Restless Legs Syndrome (RLS) Discussion Board

Sunday, June 16 Welcome to woodywvt, who has had RLS most of jis 78 years. Went into severe augmentation in mid 2018. Thru Karla at RLS Foundation hooked up with Dr. J. Winkelman. After getting up to 2700 mg gabapentin with no relief, went to methadone. 21/2 mg - no effect. 5 mg effective for about ...

Friday, June 14

Welcome to

djm755, who was diagnosed with RLS in 1984, has severe RLS every day and every night and has been taking medications of every kind since 1984.

Please post a note and let us know what we might be able to do to help.

JulHer1968, remember that those with opiates use disorder are also taking a much higher dose of methadone that you are. I stopped taking methadone last fall cold turkey from 5mg. I didn't really notice that much in the way of opioid withdrawal, but the gabapentin and 0.25mg pramipexole that I was ta...

Bridgercan, I too am susceptible to both organic and medication driven depression. I am fortunate that my wife is very supportive and understanding of my RLS. She also has a chronic neurological condition, so she has an idea of what I am going through and my RLS has given me greater appreciation of ...

Thursday, June 13

Welcome to

Flaspohler, who has had RLS most of Flaspohler's life, but worsening about 2000. Interruption of sleep is major issue even with meds.

Please post a note telling us about the meds that you are taking and have tried so that we can offer some suggestions to get more sleep.

Thursday, June 13 Welcome to jackie83, who has a severe case of RLS. She has tried all kinds of medicine and has had it for years. Hers is the worst case her Dr has seen. Please post a note telling us about the meds that you have tired. Many of us also have severe or very severe RLS and have found t...

Thursday, June 13 Welcome to sandybartusek, whose RLS is disrupting her sleep. She has decreased productivity since it started affecting the number of hours she sleeps per night. Please post a note telling us what you are doing to treat your RLS and asking any questions that you have. We would love ...

Wednesday, June 12 Welcome to TempestTBI, who 65 years young and has had RLS for over thirty years. Tempest has been treated with Mirapex and it's generic form Pramipexole successfully and so it wondering if there are any side effects to some of the generic forms? The generics should be pretty much ...

That's life!! If it isn't one thing, it is another. :roll: Last year, I had a prescription that was "lost" due to a DHL truck that caught fire. The pharmacy was the first to inform me about the problem and then said that they couldn't replace it for 30 days "in case it is found". I tried to reason w...

Tuesday, June 11 Welcome to madison168, who has several health issues and her RLS has become severe adding to an already overwhelming situation. She has chronic insomnia and now her RLS is so bad that she can't go back to sleep once her sleep medication has worn off. She has chronic pain during the ...

Monday, June 10

Welcome to

theoz49, who has questions about RLS and the medications to relieve symptoms.

If you will post a note with whatever questions that you have, we would love to answer as many as we can.

Sunday, June 9 Welcome to Joymrt5, who has RLS and is looking for support. You came to the right spot if you are looking for support for your RLS. If you will post a note telling us about your symptoms, your meds and asking any questions that you have, we would be happy to help you out and provide w...

This link goes to a preliminary research finding at Stanford Sleep Center that is starting to look at the relationship between SIBO (gut bacteria overgrowth) and RLS. So far, they only are reporting on seven individuals, but it indicates that recruiting of more test subjects is continuing. https://m...

Friday, June 7 Welcome to LauraB, who has not yet officially diagnosed with RLS, but her doctor is sure this is the problem. The symptoms are getting worse, and she needs to find non-medicine ways to cope. Take a look at our Non-prescription meds and Physical Treatments forums to get an idea of your...

chaus2, that is the reason why so many RLS patients have to go through multiple doctors before being diagnosed or finding one who knows how to treat it. It is also why the Foundation Quality Care Centers are all overloaded with patients.