Search found 7442 matches

by Polar Bear
Sun Feb 18, 2024 1:20 am
Forum: General Topics: RLS
Topic: DAWS OR AUMENTATION
Replies: 2
Views: 123

Re: DAWS OR AUMENTATION

The RLS experts would say that the max daily dose of ropinerole should be 1mg. For pramipexole it's about .25mg daily. You are likely to be augmented. Also to drop from 12mg ropinerole to 4mg overnight was so wrong. You are now on 3mg which is still 3x the max daily dose. Is your doctor at all exper...
by Polar Bear
Sat Feb 17, 2024 8:39 pm
Forum: Just Joined?
Topic: Head roll
Replies: 24
Views: 703

Re: Head roll

RLS sufferers describe their symptoms in many different ways, buzzing, creeping, twitching, like ants creeping under the skin. A defining factor is that movement helps ease the symptoms. At least whilst moving. Your description of feeling like your body is expanding I have never heard of before. You...
by Polar Bear
Fri Feb 16, 2024 11:50 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to mrmike7514

16 February 2024 Welcome today to mrmike7514 whose RLS has had a profound effect on his life. He felt fortunate to have such a mild case in his middle age and felt very very fortunate that he got to retire early (in 2013, at age 61) and sleep. However, the past ten years have seen two crazy incident...
by Polar Bear
Thu Feb 15, 2024 1:16 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to chapdave

15 February 2024 Welcome today to chapdave who over the 20 years, since he was first diagnosed with RLS, specialists have prescribed a variety of medications in hopes of alleviating the symptoms. These (as well as stretching exercises prior to bedtime, often supplemented by warm baths at midnight) w...
by Polar Bear
Thu Feb 15, 2024 10:57 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to pcragun

15 February 2024 Welcome today to pcragun who has had RLS for about ten years. pcragun has now augmented and will be attending the Mayo Clinic. Would like to interact with other sufferers. You will find useful information throughout this discussion board and in particular the Augmentation Forum. Hav...
by Polar Bear
Tue Feb 13, 2024 12:21 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Monolight1

13 February 2024 Welcome today to Monolight1 who wants to post on the forum and wants to see the others opinion. You will find lots of information and opinions as you read through the various Forums. If you want to make a post feel free to do so on a relevant thread or alternatively start your own t...
by Polar Bear
Sun Feb 11, 2024 7:00 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to JulieFlani

11 February 2024 Welcome today to JulieFlani who has loss of sleep to the point that it's affecting her health, mind and mood. This had been going on for years. Julie has tried Ropinerole which helped stop RLS but side affects were bad. After weaning off if drug..RLS is worse! Ropinerole is not now ...
by Polar Bear
Sat Feb 10, 2024 9:31 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome Gigi5151

10 February 2024 Welcome today to Gigi5151 who has lived with RLS all her life. It has become worse now that she is over 50. She is suffering. I wonder what medication you are taking (If any), are you taking requip or pramipexole and has it been regularly increased seeking relief which could mean au...
by Polar Bear
Thu Feb 08, 2024 2:38 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to pkstex

8 February 2024 Welcome today to pkstex who has suffered RLS with dystonia for 30+ years. It has dramatically constrained the ability to travel and volunteer. Please post and tell us how you and your doctor have been treating your symptoms. Do you know what your ferritin serum level is, this is impo...
by Polar Bear
Thu Feb 08, 2024 2:31 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to gsloper

8 February 2023 Welcome today to gsloper who has whole body RLS and needs all the help he can get RLS is pretty awful and whole body RLS is so difficulty to cope with. If you will make a post giving us details of how you have been managing your symptoms, what medications have or have not worked, we ...
by Polar Bear
Thu Feb 08, 2024 2:24 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to epws

8 February 2024 Welcome to epws who has had RLS for 30 years and has had an assortment of treatments(iron infusions for low ferritin levels, Gabapentin, Pregabilin) each has worked for a little bit- some longer than others. Recently had Botox in the calves and is curious to hear about others experie...
by Polar Bear
Tue Feb 06, 2024 7:06 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 34
Views: 1543

Re: Reversing Restless Leg Syndrome

When you say your iron levels are around 100, make sure this is your Ferritin Serum level. When I tapered from 5mg Requip I did it much slower than most folk. It took me 10 months doing very minimal reductions at a time and I did it without difficulty. However, I also had the support of Pregabalin a...
by Polar Bear
Tue Feb 06, 2024 4:51 pm
Forum: Augmentation
Topic: Reversing Restless Leg Syndrome
Replies: 34
Views: 1543

Re: Reversing Restless Leg Syndrome

I don't believe there is a miracle cure for RLS. I don't believe either that it can be reversed.... my opinion only. However, it may be possible to control the symptoms. Your dosages of Mirapex/pramipexol/requip have been way too high. When I was first started on Requip is around 2007 the leaflet in...
by Polar Bear
Tue Feb 06, 2024 4:47 pm
Forum: Just Joined?
Topic: POSSIBLE MIRACLE CURE FOR RLS?
Replies: 2
Views: 156

Re: POSSIBLE MIRACLE CURE FOR RLS?

I don't believe there is a miracle cure for RLS. I don't believe either that it can be reversed.... my opinion only. However, it may be possible to control the symptoms. Your dosages of Mirapex/pramipexol/requip have been way too high. When I was first started on Requip is around 2007 the leaflet in...
by Polar Bear
Tue Feb 06, 2024 10:30 am
Forum: Just Joined?
Topic: looking for a RLS melbourne, australia
Replies: 2
Views: 109

Re: looking for a RLS melbourne, australia

A GP can be wonderful if you can educate them and they are willing to kearn. The link in my signature would be a good start for guidance. If you provide some information about your mum's treatment perhaps we could advise. Has she had her ferritin serum checked. It would be best to be up around 100. ...