Restless Legs Syndrome (RLS) Discussion Board

It is very safe to take gabapentin at the same time as pramipexole. In fact, many of us have been taking both of them for years. Further, the experts prefer to use gabapentin to treat RLS over pramipexole or ropinerole these days. Yes, there can be some side effects of gabapentin, but it is used to ...

Sunday, February 18 Welcome to suza, who doesn't have a life anymore when evening comes. She can't sit down and relax without taking a xanax and that knocks her out. Xanax is not an appropriate treatment for RLS. You need to be treated for RLS and not just insomnia. Has your doctor checked your seru...

I second Polar Bear's comment about needing to see a specialist. Your best bet would be to get an appointment at an RLS Foundation Quality Care Clinic. The closes to you might be the new one in Pittsburgh. I am not sure, but I have heard that Johns Hopkins only accepts Maryland residents now. A word...

If you are in the US, you need to call the nearest RLS Foundation Quality Care Clinic tomorrow and explain to them that you have been receiving heavy doses of dopamine agonists for a long time and need to get off of them. You may need to travel for an appointment, but the time and expense will be we...

Thank you. Azurity is the manufacturer for Horizant. With the recent changes that the FDA has made about allowing imports from Canada, my guess is that Truax is importing Canadian Horizant. Horizant is still under patent protection in the US. The first patent expires in April '25 and the second in N...

I haven't experienced those side effects, but methadone can cause a number of issues. My only issue was that it caused my testosterone level to drop to the point where I had to start hormone supplementation. I have been fine since then. At one of the first Foundation patient conferences, Dr Earley m...

Sunday, February 18 Welcome to Terry.Chgo, for whom augmentation has taken away some drug options so Terry is looking for alternatives. You will find all of the latest RLS treatment recommendations in the document that the link in my signature points to. Our normal suggestion is to read through the ...

Thursday, February 15 Welcome to Mistyrox, who says that RLS is horrible and that she wouldn't wish it on her worst enemy. She lays in bed for hours moving and kicking her legs. Have you tried the trick of soaking your legs in very hot water just before going to bed. This helps provide temporary rel...

Wednesday, February 14 Welcome to edjed, who says that RLS is very frustrating. The uncertainty if the "buzzing" in his legs is going to occur in the evenings is always in the back of his mind. People don't understand what it is like, so it is better if he doesn't discuss it, which is very isolating...

RLS has officially be recognized as a disease. It was initially named as a syndrome at a time when some people had it ideopathically while others had it as a comorbid condition for things such as kidney dialysis, Parkinsons and the third trimester of pregnancy. About ten years ago, an effort was mad...

Friday, February 9 Welcome to Maggie294, who has suffered for two years with severe RLS. She has tried so many medications and haven’t had much success. Many doctors are not familiar with the proper procedure for starting treatment of RLS. You should first be checked for low ferritin levels (anythin...

Thursday, February 8 Welcome to Obigram, who loses sleep and can’t eat sweets. Medications cause Obigram to have an addled brain the next day. Has your doctor checked your serum ferritin level and is it at least 100? Many people with mild to moderate RLS can see substantial improvement just by incre...

Thursday, February 8 Welcome to Jimhilde324, whose RLS has ruined his sleep. He is retired but can’t schedule morning activities because he can’t count on a decent night’s sleep and therefore can’t count on having any enough energy in the morning. He also has a heart condition and doesn’t want to ta...

Thursday, February 8 Welcome to rbelcher, who when experiencing symptoms, feels that life is not worth living. But, fortunately, rbelcher has found some things that get enough relief to feel the quality of life is encouraging. Unfortunately, Peripheral Neuropathy has appeared and like RLS, it is sim...

Wednesday, February 7 Welcome to joeeagle66, who wants to get more information about these legs that drive him crazy at times. Take a look around, but a great place to start is the document that the link in my signature points to. Another great source of information is the book "Clinical Management ...