bainbridge) has a cannabis research lab set up. It took a couple of years for her to accomplish this because it took a number of work ...
by Rustsmith
Thu May 09, 2019 10:27 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to Suzhartson

Thursday, May 9

Welcome to

Suzhartson, who has had RLS for about 12 years after having a whipple resection.

Please post a note telling us a bit about your symptoms and what you are doing to manage them so that we can offer you some suggestions for improvement.
by Rustsmith
Thu May 09, 2019 7:41 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to margyly

Thursday, May 9

Welcome to

margyly, who has had RLS for 30 years and it is slowly getting worse.

Please post a note telling us what you are currently doing for your RLS so that we can offer some suggestions to gain better control of the symptoms.
by Rustsmith
Thu May 09, 2019 1:39 am
Forum: General Topics: RLS
Topic: RLS remission - why?
Replies: 7
Views: 1122

Re: RLS remission - why?

Welcome the the board Hoskme. My experience was exactly the opposite of yours. I had experienced mild symptoms of RLS for many years, but it was usually limited to when I was on long airline flights, which was a very frequent occurance with my job. My job involved a lot of stress as a technical exec...
by Rustsmith
Wed May 08, 2019 2:05 am
Forum: General Topics: RLS
Topic: Foundation Advocacy Day on Capital Hill
Replies: 4
Views: 730

Re: Foundation Advocacy Day on Capital Hill

It was a very interesting process. I heard someone say that it was a real life civics lesson. On a humorous note, we were a bit early for a meeting at one of the Delaware senator's offices in the newest Senate office wing. So, our local guide pointed out this massive black sculpture in the atrium be...
by Rustsmith
Tue May 07, 2019 10:28 pm
Forum: Just Joined?
Topic: Need help for mom
Replies: 22
Views: 10881

Re: Need help for mom

Tammy, you might want to print out a copy of this paper, just in case. Better to have it an take it home with you than to need it and not have it if the doctors says that (s)he wants to try something other than an opioid.

https://www.mayoclinicproceedings.org/a ... X/fulltext
by Rustsmith
Tue May 07, 2019 10:07 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to maryaj55

Tuesday, May 7

Welcome to

maryaj55, who was diagnosed with RLS many years ago and wants to pick up new ideas.

If you will post a note telling us about the things that you have tried, we can probably offer you new ideas of things that will help.
by Rustsmith
Tue May 07, 2019 7:30 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to stathamlaura

Tuesday, May 7 Welcome to stathamlaura, who have suffered with RLS for many years. And so ,it's time she talked with others. We would love to talk with your about RLS. If you can post a note telling us what you are doing to manage it now, that will provide us an opportunity to share and get the conv...
by Rustsmith
Tue May 07, 2019 3:59 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to juliehionas

Tuesday, May 7 Welcome to juliehionas, who I has had RLS for the past 14 years. It has progressed and is making it so hard to get up in the AM after having a bad night. She just wants to cry and feels like she is going insane during the night. She can't take this any more and needs to make some kind...
by Rustsmith
Tue May 07, 2019 3:20 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to tskessinger

Tuesday, May 7 Welcome to tskessinger, who has RLS and is looking for over the counter meds to relieve it. The only thing that you can buy over the counter that helps with RLS is an iron supplement. These will not provide help for everyone and can take a few weeks before they show any benefit. And e...
by Rustsmith
Tue May 07, 2019 3:16 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to wkpalley

Tuesday, May 7 Welcome to wkpalley, who has suffered from RLS for about 10 years but just recently started treatment. He would like to discuss with others how to possibly treat the causes rather than just the symptoms. Please post a note telling us what you are currently doing to manage. We can tell...
by Rustsmith
Tue May 07, 2019 3:14 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 46
Views: 2774

Welcome to donnasimmons

Tuesday, May 7 Welcome to donnasimmons, who has only been recently officially diagnosed with RLS, although she has had progressive symptoms for over 25 years. It has became more difficult to sleep from the strong feelings of electricity up and down her legs. She finds it difficult during the day to ...