Restless Legs Syndrome (RLS) Discussion Board

IMO do everything you can to not take these meds.

There was a PowerPoint on this site mostly on RLS and Opioids. I think it was a Mayo Clinic physician. He stated that they had followed every RLS patient at their facility and pramipexole had the best record for length of DA treatment without augmenting. It gave me an instant headache so I went to R...

You and many others pinpoint your RLS to the calf. I would have said the same thing 20 years ago but now it seems to all be in my thighs. What a strange disease.

I've been wearing the Fitbit over a month now and have yet to have a night it says I slept over 3 hours. I don't ever register any sleep until after 2 or 3 in the morning after I've been in bed for 4 or 5 hours (thinking I was sleeping). I assume it is PLMS but I always (if I get a reading at all) g...

I just invested in a Fitbit watch to try to gain more insight into sleep. I should have just borrowed my wife's a few more times. Both hers and mine only record 2 or 3 hours of sleep. 20 some minutes of REM. I go to bed at 9 and it does not think I sleep until 3. I wake at 6, I'm not tired during th...

I did set up a Trail Camera and observed my RLS the last four nights. It is designed to come on at the first indication of movement record for a preset time and turn off. First two nights I had my wife's Fitbit on monitoring sleep but had to figure out best camera setup. They were terrible nights, I...

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I've been on clonazepam for over 20 years. I read I should get off that benzo so after six months of reducing 2.5 mg dose I got off using Gabapentin. My RLS (thigh pain and probably PLMS) went 24/7. I tried the DAs and long lasting DAs and after a short good time, things just got worse with signific...

I've found that distraction is the only thing that can eliminate RLS for days or even up to a week. A vacation sometimes works but not always. I was just up helping family with hurricane damage and I hardly had a twinge for nearly a week. The week before it was bad as it gets and I actually through ...

I just bought a Trail Camera that turns on by sensing motion. It has LED infrared lights and only cost about $60. I doubt the doctors will be interested but I've always wondered what goes on after I go to sleep. I think I'll put a sheet of cardboard in front until I'm feeling like I might fall aslee...

Stjohn. Are you talking about people who have an iron deficiency when you say recommending Injectafer for all but the mildest RLS patients...and 25% will have complete remission …

I'm a sufferer "with RLS who had a ferritin over 90."

When I asked my doctor about pain in my thighs during bad bouts of rls she referred me to a neurologist. I've been seeing this doctor for years and talked many times about thigh pain and periodic limb movement for which I was prescribed gabapentin. Now apparently is the time to see a neurologist. I'...

I've been doing this for three months now and I have to agree with badnights there is no effect. Sometimes my legs are terrible and sometimes not so bad. Hard to pin down a benefit when rls is so cyclic. My B12 went from 300 to 1100 pg/mL with normal being 211-946. So methylcobalamin accomplished ge...

I've been taking b12 in this form for over a month now. My legs have been calmer in the afternoon and evening than they have been for years. When I lay down to sleep any calming effect is hit or miss though. Once asleep, I'm sleeping through the night, waking up once or twice and quickly getting bac...

An iron level of 10 sounds incredibly low (I have no medical background). Mine was several hundred. I think over 75 is considered right for rls (I think??) It would be great to identify the cause and treat that instead of getting mixed up with the dopamine agonists.