Restless Legs Syndrome (RLS) Discussion Board

So I tried to call and his secretary said I had to see him face-to-face before he would do either a phone consult or video call. Honestly. I will try to email him. I preferred not to do that bc it's less effective....thanks for giving me his email Better.

Thanks for the responses. I don't need him to prescribe - my dr does that - I need a second opinion to take along w me when I meet w my dr. I'm thinking I need an additional drug, not an increase in my methadone, and my dr doesn't seem to understand the options. I don't think he's up on recent treat...

I mean Levadopa (Sinemet) NOT Lyrica!

Moderator's note: I corrected your previous post, replacing Lyrica wtih levo-carbidopa (Sinemet).

I've been having increasing problems during the day for many months but my doctor is extremely hesitant to up my dose of methadone. I have another appointment w him in June but all of sudden thought I could possibly have a online call w perhaps Dr Buckfuhrer to review my case and get a second opinio...

My doctor in Sarasota FL gave me the name of his friend who is in Boca Raton. Not sure where you are. His name is: Dr Nat Chediak. Please let us know if you've found someone.

I noticed it when I first started taking it but it seems to be worse lately. I will go see my primary doctor though. Appreicate your advice! Will let you know.....thanks again.

Hi QyX! I take rigorous exercise classes (aerobics, weights) and find it's tougher to catch my breath. Doesn't really make sense to me that this would get worse over time so maybe I'm just recognizing it more. I do find that even when walking, I sometimes can't talk and walk at the same time bc I ne...

I'm having some trouble w breathing the longer I'm on methadone (10mg/day). I'm wondering if I switched to some combination of opioids if this would lesson. How prevalent is being on 2 opioids for RLS and what are they? Thanks, Laura

BTW please look at the RLS website for the list of recommended doctors. No sure who's listed there now but that's where I found Dr Adams.

I'm sorry to be late to this post. I live in Sarasota and have a great doctor who prescribes methadone. He also gave me the name of a doctor on the east coast who will also. my doctor is: Glenn Adams, 1625 S Osprey Ave, Sarasota. I can't put my hands on the doctor he recommended but will look if you...

You’re amazing! I so appreciate all the information. I’m relieved that I have more options than I realized. I’m not sure if the Horizant is working - I still have the burning/aching but it’s not as severe - so I may try doubling the dose to see if that helps I feel a difference. I don’t know much ab...

So sorry - I forgot to tell you my dosage. I'm on 5mg methadone in the morning and at night. I take 600mg of Horizant at night (~5). My doctor said he could prescribe a higher level of methadone but that there was a limit. Not sure what that means since he said this when I first went on it. BTW I'm ...

Thanks so much! I was wondering if I could take different opioids i.e. if that was something that RLS drs prescribe. If I understand (b) correctly, that's what you're doing? And thanks for the info on Lyrica. I have no experience w that. I just don't want to take anything that creates augmentation. ...

I'm taking Horizant again which (just looked) is prescribed for neuropathy. Maybe Lyrica is better or would work better on me anyway. I don't have any numbness or tingling. I've always have "pain", severe achiness the whole time w my RLS but this seems either more severe or slightly different. I hav...

Well it's always worthwhile to look into. Thanks for the tip. I see my doctor in November and will talk to him about it.