Restless Legs Syndrome (RLS) Discussion Board

I didn't walk in to a lab saying "hey, can you give me an iron panel ?" I had a requisition from the hematologist that clearly asked for the ferritin, along with numerous other specific items. I still have the digital copy Over the past few years my ferritin level has been between 650 and 900 ... mo...

Finally talked to a hematologist about my sky high ferritin .... guess what reading the lab omitted from the blood work requisition.... Ferritin lol Anyways... I'm going to have a different genetic/ hemachromatosis test I voiced my concern about treating iron overload In the unlikely hood it would b...

Like I said before, it wasn't an easy process of trial and error, but it has been worth it. I hope my experience will help others. I am not the only one trying this option to help RLS. My Rep has told me that there are others with RLS who have a spinal stimulator. Thank you for this, Deb. Yes Deb, ...

So it's a good thing that the one specialist who is still trying to help me sought the advice of a mental health expert from the Ottawa Hospital as opposed to the Royal Ottawa mental health center This was for my Clonazepam taper , and a full assessment was involved This now trumps the Royal's asses...

I now have an in person consult with an actual pain management doctor next week I won't get into specifics, but this took alot of effort and clever maneuvering . It sure is a challenge to prove to judgemental people that you are in fact NOT crazy I bit my tongue more than a few times when I just wan...

I should emphasize that this latest neurosurgeon would hopefully be wiling to treat me with medications and NOT a spinal implant I have very low expectations for a positive outcome Pain management apparently saw that I had 1 visit with a mental health doctor back in March 2020 One To discuss coping ...

. ...unbeknownst to me I could have gotten in as early as January but I'll live in the present and not look to lay blame . An admirable stance, to be so equanimical about it. Looking forward. You will probably need to stay completely away form DAs for at least a year. \I'm glad you're - oops - did ...

There are a lot of opioids out there. It is quite possible that one of them will have an acceptable side-effect profile in you. But 6 months is a long wait and the experimentation will make it even longer. The manager of CPM Ontario has been trying to reach me for a few days now My referral got com...

So more frequent and severe rls in my arms last night . Both my movement disorder neurologist and I agree that DAs aren't going to cover my rls, especially as a long term fix He's given me 2 options : Wait for my pain management appointment in 6 months (give or take) to have them recommend a longer ...

... seems likely , but my rls symptoms aren't as severe or as frequent My OIC is non existent And I don't get the severe rebound I'd get from a short acting opioid/opiate Of course things change fast What I need long term is a longer acting opioid with less side effects than my current Codeine. .......

So it's been 3 months ... mostly awful I continued with Neupro patch 0.5mg (half of 1mg) for about 7-8 weeks I would apply it generally about 5-6 hours prior to anticipated bedtime and then take it off in the morning (I would go back to bed for an hour as the adverse affects would linger and make mo...

Ok so .... I put on half a 1mg patch on at 7pm (only 0.5mg) It probably took a few hours for it to start working and maybe 6-7 hours before it was peaking I slept very solid after that but felt dizzy upon waking at 8am. I also took a mere 22.5mg codeine at 9pm and a tiny 7.5mg at 130am when I woke u...

Hi Been a while So I solved that TOS pretty quick but still havent gotten a new bed to hopefully solve the shoulder pain My biggest dilemma remains codeine (opiates/opioids) and side effects To avoid rls symptoms 4,5 or even 8 times a night I need a dose of codeine or codeine contin that in turn giv...

Pretty sure I dont all of a sudden have severe TOS because i tinkered a bit with my cannabis and switched to codeine contin for one night .

Every change I make is discussed with a doctor prior to and after the fact

So I figured out the rls Minimal side effects with minimal rls (to make a long story short.... also , it obviously wont last long ) Same day that happens I get severe TOS down my whole left arm. I have it from sleeping so poorly on my left side . It starts in my shoulder The discomfort in my left sh...