Search found 5580 matches

by Rustsmith
Sun Feb 18, 2024 7:14 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Terry.Chgo

Sunday, February 18 Welcome to Terry.Chgo, for whom augmentation has taken away some drug options so Terry is looking for alternatives. You will find all of the latest RLS treatment recommendations in the document that the link in my signature points to. Our normal suggestion is to read through the ...
by Rustsmith
Thu Feb 15, 2024 10:59 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Mistyrox

Thursday, February 15 Welcome to Mistyrox, who says that RLS is horrible and that she wouldn't wish it on her worst enemy. She lays in bed for hours moving and kicking her legs. Have you tried the trick of soaking your legs in very hot water just before going to bed. This helps provide temporary rel...
by Rustsmith
Wed Feb 14, 2024 2:04 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to edjed

Wednesday, February 14 Welcome to edjed, who says that RLS is very frustrating. The uncertainty if the "buzzing" in his legs is going to occur in the evenings is always in the back of his mind. People don't understand what it is like, so it is better if he doesn't discuss it, which is very isolating...
by Rustsmith
Mon Feb 12, 2024 3:41 pm
Forum: General Topics: RLS
Topic: BORN WITH RLS/BERTHED TO LIFE BY SOMETHING?
Replies: 1
Views: 96

Re: BORN WITH RLS/BERTHED TO LIFE BY SOMETHING?

RLS has officially be recognized as a disease. It was initially named as a syndrome at a time when some people had it ideopathically while others had it as a comorbid condition for things such as kidney dialysis, Parkinsons and the third trimester of pregnancy. About ten years ago, an effort was mad...
by Rustsmith
Fri Feb 09, 2024 5:16 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Maggie294

Friday, February 9 Welcome to Maggie294, who has suffered for two years with severe RLS. She has tried so many medications and haven’t had much success. Many doctors are not familiar with the proper procedure for starting treatment of RLS. You should first be checked for low ferritin levels (anythin...
by Rustsmith
Fri Feb 09, 2024 4:41 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Obigram

Thursday, February 8 Welcome to Obigram, who loses sleep and can’t eat sweets. Medications cause Obigram to have an addled brain the next day. Has your doctor checked your serum ferritin level and is it at least 100? Many people with mild to moderate RLS can see substantial improvement just by incre...
by Rustsmith
Fri Feb 09, 2024 12:27 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Jimhilde324

Thursday, February 8 Welcome to Jimhilde324, whose RLS has ruined his sleep. He is retired but can’t schedule morning activities because he can’t count on a decent night’s sleep and therefore can’t count on having any enough energy in the morning. He also has a heart condition and doesn’t want to ta...
by Rustsmith
Thu Feb 08, 2024 8:09 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to rblecher

Thursday, February 8 Welcome to rbelcher, who when experiencing symptoms, feels that life is not worth living. But, fortunately, rbelcher has found some things that get enough relief to feel the quality of life is encouraging. Unfortunately, Peripheral Neuropathy has appeared and like RLS, it is sim...
by Rustsmith
Thu Feb 08, 2024 3:00 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to joeeagle66

Wednesday, February 7 Welcome to joeeagle66, who wants to get more information about these legs that drive him crazy at times. Take a look around, but a great place to start is the document that the link in my signature points to. Another great source of information is the book "Clinical Management ...
by Rustsmith
Thu Feb 08, 2024 1:41 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to RLBoston

Wednesday, February 7 Welcome to RLBoston, who just realized in the last six months that this has become chronic. It took wearing through two sets of sheets. RLBoston has found activity makes it worse rather than better as RLBoston had assumed and it appears to be related to stenosis. Tramadol works...
by Rustsmith
Thu Feb 08, 2024 1:37 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Cvmblackmon

Wednesday, February 7 Welcome to Cvmblackmon, whose RLS makes falling asleep a difficult task at times. It is very annoying. Insomnia is often the first thing that drives RLS patients to seek medical help with their condition. Do you know your ferritin number? Have you discussed your insomnia with y...
by Rustsmith
Thu Feb 08, 2024 1:34 am
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Janet RT

Wednesday, February 7

Welcome to

Janet RT, who struggle with RLS and AS and has numerous strategies that seem to help.

We would love to hear about your strategies that seem to help. Many of us have tried many different approaches to managing our RLS, but you may have something new.
by Rustsmith
Wed Feb 07, 2024 10:17 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Tracey

Wednesday, February 7 Welcome to Tracey, who has been suffering with RLS for over 40 years, and has been on prampipexole and gabapentin for about 18. She is worried about the long term affects of gabapentin. Her dose is .25 mg pramipexole and 2500 mg gabapentin every night. Gabapentin is a VERY old ...
by Rustsmith
Wed Feb 07, 2024 3:50 pm
Forum: Prescription Medications
Topic: Pramipexole serum levels versus nausea levels
Replies: 1
Views: 100

Re: Pramipexole serum levels versus nausea levels

First off, I never experienced nausea with pramipexole. However, I can offer a few comments that may help you. First, our normal dopamine levels vary throughout the day. They are highest when you wake up in the morning and then slowly decline throughout the day and then are lowest when you need to g...
by Rustsmith
Tue Feb 06, 2024 4:41 pm
Forum: Just Joined?
Topic: POSSIBLE MIRACLE CURE FOR RLS?
Replies: 2
Views: 156

Re: POSSIBLE MIRACLE CURE FOR RLS?

Nerve decompression surgery and other surgical techniques such as vein stripping have all been touted to treat RLS and rarely do much other than pad the surgeon's pocket. You would be far better off seeing a movement disorder neurologist or visiting one of the RLS Foundation Quality Care Clinics.