Restless Legs Syndrome (RLS) Discussion Board

Ohhhh! I like that idea. That falls under Main Goal 2 (making all professionals sufficiently aware to refer a patient). It's a good idea. Anything that makes it interesting , human, and something they can do something about.

Dr B is the .. I think I'm repeating a previous post - but he's a godsend to us. He has years of clinical experience and he's very interested in the disease, and very aware of the human side of his patients and their suffering. He answers emails!! for the love of god. Not even my own doctor will do ...

I'm impressed that you toughed it out, withdrawing from ropinirole after augmenting. Bravo. And I'm happy you have relief now. Note that some people think that WED/RLS symptoms include a hyperarousal, separate from the overt symptoms though they may share a common cause, and that hyperalertness can ...

you're unneccessarily negative eefall, because we know of doctors who take it very seriously. You just need to meet and work with one or more, to restore your faith. Views, as to what a doctor would get out of it, here is a partial list of inducments, some of which we may be able to tap into. Some m...

I have found that there are a great variety of attractions out there, but also great social pressures not to reveal when you don't fit the norm. my body shape doesn't interfere with my sleeping, except to deprive me of natrual padding. Since I have to have pillows under my abdomen, to ease my lower ...

onestrapaway, you just post however you feel like it, because some people like it one way and others another way. You're not going to please everyone no matter how you do it! Or maybe we're all super easy and you'll please us all no matter what you do I have passed through times of great depression ...

I think the WED Foundation already exists to do what we want done, it just doesn't have the resources or the steam. We have some steam to contribute. If we do it as part of the existing foundation, we can take advantage of their existing credibility and some of their resources... the website, maybe ...

Bonus! I sure hope this is a sign of good things to come.

A sad and happy welcome to Sparkw8. Happy to have you here, where there are others who share the dreadful problems you're having, but sad to recognize yet more suffering. You're desperate, don't respond well to many of the meds, and have had many neurologists give up on you. Please start a thread to...

Ropinirole/Requip has been known to cause augmentation from the first day, although as Ann said it is rare. I augmented on it after 3 days. Perhpas it was happeneing sooner, but I clearly idnetified it on the third day. I might consider getting that neuro back on board somehow and seeing if you can ...

To put it mildly.

Dr. L Pawluk
University of Alberta Hospital, Edmonton, AB
780 407 6585

This is the doctor I get to see every few years. He knows a lot about RLS/WED and how to treat it, and is very approachable.

Whether you doctor knows about augmentation can tell you how much they know about RLS/WED (if they haven't heard of it, or think it should be treated by increasing dosages as often as necessary, they know dangerously little about RLS/WED. Another test is how much they know about blood ferritin level...

I don't know why I didn't pick up on this the first time thru this thread. Too late too tired I guess. I see you're wondering about how unusually tired you feel all day now - not sure if it's still going on? I think - but not 100% certain - that when we've been tortured for a long time (months) then...

there are really truly no stupid questions. Sometimes there are questions we would have found the answer to if we had thought further, then we might feel stupid for asking them. But if you don't know something, it's legitimate to ask about it., whatever it is. We all have things we're good at and th...