Search found 5366 matches

by badnights
Sat May 05, 2012 6:46 am
Forum: General Topics: RLS
Topic: My battle with RLS.. starting to lose faith for relief
Replies: 46
Views: 9177

Re: My battle with RLS.. starting to lose faith for relief

I ran into that when I was doing my SS disability stuff. And YES YES YES I know exactly what you mean about HOW IN THE HECK are we to fill out all these papers and go to all these docs whilst DYING from RLS!?!!! Oh, yes, it took me SIX MONTHS to fill out the four papers, I guess it was, and pull to...
by badnights
Sat May 05, 2012 5:55 am
Forum: General Topics: RLS
Topic: books
Replies: 12
Views: 2784

Re: books

can you send an amazon link, randy?
by badnights
Thu May 03, 2012 5:42 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Trying to get pregnant
Replies: 4
Views: 13982

Re: Trying to get pregnant

Please do keep in touch. You'll find here a group of people who know you're not crazy or making it all up, and who understand how real and devastating the disease is. The level of ignorance in the medical community still shocks me at times. Getting pregnant when you have this disease is something yo...
by badnights
Thu May 03, 2012 5:08 am
Forum: Just Joined?
Topic: new to here, unfortunately not new to RLS
Replies: 19
Views: 4768

Re: new to here, unfortunately not new to RLS

helen, I can't add much to what Polar Bear has said. You are in a terrible spot and it's clear to us (who have been throught the same thing) that you are not being treated properly, not through maliciousness or neglect but simple ignorance on the part of your doctors. Sadly, that's very common. Many...
by badnights
Thu May 03, 2012 4:58 am
Forum: Just Joined?
Topic: Just Joined - My Thoughts and Questions
Replies: 93
Views: 18991

Re: Just Joined - My Thoughts and Questions

bryher, my gut feeling is that you're augmenting because you're having much the same experience I did, except I had done more reading than you and stopped increasing my dose at 2.5 mg despite my doctor's request that I raise it again. I had the same short period during which a dose would work - a ni...
by badnights
Thu May 03, 2012 4:34 am
Forum: Just Joined?
Topic: English newby with question :)
Replies: 14
Views: 3197

Re: English newby with question :)

Sue, and Clare also if you are taking one of the Parkinson's drugs, this information may be useful for you: I echo Polar Bear's concern about the ropinirole dose, Sue. It can be a nasty drug for those of us with WED/RLS, especially if our ferritin is low. As far as I know from my reading, the maximu...
by badnights
Tue Apr 24, 2012 5:37 am
Forum: Prescription Medications
Topic: What about sleeping pills Also: augmentation
Replies: 10
Views: 1508

Re: What about sleeping pills Also: augmentation

I'll say it again - but you'll find lots of older posts where I've said this ad nauseum .... taking a sleeping pill when you have inadequately treated WED is downright dangerous. That said, if your WED is mild, maybe it will be enough to send you to la-la land. If your WED is not mild, esp if you ar...
by badnights
Tue Apr 24, 2012 5:31 am
Forum: Prescription Medications
Topic: Anyone else tried vicodin?
Replies: 19
Views: 4468

Re: Anyone else tried vicodin?

Pairodocs , sounds like you need a more potent opioid. Maybe your doctor will be sensible enough to look at your history, look at the RLS/WED literature, and take the low-risk option of prescribing you something stronger. I hope. You should definitely bring it up with him, and if you like, try what ...
by badnights
Tue Apr 24, 2012 5:21 am
Forum: General Topics: RLS
Topic: My battle with RLS.. starting to lose faith for relief
Replies: 46
Views: 9177

Re: My battle with RLS.. starting to lose faith for relief

Perhaps the nerves not the muscles? Peripheral nerve involvement would not be surprising.
by badnights
Tue Apr 24, 2012 5:18 am
Forum: General Topics: RLS
Topic: books
Replies: 12
Views: 2784

Re: books

The Medi book is only about $25 on amazon, and from what I can see of it on there and on google books, it's a waste of money except for people who have not done any research on their own yet. It seems to be very similar to a book I wasted money on, called "The Official Patient's Sourcebook on ....
by badnights
Sat Apr 21, 2012 5:21 pm
Forum: Prescription Medications
Topic: question - any other opiate better?
Replies: 17
Views: 4981

Re: question - any other opiate better?

yes, I'm grateful too, I really wouldn't want the high. I felt it once when I took my full dose all at once instead of staggered like I usually do, and I didn't like the feeling.
by badnights
Sat Apr 21, 2012 5:16 pm
Forum: Prescription Medications
Topic: Interesting medicine effect
Replies: 5
Views: 731

Re: Interesting medicine effect

fyi some other things donepezil has been tried for (from wikipedia also): <<<<<<<<<<<<<Donepezil has been tested in other cognitive disorders (and is sometimes used off label) including Lewy body dementia[8] and vascular dementia,[9] but it is not currently approved for these indications. Donepezil ...
by badnights
Sat Apr 21, 2012 5:13 pm
Forum: Prescription Medications
Topic: anyone tried opiods longacting at night and short acting day
Replies: 16
Views: 3467

Re: anyone tried opiods longacting at night and short acting

Red wine is worse for me than white, draft beer is worse than bottled.
by badnights
Sat Apr 21, 2012 5:44 am
Forum: Prescription Medications
Topic: question - any other opiate better?
Replies: 17
Views: 4981

Re: question - any other opiate better?

I don't get the slightest elevation of mood, let alone euphoria, from any of the opioids I've taken :cry: ! whats wrong with me :roll:
by badnights
Sat Apr 21, 2012 5:42 am
Forum: General Topics: RLS
Topic: Disability Claim
Replies: 11
Views: 3579

Re: Disability Claim

I know very little about CFS - which has a new name now, too, but I forget it - but I think one of the key things is that the fatigue is usually brought on or exacerbated by physical exertion, whereas in RLS there is no such connection, since the fatigue is a result of ongoing sleep deprivation.