Restless Legs Syndrome (RLS) Discussion Board

Saturday, January 12 Welcome to Lasvegased777, who has had RLS since he can remember. This condition has gone from an inconvenience to debilitating. He is here for knowledge on the subject and may have some insights as well. Please post a note telling us about what you are currently doing to manage ...

Saturday, January 12 Welcome to Cather3, who had recurring symptoms of RLS that are getting worse over time. She is trying gabapentin, advil and ambien, but they are not consistently effective. So she needs other ideas. Unfortunately RLS does tend to get worse with age and gabapentin doesn't work fo...

Friday, January 11 Welcome to alphamare3, who has had RLS all her life. Her mother thought she was a hypochondriac when she would tell her that my legs tickled so bad that she couldn't lay in bed or sit still. As an adult, her biggest fear is flying. For some reason when she is on a flight, the cond...

Deb, what you can expect during the appointment involves a number of things. You will probably be given a normal neurological exam in order to rule out other conditions. You will also be asked a number of questions about how often your symptoms occur, what time of day they begin and how much they in...

Thursday, January 10

Welcome to

Kathywhi, who has found something that stopped her RLS.

We would love to hear about your experience. Success stories are always interesting.

Thursday, January 10 Welcome to eladkroy, who is looking for ways to improve sleep. Please post a note telling us what you are currently doing to manage your RLS. It would also help to know if medical marijuana is legal where you live. With that info, we should be able to make some suggestions to he...

Thursday, January 10 Welcome to Vanwing, who has been suffering from RLS for months now and it seems to be getting worse and so would like to join the board to participate in conversations to maybe get better. Please post a note telling us what you are currently doing to manage your RLS so that we c...

Tuesday, January 8 Welcome to Joyce, whose RLS is horrible. She can’t sleep much and her medicine no longer works. Sounds like you may be experiencing augmentation. Please post a note telling us what you have been taking and asking any questions that you have. We may be able to suggest things to dis...

I will add my two cents to the comments by the previous two ladies.

Holland, thank you so much for your help and assistance here. You add a level of perspective that the rest of us can never hope to match, especially when it comes to conditions other than RLS.

Monday, January 7 Welcome to groggio, has RLS problems with some triggers: cortisone (any kind: pain creams, pills, shots), some anti inflammatories, when had to quit having opioids for back pain. Loss of access to opioids would definitely cause your RLS to flair up again. Please post a note telling...

Monday, January 7

Welcome to

PerrySmith, whose RLS has severely affected his life and sleep.

Please post a note telling about what you are doing to manage your RLS and asking any questions that you have.

Since you have not taken a DA before, the choice between pramipexole or requip would be a tossup. You could end up with nausea from either one, but augmentation for a short exposure is less likely, but not impossible. But since you have been taking kratom for a while and it has been working, would a...

Sunday, January 6 Welcome to SleeplessInAj, who is 63 years of RLS and still kicking. Now she also has Peripheral Neuropathy. Her breakthrough was fifteen years ago when she had a diagnosis and name for this misery. The major effect is that she is a chronic insomniac thanks to this disabling disease...

If you take an opioid for your RLS and live in the US, PLEASE participate in this public comment opportunity. This is a chance to change the federal government's approach to opioids and get a change to the current CDC "guidelines". Decision-makers at the US Department of Health and Human S...

Friday, January 4 Welcome to miserableinsc, who has experienced RLS in her twenties while working as an RN and periodically through the years. RLS has increased in severity over last 10 years. Now she has symptoms during the day, increasing in intensity in the afternoon, and becoming unbearable by b...