Search found 5613 matches
- Wed Jan 08, 2014 7:43 pm
- Forum: General Topics: RLS
- Topic: TAKE ACTION, PLEASE!!!!!!
- Replies: 26
- Views: 3729
Re: TAKE ACTION, PLEASE!!!!!!
I think that you should post a response. However, I also think that you need to edit the length your proposed reply. As it stands, your reply is longer than the original opinion piece. My suggestion would be to reduce (not eliminate) the part about the corporate influence and keep the parts that eit...
- Fri Jan 03, 2014 6:06 pm
- Forum: General Topics: RLS
- Topic: sleep apnea
- Replies: 6
- Views: 1404
Re: sleep apnea
My WED was officially diagnosed by my sleep doctor, who also found that I had mild OSA. So, in addition to the drug treatment for the WED I have been on APAP for three months now. I am sleeping much better, but I know that the majority of the improvement has been due to the treatment of the WED. Get...
- Fri Jan 03, 2014 1:10 am
- Forum: General Topics: RLS
- Topic: Achy morning legs
- Replies: 13
- Views: 2765
Re: Achy morning legs
Joanie60, I was able to fly for all those years by learning my own coping mechanisms. I also had the advantage of flying business class on long international flights rather than "short" domestic flights. The seats have more leg room (for stretching) and on long flights, it is not a problem...
- Wed Jan 01, 2014 6:48 pm
- Forum: General Topics: RLS
- Topic: Achy morning legs
- Replies: 13
- Views: 2765
Re: Achy morning legs
Joanie 60, Ann's questions about your symptoms are key to determining whether your aches are WED or something else. You might want to check out the question and the answers that I received on this thread: http://bb.rls.org/viewtopic.php?f=5&t=8661 In my case, my legs ache or become stiff in the ...
- Wed Dec 18, 2013 4:27 pm
- Forum: General Topics: RLS
- Topic: Sleeping forward
- Replies: 10
- Views: 1828
Re: Sleeping forward
It sounds like you may be experiencing what I believe kept my WED at bay for years without drugs, namely circadian disruption. You are doing it by shifting your day and I did it with jet lag caused by traveling between time zones with changes of 6 to 12 hrs at least two times per month. If your body...
- Tue Dec 17, 2013 2:18 pm
- Forum: Prescription Medications
- Topic: Mirapex and Sleep Apnea
- Replies: 18
- Views: 3848
Re: Mirapex and Sleep Apnea
In addition to Obstructive Sleep Apnea (OSA) and Central Sleep Apnea EeFall described, there is another sleep disordered breathing condition that is sometimes referred to as Upper Airway Restriction Syndrome (UARS). UARS is somewhat controversial in that some doctors say that it is simply mild OSA w...
- Mon Dec 16, 2013 9:58 pm
- Forum: Prescription Medications
- Topic: Pramipexole and serious side effects
- Replies: 239
- Views: 39202
Re: Pramipexole and serious side effects
Then after switching to pramipexole as my primary treatment I had another sleep studydone and they discovered severe apnea - seemingly out of nowhere. I'm wondering if the drug has helped to create this apnea problem? - I also can not run/exercise now very well because I'm so out of breath. Has any...
- Sun Dec 15, 2013 9:11 pm
- Forum: Just Joined?
- Topic: Need Support
- Replies: 139
- Views: 23380
Re: Need Support
The ferritin test is simply one more analysis the lab performs as part of the your blood tests. The ferritin analysis is not normally done when your doctor orders a standard blood test, such as a CBC, where they are looking for anemia. However, as far as you are concerned, the ferritin test might be...
- Fri Dec 13, 2013 9:36 pm
- Forum: General Topics: RLS
- Topic: Retitled: Phase II, let it begin.
- Replies: 151
- Views: 20023
Re: Holding pattern - eventually you have to get gas
Ann, thanks for the thought about professional placement, but those days are long past for Debbie. Not only has she been out of the workforce for 30 yrs now, but I was very blessed in that my career such that neither one us needs to worry about working another day. I continue "working" one...
- Fri Dec 13, 2013 7:15 pm
- Forum: General Topics: RLS
- Topic: Retitled: Phase II, let it begin.
- Replies: 151
- Views: 20023
Re: Holding pattern - eventually you have to get gas
Ann, that is a beautifully prepared creative writing piece. I wholeheartedly agree with Corrie that it needs wider distribution than just this bulletin board. The message of a need to re-evaluate our lives in the context of changes in our health is a message that applies well beyond the WED communit...
- Mon Dec 09, 2013 2:14 pm
- Forum: General Topics: RLS
- Topic: WED Pain Sensation vs "Real" Pain from an Injury
- Replies: 25
- Views: 4340
Re: WED Pain Sensation vs "Real" Pain from an Injury
Ann, the 4.5 mg dose of pramipexole that they used in that study was really substantial compared to WED treatment. But, since the fibromyalgia test subjects had failed all other treatment scheme, I guess they didn't have much to lose. Hopefully the treatment works differently so that they do not und...
- Sun Dec 08, 2013 2:02 am
- Forum: General Topics: RLS
- Topic: WED Pain Sensation vs "Real" Pain from an Injury
- Replies: 25
- Views: 4340
Re: WED Pain Sensation vs "Real" Pain from an Injury
I was able to cut the remaining supply of my old, larger pills. So I am going to try the reduced dosage until I run out, which should be about two weeks. Nibbling on the new, small pills is not an option for me. One, because these things are SOOO small. I measured them and they are 3/16 inch in diam...
- Sun Dec 08, 2013 1:53 am
- Forum: General Topics: RLS
- Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
- Replies: 528
- Views: 63616
Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
I really hope that my comments find you in less dark mood that what is conveyed in your last posting. I also hope that some of it was influenced by watching the Twilight Zone episode you mentioned. That was a unbelievably great series, but was probably not the best thing to watch when depressed or f...
- Sat Dec 07, 2013 7:58 pm
- Forum: General Topics: RLS
- Topic: WED Pain Sensation vs "Real" Pain from an Injury
- Replies: 25
- Views: 4340
Re: WED Pain Sensation vs "Real" Pain from an Injury
Steve, you might find that you don't need the full .25 both times. You might be able to take .125 instead for that first dose. Or take .125 three times instead of .25 twice. Any reduction in the dose is a good thing in terms of being able to use this for a long time. Ann, that is what I had been pl...
- Fri Dec 06, 2013 3:48 pm
- Forum: General Topics: RLS
- Topic: WED Pain Sensation vs "Real" Pain from an Injury
- Replies: 25
- Views: 4340
Re: WED Pain Sensation vs "Real" Pain from an Injury
Thanks for all the comments. Since I am still new to receiving treatments for WED, I am still at the stage of learning what is possible as well as what life feels like without WED. It has been so long that it is sort of like a blind man who can suddenly see and realizes what everyone was talking abo...