Restless Legs Syndrome (RLS) Discussion Board

So many people in the same boat....I can't get my ultram again till monday and have been without anything but ambien for a few days already..I am only at 50mg though.

Yeah I have tried much stronger than ultram, and yeah the dopamine agnostists like mirapex, sinemet and requip do tend to cause augmentation (worsening of symptoms) especially for me. I am almost considering methadone, at low dose it is supposed to be safe and can be taken for an extended period of ...

I am in about the same boat....even my doctor really does not know what else to do. Ultram works ok for me, I guess it's not really that other meds are not working it's that side effects are far to much to take and even with ultram I only get limited relief...actually I can't even get ultram at the ...

Lyrica was actually great for my rls, but I gained about 20 pounds and my wife said I was extra cranky...Ultram was good so I will probably just go back to that. Thanks for the reply, I think it helps for me to vent every now and then.

I would like to say they are better but I have kind of resigned myself back to ultram . I tired the xyrem again and the first 3 days were actually great but day 4 came the hurting knee's...Right now I am tired and in pain and frustrated since I can't refill the ultram till the 5th.

Since september of last year I think. It actually does real well for the sleep but I get this tendonitis. I called xyrem and according to them 5 percent of the people taking it get some sort of localised pain or tendonitis. If I alternate one month off and one on I do well. Thats probably why I have...

it works alright but I have to alternate one month on one off in order to keep the tendonitis down in my knees.

Strange enough the painfull daytime symptoms very mild and random now...I wonder if getting off all the narcotics and benzo's helped mediate those symptoms. I assume it's back to narcotics if I cannot tolerate the xyrem. Or maybe alternate them and let the knees recover for a month before going back...

Frustration is setting in...after being sick and being off xyrem for a bit my knees were better, now been back on xyrem and at a lower dose and the tendonitis is back full force. I really don't want to call the neuro, he had been a little frustrated that everything seemed to not work or side effects...

Thanks for the kind words, I am starting to feel better now. hopefully will be back on the xyrem soon. I am now down almost 24 pounds woo hoo!

My neuro did talk about it at a confrence. As for me I have pneumonia now(is that how it is spelled?)no xyrem...mayhaps next week.

Stoppe xyrem for 4 days and the knees and the shakes are all better. Who knows why. Anyways going back to te xyrem tonight toi see how things go.

To get close to 8 hours 9ml X2 works well. I get the jitters just after waking after the second dose in the morning. Today is not as bad though,maybe a few weeeks out will be even better...

I am finally up to 9ml X2 and the nausea and shakes are bad...Also knee and hip pain. If the theory about your body producing more GH all of that would make sense...just not sure how valid that is. On the positive side is it helped me lose the lyrica weight almost 20 pounds and most of the daytime s...

I just realised something, it's been two full weeks since i have had any daytime problems with my legs. I always had a little but after sinemet, requip and mirapex i had 24X7 problems.