Search found 221 matches
- Wed Oct 20, 2021 9:30 pm
- Forum: Prescription Medications
- Topic: Iron Testing & Inflammation
- Replies: 3
- Views: 1458
Iron Testing & Inflammation
Hello - My RLS doctor, who is amazing, was not comfortable giving me IV iron because my levels were higher than he is used to dealing with. So, I sought out a hematologist and explained my situation to him. My hope was to get IV iron. So, for the past several months he has been monitoring my iron an...
- Sat Oct 16, 2021 12:05 pm
- Forum: General Topics: RLS
- Topic: New info from the Oct 9th Foundation Summit?
- Replies: 5
- Views: 3491
Re: New info from the Oct 9th Foundation Summit?
Dr. Earley said RLS completely goes into remission for about 10% of his patients. Some of these patients have been on RLS meds for 20+ years. None of the other doctors reported similar findings; however, Dr. Earley is the only one who reassesses baseline symptoms by advising patients so a 14 day was...
- Thu Oct 07, 2021 4:53 am
- Forum: Prescription Medications
- Topic: Iron IV Treatments
- Replies: 7
- Views: 5058
Re: Iron IV Treatments
I don’t think there is a lot of research on the effectiveness of IV iron. And, the research that is there is pretty narrow in regards to population size, type of iron and amount. The only reason I bring it up is because I think there are a lot of unknowns with regards to how effect it could be.
- Sat Oct 02, 2021 10:15 pm
- Forum: General Topics: RLS
- Topic: Surgery & RLS (Symptoms Worse)
- Replies: 2
- Views: 3474
Surgery & RLS (Symptoms Worse)
Hello, I recently had arthroscopic knee surgery and my RLS has been out of control. It’s not occurring earlier, but it’s much more resistant to medication. My neurologist communicated that this happens and will go away, but I was wondering if anyone else has experienced this. How long did it take to...
- Sat Aug 28, 2021 8:47 pm
- Forum: Physical Treatments
- Topic: Spinal Stimulator
- Replies: 98
- Views: 74680
Re: Spinal Stimulator
I am now having more good nights than bad nights. I'm having 5 and 6 nights in a row of good sleep. I feel that we finally have it set correctly. Since July 28th, only about 4 nights that weren't so good. The best has been the last two weeks. How is the quality of sleep? Very refreshing? Or, medioc...
- Sat Jul 17, 2021 10:31 pm
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 408223
Re: Published Research - General Sleep and RLS (WED)
https://scholar.google.com/scholar?as_ylo=2021&q=restless+legs+syndrome&hl=en&as_sdt=0,47#d=gs_qabs&u=%23p%3Da4P3lxn9K-cJ Conclusions Dipyridamole has significant therapeutic effects on both sensory and motor symptoms of restless legs syndrome and on sleep. Our findings confirm the efficacy of dipyr...
- Wed Jul 14, 2021 3:49 pm
- Forum: Prescription Medications
- Topic: ecopipam
- Replies: 2
- Views: 2008
ecopipam
Dr. Ondo had performed a study on this drug to determine if it can help with augmentation. The abstract doesn’t say much, but I was wondering if anyone has any additional insight into this medication and/or it’s use for RLS. https://pubmed.ncbi.nlm.nih.gov/33066723/ https://www.mdsabstracts.org/abst...
- Mon Jul 12, 2021 5:38 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Another year of relief (Low-oxalate diet)
- Replies: 130
- Views: 7787157
Re: Another year of relief (Low-oxalate diet)
I don’t understand the connection between oxalates and RLS. These papers says oxalic acid does not influence iron
https://pubmed.ncbi.nlm.nih.gov/17440529/
https://www.hindawi.com/journals/jnme/2020/7373498/
https://pubmed.ncbi.nlm.nih.gov/2821800/
https://pubmed.ncbi.nlm.nih.gov/17440529/
https://www.hindawi.com/journals/jnme/2020/7373498/
https://pubmed.ncbi.nlm.nih.gov/2821800/
- Fri Jul 02, 2021 8:50 pm
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 408223
Re: Published Research - General Sleep and RLS (WED)
I’m wondering if it is a TENS or NMES, the electrical current I believe is different as is the rhythm. A proprietary rhythm of the stimulations could make this uniquely effective for RLS. Also they are focusing on a nerve near the calf. I’m very interested to see what the actual protocol is.
- Wed Jun 30, 2021 6:51 pm
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 408223
Re: Published Research - General Sleep and RLS (WED)
https://jcsm.aasm.org/doi/10.5664/jcsm.9404
These results suggest that NPNS could be a promising alternative to pharmacological therapies for RLS and could provide a solution for medication-resistant RLS patients and for medication-naïve RLS patients who are unwilling or unable to take medication.
These results suggest that NPNS could be a promising alternative to pharmacological therapies for RLS and could provide a solution for medication-resistant RLS patients and for medication-naïve RLS patients who are unwilling or unable to take medication.
- Sat Jun 19, 2021 4:28 pm
- Forum: General Topics: RLS
- Topic: Short-Term Disability Question
- Replies: 2
- Views: 3438
Short-Term Disability Question
Has anyone gone on short-term disability due to RLS? I’m wondering how to go about this and would like some help on who to turn to. I don’t have a primary care physician at the moment. I have had a patella tendon injury for several years. It has not healed due to the lack of sleep from RLS. The knee...
- Thu Jun 17, 2021 12:37 am
- Forum: General Topics: RLS
- Topic: Published Research - General Sleep and RLS (WED)
- Replies: 534
- Views: 408223
Re: Published Research - General Sleep and RLS (WED)
https://scholar.google.com/scholar?as_y ... pzQg-S5dkJ
Developing a biomarker for restless leg syndrome using genome wide DNA methylation data
I don’t have access to the full paper. Would love t anyone could give their opinion.
Developing a biomarker for restless leg syndrome using genome wide DNA methylation data
I don’t have access to the full paper. Would love t anyone could give their opinion.
- Thu Jun 10, 2021 3:09 am
- Forum: Physical Treatments
- Topic: Massager
- Replies: 21
- Views: 22974
Re: Massager
It was not able to control symptoms over the long-term. I provided temporary relief, but it isn’t sufficient enough to fall back asleep for very long. 20-30 minutes max If I have breakthrough symptoms, I can use it for short-term relief until the additional medication is needed. This rarely happens.
- Mon May 31, 2021 5:34 pm
- Forum: Physical Treatments
- Topic: Massager
- Replies: 21
- Views: 22974
Re: Massager
Like all things, this turned out to be a dud in the long run. It’s something I use in my toolkit to help manage break through symptoms.
- Sat Apr 10, 2021 12:36 am
- Forum: General Topics: RLS
- Topic: How many hours do you sleep?
- Replies: 19
- Views: 12327
Re: How many hours do you sleep?
What is it that wakes you up? The RLS or just random awakenings? That is what I am hoping that the latest sleep study will reveal. It isn't simple RLS and I didn't have any PLMS during the study that showed 45% sleep efficiency. I had some mild RLS urges once during the night during this recent stu...