Search found 222 matches

by sleepdancer2
Mon Mar 30, 2015 7:57 am
Forum: Prescription Medications
Topic: Mirapex Side Effect I Forgot to Mention
Replies: 2
Views: 520

Mirapex Side Effect I Forgot to Mention

For some reason last night my mind wandered into the past and it dawned on me I don't remember mentioning this here. When I first started on Mirapex - long before the augmentation started - and I was new to the med. The first side effect that scared me was the sudden onset of sleep without warning. ...
by sleepdancer2
Sun Mar 15, 2015 6:34 pm
Forum: Just Joined?
Topic: RLS diagnosis
Replies: 12
Views: 1479

Re: RLS diagnosis

Just a few thoughts. Your description of the severe leg cramps makes me think something besides WED/RLS may be going on. One good thing about you trying the Mirapex is that your enviable ferritin level makes you at less risk for augmentation. I wouldn't be afraid to try it, but I would be cautious a...
by sleepdancer2
Wed Mar 04, 2015 1:45 am
Forum: Prescription Medications
Topic: Cold Turkey
Replies: 14
Views: 1292

Re: Cold Turkey

Seems going cold turkey is acceptable for some doctors these days. I read up on it a bit, and it seems that recommendation is for when stopping from a low dose. At a higher dose, I suggest weaning. I went off Mirapex once from a higher than generally recommended dose and ended up with a neurological...
by sleepdancer2
Wed Mar 04, 2015 1:27 am
Forum: Just Joined?
Topic: Getting ready to sue
Replies: 22
Views: 2972

Re: Getting ready to sue

Just in case someone is keeping tabs, add my name to the list of one who experienced these behaviors. Eating - yes. Would even get up in the middle of the night and cook. And I had a blend of shopping and gambling. I shopped at thrift stores and yard sales, always looking for that golden egg. It was...
by sleepdancer2
Tue Mar 03, 2015 8:41 am
Forum: General Topics: RLS
Topic: NY Times Editorial on "Painkiller abuse"
Replies: 6
Views: 773

Re: NY Times Editorial on "Painkiller abuse"

I agree with what's already been said. Admittedly I am jaded and suspicious when it comes to this kind of stuff. I have to wonder if any piece of this is agenda based. I mean, why did the last paragraph make mention of the issue's current political status? Was the compilation of information solicite...
by sleepdancer2
Sun Mar 01, 2015 6:17 am
Forum: Augmentation
Topic: Article/interview w/Dr Buchfuhrer about augmentation
Replies: 12
Views: 5723

Re: An article and interview with Dr Buchfuhrer about augmen

Thanks for posting this. I hope other doctors are learning from Dr. B how to spot and treat augmentation. Nothing pleases me more than to think someone might escape what I and others here have endured.
by sleepdancer2
Fri Feb 27, 2015 6:43 am
Forum: Just Joined?
Topic: Side effect of Mirapex
Replies: 6
Views: 858

Re: Side effect of Mirapex

Because everyone's response to a med is different, it's hard to guess how another person might do on a med. The thing to watch out for is signs of augmentation. I went from Mirapex to Requip and got a degree of relief for maybe a few months before augmenting again. I agree with prior advice to have ...
by sleepdancer2
Thu Feb 26, 2015 7:37 am
Forum: Just Joined?
Topic: Side effect of Mirapex
Replies: 6
Views: 858

Re: Side effect of Mirapex

Interesting to me that you posted that. I used to get facial twitches a lot, but haven't in a few years. Just so happens I've been off Mirapex for 4 years. No way now to know if this is a connection or a coincidence.
by sleepdancer2
Mon Feb 23, 2015 7:28 am
Forum: Just Joined?
Topic: Driving me crazy
Replies: 101
Views: 8100

Re: Driving me crazy

As an orthopedic doctor you would be familiar with use of a TENS Unit. I totally control my legs at night by using TENS as prescribed for low back pain and my legs are calm enough for me to get some sleep. As to getting off the meds, yeah, I went through that and it was pretty bad. I think some docs...
by sleepdancer2
Thu Feb 19, 2015 9:58 am
Forum: Just Joined?
Topic: Driving me Crazy
Replies: 38
Views: 3415

Re: Driving me Crazy

My heart breaks when I read stories like yours because I know all too well the misery. The first thing I'd like to say to you is that yes, there is hope that even after all these years and meds, it is still possible to find relief. You''ll get lots of information here about augmentation and ways oth...
by sleepdancer2
Sun Feb 15, 2015 7:24 am
Forum: Prescription Medications
Topic: Dopamine Agonists and Balance
Replies: 2
Views: 591

Re: Dopamine Agonists and Balance

Have you checked your blood pressure when this happens? One of the possible side effects of dopamine agonists is listed as dizziness due to orthostatic hypotension. I had balance problems on Sinemet, which is a dopamine replacement med, not an agonist. I had a sense of falling when I looked down at ...
by sleepdancer2
Mon Feb 09, 2015 10:21 am
Forum: Augmentation
Topic: Topic of the Year
Replies: 50
Views: 66354

Re: Topic of the Year

Sorry I hadn't contributed to this topic yet, was waiting to have a block of time. My medication history regarding dopamine meds for my diagnosis of RLS and PLMD started in 1998 and includes 2-3 years on Sinemet, at least a half dozen on Mirapex, and a year or so on Requip. My memory is hazy on the ...
by sleepdancer2
Fri Jan 30, 2015 4:17 am
Forum: Everything Else...just no RLS!
Topic: Do you take any of these meds?
Replies: 22
Views: 7094

Re: Do you take any of these meds?

Let me just say how refreshing it is to read mature civilized discussion on topics that can be debatable without it deteriorating into personal attacks and angry tirades. Not all forums accomplish this. As to the news, at this point in life I expect all "news" to be slanted and incomplete,...
by sleepdancer2
Wed Jan 28, 2015 1:07 am
Forum: Everything Else...just no RLS!
Topic: Just started on Aricept
Replies: 31
Views: 13431

Re: Just started on Aricept

One cannot make up in quantity what is missing in quality. When was your last sleep study and do you have a copy of the report?
by sleepdancer2
Tue Jan 27, 2015 11:57 pm
Forum: Everything Else...just no RLS!
Topic: Just started on Aricept
Replies: 31
Views: 13431

Re: Just started on Aricept

Thank you for talking openly about this. I am always hesitant to say what I'm thinking along these lines because on one hand I would never want someone going through this to feel the seriousness of their situation is being diminished. Many people do have neurological disorders that will result in pr...