Restless Legs Syndrome (RLS) Discussion Board

I had an incredible 2 weeks in London and Portsmouth and the RLS backed off even for long jet rides. I wish I could count on a dose of vacation working and I would plan even more intense traveling. We won a cheap upgrade coming back from Virgin which was a godsend. I watched three movies and was hom...

Thx for the responses. Last few nights have been tolerable I assume because the ebb and flow of pain. Another RLS variable.

I'm on a bucket list vacation next few weeks. I'm hoping to get a reprieve from the worst of RLS as usual when traveling. Knock on wood!

I saw a neurologist about the severity of my RLS. This is the first time I've used one beyond just a consultation. He added Lyrica to the mix of Clonazepam and Gabapentin I was already on. Worked like a champ for five weeks. Now, two months later, I'm about back where I started. My regular doctor wa...

I had read an article where the doctor said he had seen RLS patients who did better later in life. At 62 I'm not real encouraged from what I read above. I've been blessed with such a great life, I guess this is just a burden I have to carry.

My doctor put me on B12 and threatened shots if it did not come up. She said it might help RLS but it didn't. I tried those gummy bear ones from CVS for 3 months and it didn't get any better. I went to methylcobalamin B12 drops I buy from Amazon for $30 for 30 mL and my number shot up to 361 pg/mL. ...

I'm on three psychotropic medications so I asked my neurologist if I could try to get off Gabapentin (which I thought was not doing much). I took a half dose and it triggered intense RLS in the middle of the night after 6 weeks of relative peace with my legs. I took the other half and got through th...

Views, when the Neupro proved to be too expensive, I asked the neurologist's nurse and he said 800 mg was the max recommended. Previously I unintentionally took 2 pills a night for a week until I realized what I was doing and saw no improvement at all. The Lyrica worked in a day. I did not expect th...

I started Lyrica four weeks ago as an afterthought phone prescription because the Neupro that my neurologist prescribed cost $800 a month out of pocket. I can't even remember Lyrica ever coming up with my GPs or neurologists and had a fear of the drug from the side effects listed in their ads. This ...

Thx for response Oyx. 5 days in and Lyrica is working so well it is scaring the hell out of me. Ropinirole worked great for a few days and then everything went to hell. My legs have been so calm I forgot what it felt like. Virtually no pain, day and night, even after long hard elliptical sessions. U...

How much Kratom do you take. I tried it once (and probably still have some around) but I could not figure how to choke down several tablespoons. I even tried brownies but who can eat a big brownie every night without blowing up. And all it did was make the brownies taste bad. Good luck staying off m...

Thx for the reply QyX. My year of DAs started with withdrawals from clonazepam which I was on for 20 years. The freezing feet and knee caps I believe were from withdrawal and I still wrestle with that even after a year back on clonazepam. The pain in my thighs started when I was trying all the DAs. ...

Rustsmith, I was on Requip ER for about a year and was paying about $100 a month and thought that was outrageous. Now I am extremely cheap and I have never been on a drug that was not either generic or fully covered by insurance. I think the only way I'll try Neupro is if it goes generic. I'll be on...

stjohn, we did discuss iron. I was tested a few years ago and level was 265 which I understand is way high. That was before I took any supplement like I take now (Iron Bisglycinate). I doubt either my doctor or this new neurologist know much about infusions. Next meeting I'm going to bring up Cannab...

Thanks for replies. I knew going in it was expensive but wow! I could finance a Tesla for that much. I called the neurologist first thing this morning. I'm on meds now and my primary referred me to neurologist to try to improve situation. I take gabapentin now at bedtime with clonazepam and would be...

I saw a neurologist this morning (new to me) and at the end of our meeting he prescribed Neupro. I told him I had heard it was very expensive and he was understanding, but said he had no samples so see if pharmacy would sell me 10 to see how it worked. I stopped by pharmacy and asked them to price i...