Search found 14421 matches
- Fri Dec 22, 2023 7:29 am
- Forum: General Topics: RLS
- Topic: Delayed Sleep Phase: RLS, Opioides, prior DAs
- Replies: 1
- Views: 7159
Re: Delayed Sleep Phase: RLS, Opioides, prior DAs
Hi tea4one - I haven't seen anything about it. I have no idea if I actually have delayed sleep phase or if something about WED/RLS makes it seem this way. Whichever it is, that has been my life for as long as I can remember. From reading under the covers in grade school to a bedtime of 5 AM in colle...
- Mon Dec 18, 2023 5:54 am
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 77523
Re: What Relationships?
I spent the last year mourning, grieving, and being depressed on top of the weight of the chronic illness stuff - it's been pretty miserable, Ann, so sorry to hear that you last year has been bad. I have had troubles the last few months as well and hopefully can get through next weekend since it wi...
- Mon Dec 18, 2023 5:52 am
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 77523
Re: What Relationships?
Thank you Views.... Yes so much chronic illness. So debilitating. I've only been on the AD for one week and can only hope for the best. I had no idea you were poorly and so glad you are on the mend. I do hope it works, Betty. It hurts my heart to think of you feeling like that. For me, it was a cum...
- Sun Dec 17, 2023 10:13 pm
- Forum: Just Joined?
- Topic: Augmentation & DAWS
- Replies: 16
- Views: 37349
Re: Augmentation & DAWS
Wow, this is all great to know & am so hopeful he’ll prescribe opioids for the withdrawal alone, not sure what plan is after roprinol cause I’ve tried gabapentin & side effects were too much on my mental health, etc-those class of drugs are not good for me. I sent my dr articles you sent. I haven’t...
- Sun Dec 17, 2023 10:11 pm
- Forum: Just Joined?
- Topic: Find pain points
- Replies: 1
- Views: 8323
Re: Find pain points
To find the pain point that send sensation pain ,bring your knee up to your chest pulling with your hands when you get the sensation is it coming from your lower leg if so rub hard above ankle bone if it's painful rub with some pain gel or cream this should help if it doesn't Acupoint 🤔 If it's you...
- Sun Dec 17, 2023 10:09 pm
- Forum: Augmentation
- Topic: Transitioning
- Replies: 37
- Views: 54522
Re: Transitioning
Wonderful!shinderlider wrote: ↑Sat Dec 16, 2023 11:05 pmWell, I made what is hopefully the last step to be ropinirole free: dose cut from 2mg to 1mg. At the present, keeping the gabapentin dose at 300mg twice a day, knowing it can be increased if necessary. It has not always been easy but I am pleased that I am almost finished.
- Sun Dec 17, 2023 10:08 pm
- Forum: Help for Relationships
- Topic: What Relationships?
- Replies: 54
- Views: 77523
Re: What Relationships?
*gsurpur* I also wonder sometimes, what is normal. What would I be like without rls and without being stuffed full of medications. However it is some of those medications that somewhat control my rls. Coping with chronic medical conditions can be very debilitating and it is easy to become depressed...
- Sun Dec 17, 2023 10:01 pm
- Forum: Physical Treatments
- Topic: New device: NXT 100 ToMAC
- Replies: 5
- Views: 15422
Re: New device: NXT 100 ToMAC
OUCH! That is a lot of money. How frustrating that they denied it.
- Tue Dec 05, 2023 9:10 am
- Forum: Just Joined?
- Topic: Augmentation & DAWS
- Replies: 16
- Views: 37349
Re: Augmentation & DAWS
Hi Ali - What a difficult journey you've had - great that the tumor was benign. Welcome to the board and I hope you find the help you need here. As I understand it, most WED/RLS experts recommend decreasing ropinerole .5 mg every 3-7 days to prevent DAWS. Even if you wanted to be very careful, you c...
- Wed Nov 29, 2023 10:49 pm
- Forum: General Topics: RLS
- Topic: Bariatric Surgery
- Replies: 6
- Views: 17725
Re: Bariatric Surgery
Ann, I am in the process of determining if I am a good candidate and following the Medicare rules which require at least six months of a supervised diet. It will be at least June before a decision is made. In the meantime, I continue my weaning off ropinirole (getting ready to move from 2mg down to...
- Mon Nov 27, 2023 8:33 pm
- Forum: General Topics: RLS
- Topic: Bariatric Surgery
- Replies: 6
- Views: 17725
Re: Bariatric Surgery
HI Sue - did you go ahead with it?
My sister has mild symptoms - she had surgery a few years ago and never mentioned her symptoms being worse. Of course, I don't remember what she had done.
My sister has mild symptoms - she had surgery a few years ago and never mentioned her symptoms being worse. Of course, I don't remember what she had done.
- Mon Nov 27, 2023 8:45 am
- Forum: Prescription Medications
- Topic: Continuous movement vs spasm
- Replies: 4
- Views: 9294
Re: Continuous movement vs spasm
Similar symptom progression: from classic need-to-move twitchiness to, twenty plus years later, sudden energy build-up—bordering on a cramp—in my hip joints releasing within seconds a powerful spastic kick. Happens in only one hip at time but left hip more often than right because I suspect osteoar...
- Mon Nov 27, 2023 8:33 am
- Forum: Physical Treatments
- Topic: Cured
- Replies: 3
- Views: 15238
Re: Cured
At age 51 my RLS is cured. I had a stone stuck in my billiary system-distal common bile duct. MRCP showed dilation in the billiary system. I had an ERCP to remove the stone. I can drink coffee and eat chocolate with zero RLS symptoms. As far as I can tell a stone can disrupt digestion which is why ...
- Mon Oct 16, 2023 5:14 pm
- Forum: Augmentation
- Topic: New-Asked to post about treatments
- Replies: 55
- Views: 82440
Re: New-Asked to post about treatments
I'm back after what seems like a very long forever. I started weaning off of ropinerole in about mid July 2023. I had a false start after trying to start the course without a long acting opioid like Oxycontin. No Oxycontin due to insurance denying coverage. About mid August, the plan was changed to...
- Mon Oct 16, 2023 5:07 pm
- Forum: Prescription Medications
- Topic: Emory not taking new pts?
- Replies: 7
- Views: 11509
Re: Emory not taking new pts?
How frustrating! I moved from one US state to another JUST so I could be by a good doctor. When he retires, quits, or reduces his practice, it will be terrifying.