Search found 1284 matches

by stjohnh
Sun Jun 09, 2019 1:17 am
Forum: Just Joined?
Topic: New here, complicated story
Replies: 12
Views: 1585

Re: New here, complicated story

... I'm thinking that they are neuropathy, but I don't know. Maybe you guys can help to clarify? Highly sensitive areas on my feet, to the point where any pressure at all - even the sheet touching them - is super uncomfortable; hot and swollen- feeling feet (like my toes are going to literally pop ...
by stjohnh
Sun Jun 09, 2019 1:13 am
Forum: Just Joined?
Topic: New here, complicated story
Replies: 12
Views: 1585

Re: New here, complicated story

... * I am not eligible for any RLS meds that work neurologically as they could interfere with current psych meds (Lexapro, Lamictal, occasional low dose Klonapin) Iron has already been mentioned, but I will add to that: RLS is caused by BID (Brain Iron Deficiency). Many people with RLS can have th...
by stjohnh
Fri Jun 07, 2019 6:23 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 47
Views: 4504

Re: Excellent article on opioids

Thank you Betty and Qyx! I don't know how to measure the kratom powder...ideas? I use this scale ($20) https://www.amazon.com/gp/product/B0012TDNAM/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 But you probably don't really need it. 1/2 tsp kratom is 725mg one 00 size capsule of kratom is 360mg
by stjohnh
Wed Jun 05, 2019 1:46 pm
Forum: Augmentation
Topic: Augmentation on Neupro vs augmentation on pramixepole
Replies: 8
Views: 7911

Re: Augmentation on Neupro vs augmentation on pramixepole

Bridgercan, Sounds like you have it spot on... Yes you are almost certainly augmenting. I augmented on pramipexole and switched for a month or two to Neupro and had to stop because of rashes. But augmentation on Neupro is very common, especially after augmenting on pramipexole. Coping... LOL, there ...
by stjohnh
Tue Jun 04, 2019 2:43 pm
Forum: Just Joined?
Topic: New Member
Replies: 12
Views: 1001

Re: New Member

Thanks so much for your insight. One more question...if, after a couple of months of oral iron, my ferritin level increases to a good level, what would happen next in regards to my Pramipexole? Would I stop taking the Pramipexole immediately? Would I slowly cut it down? After getting your ferritin ...
by stjohnh
Tue Jun 04, 2019 12:15 pm
Forum: General Topics: RLS
Topic: Pharmacology
Replies: 4
Views: 887

Re: Pharmacology

You are welcome. If you have other questions, ask away.
by stjohnh
Tue Jun 04, 2019 3:58 am
Forum: General Topics: RLS
Topic: Pharmacology
Replies: 4
Views: 887

Re: Pharmacology

RLS ouch, RLS is not caused by a dopamine deficiency in the brain. Studies have shown variable results, but the main evidence indicates normal or high dopamine levels. The dopamine agonists improve symptoms by further stimulating already dysfunctional (because of iron->adenosine->dopamine receptor l...
by stjohnh
Sun Jun 02, 2019 2:22 pm
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 25
Views: 2331

Re: Weaning off medications

Has anyone been able to successfully wean themselves off dopamine agonist meds and treat their RLS symptoms with a more holistic, non-medication approach? Well, some of the answer depends on what you consider a "non-medication" approach. Your question also suggests that you may be just considering ...
by stjohnh
Fri May 31, 2019 1:29 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 49
Views: 16178

Re: New Kratom User - when to take

5 to 10 grams a day would be a high dose for a person with RLS. I don't take it anymore, I don't need to after my iron infusions. When I was taking it I was taking it in conjunction with low doses of other medicines. I took 720 mg 90 minutes before bedtime and an additional 360 mg about midnight. If...
by stjohnh
Sun May 26, 2019 12:35 pm
Forum: Prescription Medications
Topic: Getting used to Lyrica
Replies: 7
Views: 713

Re: Getting used to Lyrica

... She actually said there is some evidence (which I have not seen) that people with a strong family history (my maternal grandmother, mother and sister) of RLS do not respond as well to an iron infusion. ... Interesting comment. Your family history is EXACTLY the same as mine, except that, in add...
by stjohnh
Sat May 25, 2019 5:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 521
Views: 98743

Re: Requip & Erectile Dysfunction ???

I'm not sure whether I should post this to another thread or not but here I am. It's been nearly a year since I've posted but during that time I've finally gotten my sleep problems under control. ... Cheers! Welcome back and thanks for the report. Yup, probably better on another thread, since you d...
by stjohnh
Sat May 25, 2019 4:19 pm
Forum: Prescription Medications
Topic: Getting used to Lyrica
Replies: 7
Views: 713

Re: Getting used to Lyrica

The problem at night is that my jumpy legs break through the Lyrica and I have to get up and move about. I do feel like a zombie especially at night when I have to get up and move (climb stairs, stationary bike riding). I have no problem going to sleep or getting back to sleep, which is thanks to t...
by stjohnh
Sat May 25, 2019 1:19 pm
Forum: Prescription Medications
Topic: Getting used to Lyrica
Replies: 7
Views: 713

Re: Getting used to Lyrica

... I am so,so tired on Lyrica. I feel like I'm in a fog all the night. I have no energy to do anything on this drug and it's only been about a week and 1/2. Luckily I work from home, because I'm staying in my bathrobe until noon! I just can't get going. Will that change as I'm on it longer or is t...
by stjohnh
Sat May 25, 2019 1:08 pm
Forum: Prescription Medications
Topic: Effectiveness of Neupro patch
Replies: 15
Views: 1568

Re: Effectiveness of Neupro patch

Yes, you can switch. However, in your case, if you are augmenting, the switch will be difficult, with a temporary worsening of your symptoms. For instance see this post, written this morning, by another member who switched from Neupro to Lyrica: http://bb.rls.org/viewtopic.php?f=4&t=10470&p=98397#p9...
by stjohnh
Fri May 24, 2019 9:06 pm
Forum: Prescription Medications
Topic: Effectiveness of Neupro patch
Replies: 15
Views: 1568

Re: Effectiveness of Neupro patch

I am curious about what others have experienced with the Neupro patch as a medication for treating RLS. ... goberland: Welcome to the RLS community. Lots of help here. First, my experience with the Neupro patch. (After the SURPRISE of sticker shock). It worked fairly well. I was only able to use it...