Search found 2603 matches
- Wed Sep 21, 2022 3:32 am
- Forum: Physical Treatments
- Topic: Compression Yoga Pants
- Replies: 8
- Views: 7318
Re: Compression Yoga Pants
I ordered some compression tights, but have to wait a few days or weeks for them. Last night I realized that my knitted knee sleeves can be pulled up around my thighs to give compression up there. I also put on the compression sleeves that fit around my calves. The ones around my thighs helped a lot...
- Tue Sep 20, 2022 4:20 am
- Forum: General Topics: RLS
- Topic: Riding the Big One (RLS 24/7, Hanging Ten)
- Replies: 850
- Views: 264667
Re: Riding the Big One (RLS 24/7, Hanging Ten)
There are days when I wonder how this disorder and the sleep deprivation it causes doesn't kill us. I would love to know how many people attempt or complete a suicide because they can't get treatment. I'm not there, but have been having a rough time. Iron infusions help my RLS tremendously, but I ca...
- Fri Sep 16, 2022 10:25 pm
- Forum: General Topics: RLS
- Topic: Bright Light Therapy and Delayed Phase Sleep Disorder
- Replies: 9
- Views: 8077
Re: Bright Light Therapy and Delayed Phase Sleep Disorder
I haven't taken a DA for many years. My RLS never returned to its baseline after taking those drugs.
- Thu Sep 15, 2022 11:33 pm
- Forum: General Topics: RLS
- Topic: Bright Light Therapy and Delayed Phase Sleep Disorder
- Replies: 9
- Views: 8077
Re: Bright Light Therapy and Delayed Phase Sleep Disorder
My schedule is delayed, also, and I'm not sure which came first, the RLS or the DSPD. Being that RLS is usually worst at night, I think some of learn to sleep when we are able. I also have narcolepsy, and can nap during the day. My RLS is seriously augmented from taking dopamine agonists years ago, ...
- Sat Sep 10, 2022 3:50 am
- Forum: General Topics: RLS
- Topic: Which IV iron preparation? PLEASE
- Replies: 8
- Views: 7418
Re: Which IV iron preparation? PLEASE
For what it's worth, over the years I've had all of the formulations except Infed, and they all have worked to raise my ferritin levels and make my RLS much less severe. The big issue is that for Venofer, Ferroheme, Ferlecit, and the generics of those is that it takes 5 weekly infusions, versus 2 fo...
- Fri Sep 09, 2022 10:25 pm
- Forum: Physical Treatments
- Topic: Compression Yoga Pants
- Replies: 8
- Views: 7318
Re: Compression Yoga Pants
I love compression, and have been eyeing some online for a few months. The RLS has been up in my thighs lately, but I also just am old and my legs swell in the heat. I'm glad they help you.
- Fri Sep 09, 2022 2:30 am
- Forum: General Topics: RLS
- Topic: Frustrated with it all!
- Replies: 13
- Views: 12262
Frustrated with it all!
Hi all, it's been a while. My RLS is mostly controlled with iron infusions and kratom. Except the hematologist refuses to treat my low iron until the ferritin goes below 30. When my iron is low, I really need to be on methadone or another opioid, but my neurologist says he can no longer prescribe me...
- Tue Oct 08, 2019 2:37 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: New Kratom User - when to take
- Replies: 49
- Views: 16537
Re: New Kratom User - when to take
It actually depends on the person as far as which strains will work the best. I have issues with some of the stronger reds, like hulu or wild red. They make me weak and shaky, and sometimes act as a stimulant for me. For me, some of the non-energetic greens are the best, like green Bali or green ele...
- Tue Oct 08, 2019 2:28 am
- Forum: Prescription Medications
- Topic: Infusion #3
- Replies: 33
- Views: 5372
Re: Infusion #3
I had my second iron infusion of this series on Friday. They are giving me Ferrlecit, 125 mg. at a time, in monthly infusions. I get my ferritin level rechecked in November, after the 3rd infusion. My RLS got much better within a couple weeks after the first infusion. I think I'm one of the few peop...
- Sat Sep 07, 2019 2:59 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Problems with Kratom
- Replies: 22
- Views: 10241
Re: Problems with Kratom
In various kratom forums, people say to rotate strains and suppliers of kratom. I don't know if it's really a thing, but they call it "same strain syndrome." Also, kratom varies in potency from season to season, and from supplier to supplier. I do know that it's possible to build tolerance, and peop...
- Sat Sep 07, 2019 2:51 am
- Forum: Prescription Medications
- Topic: Infusion #3
- Replies: 33
- Views: 5372
Re: Infusion #3
Hurray!ViewsAskew wrote:My first is scheduled for next Tuesday.
I wonder if Beth is getting some soon...
My doctor has me getting them once a month for 3 months, and then getting labwork. Strange scheduling, but sitting in the infusion center once a month is better than every week.
- Wed Sep 04, 2019 10:32 pm
- Forum: Prescription Medications
- Topic: Infusion #3
- Replies: 33
- Views: 5372
Re: Infusion #3
I got ferrlecit. The nurses had no idea why; they said the most common one they give is Venofer. One down, 2 to go!When you go for your first infusion of the series, be sure to ask the nurse exactly what the label on the IV bag says, both name of med and dose (# of mg.).
- Wed Sep 04, 2019 12:44 am
- Forum: Prescription Medications
- Topic: Clonidine
- Replies: 12
- Views: 1521
Re: Clonidine
... My ferritin was 8 and my iron saturation was 25%. No wonder I get out of breath riding my trike and walking up hills. I start a series of 3 iron infusions on Wednesday. Are you anemic? Very likely you are with a ferritin that low. If doc didn't say, what was your hemoglobin or hematocrit, those...
- Sat Aug 31, 2019 5:19 am
- Forum: Prescription Medications
- Topic: Infusion #3
- Replies: 33
- Views: 5372
Re: Infusion #3
I'll be starting a series of 3 iron infusions next Wednesday. I'm assuming the doctor ordered Injectafer, since I told him I had a great experience with it last time around, except for the cost. It was several thousand dollars, and I'm still making monthly payments. And, our $4000 deductible resets ...
- Sat Aug 31, 2019 4:54 am
- Forum: Prescription Medications
- Topic: Clonidine
- Replies: 12
- Views: 1521
Re: Clonidine
That's great if it helps you reduce the methadone, Ann! I did get my own prescription, and it is very much a miracle drug for me. I had no trouble talking my neurologist into prescribing it, especially since my blood pressure that day was 148/98. (But I had ridden my trike 15 miles to get there, and...