Search found 561 matches

by legsbestill
Sat Dec 31, 2016 12:04 am
Forum: Prescription Medications
Topic: Advice on splitting Gabapentin capsules?
Replies: 14
Views: 1656

Re: Advice on splitting Gabapentin capsules?

Details are so helpful - thank you, Yawny - you could let your husband know that your efforts are appreciated!
by legsbestill
Fri Dec 30, 2016 11:51 pm
Forum: Prescription Medications
Topic: Trials and tribulations with opioids
Replies: 61
Views: 9598

Re: Trials and tribulations with opioids

Also, don't forget to keep an eye on your ferritin levels. Getting them up helped me a lot. And marijuana also helps a lot with sleep if you can get it.
by legsbestill
Fri Dec 30, 2016 11:46 pm
Forum: Prescription Medications
Topic: Trials and tribulations with opioids
Replies: 61
Views: 9598

Re: Trials and tribulations with opioids

Yes; like Holland the breakthrough for me came when I started to experiment with combining meds that were prescribed as mono-therapies by my various medical professionals (PHP and sleep consultant). None of the drugs worked particularly successfully on their own but using feedback and suggestions fr...
by legsbestill
Mon Dec 26, 2016 9:45 pm
Forum: Prescription Medications
Topic: Trials and tribulations with opioids
Replies: 61
Views: 9598

Re: Trials and tribulations with opioids

Another one here who takes gabapentin to aid sleep and counteract alerting on oxycontin. I find 50 to 75 mg works well and generally keeps me asleep all night. Any higher dose and I have unpleasant side effects during the following day.
by legsbestill
Mon Dec 26, 2016 9:00 pm
Forum: Everything Else...just no RLS!
Topic: Happy Chanukah, Merry Christmas, Joyuous Kwanza, Happy New Year, Merry Yule and Happy Solstice!
Replies: 5
Views: 11262

Re: Happy Chanukah, Merry Christmas, Joyuous Kwanza, Happy New Year, Merry Yule and Happy Solstice!

Thanks for the inclusive good wishes Ann. I missed logging in here on Christmas day. I am only a newbie but this online community has helped me so much over a very difficult year both with emotional support but as much with practical advice and suggestions. I was thinking of my wonderful online comm...
by legsbestill
Mon Dec 19, 2016 11:36 pm
Forum: Prescription Medications
Topic: Morphine pump & Deep Brain Stimulation questions
Replies: 41
Views: 9458

Re: Morphine pump & Deep Brain Stimulation questions

So happy for you Mr Ed and many thanks for posting your experience. At present meds are controlling my RLS but it is very comforting to consider there is yet another option.
by legsbestill
Fri Dec 16, 2016 11:50 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 7932

Re: Ropinerole withdrawal, oxycodone, & LDN

Btw madmom, when I came off the DAs I did not actually use an opioid - I just suffered through it - so it is possible to do it without the oxycontin - and that way you could start the LDN. I did it that way because my consultant didn't give me any option. If I had to do it again, knowing as I now do...
by legsbestill
Fri Dec 16, 2016 11:24 pm
Forum: Prescription Medications
Topic: Ropinerole withdrawal, oxycodone, & LDN
Replies: 53
Views: 7932

Re: Ropinerole withdrawal, oxycodone, & LDN

b I just figured it was someone's way of telling me to Get. To. The. Point. Mad mom, you crack me up! I thought it was just me who worried about long-windedness. Really glad you found a rls doctor you are happy with - you deserve that much after all you've been through. I don't know about going col...
by legsbestill
Fri Dec 16, 2016 4:59 pm
Forum: Prescription Medications
Topic: Improved symptoms - what now?
Replies: 43
Views: 4991

Re: Improved symptoms - what now?

Hi Holland and thanks (again) for useful info. I was just thinking I might buy a scales, having (mis) spent the afternoon using my raw material to make what I hope turns out to be decarboxylated cannabis infused coconut oil. There is so much conflicting info out there but it would appear that to mak...
by legsbestill
Fri Dec 16, 2016 12:35 am
Forum: Prescription Medications
Topic: Improved symptoms - what now?
Replies: 43
Views: 4991

Re: Improved symptoms - what now?

Loads of very useful information. Many thanks Holland and Steve and QyX. I will have to experiment further with my non-legal marijuana. I have had some great sleep with it but it is hard to get dose right. Really useful info re your use of pramipexole, Holland. I am seeing my consultant tomorrow. Ca...
by legsbestill
Wed Dec 14, 2016 8:14 pm
Forum: Prescription Medications
Topic: Improved symptoms - what now?
Replies: 43
Views: 4991

Re: Improved symptoms - what now?

I am still not sure what to do with my marijuana. I tried smoking a very small amount. It hurt my lungs and felt horrible but I had a wonderful sleep after it. Now I am wondering how to convert it to an edible form and am tussling with various issues including thc v. cbd v. cbn - which are best for ...
by legsbestill
Wed Dec 14, 2016 7:57 pm
Forum: Prescription Medications
Topic: Improved symptoms - what now?
Replies: 43
Views: 4991

Re: Improved symptoms - what now?

QyX, thank you very much for your post. It is really nice to have someone speak up for Oxycodone - besides being the line of least resistence for me as my GP is prepared to prescribe it fairly readily, it does work well for me and with few side-effects. The big drawback is that it is very difficult ...
by legsbestill
Wed Dec 14, 2016 7:08 pm
Forum: Just Joined?
Topic: third week of WED/RLS symptoms
Replies: 10
Views: 2456

Re: third week of WED/RLS symptoms

Hi fliesatnight (I love your user name), it sounds like you are having very disturbed nights and this will very quickly leave you feeling in despair. It is important to remain strong and positive. Most people find an acceptible solution to their rls which allows a fairly normal life. Polar Bear's qu...
by legsbestill
Tue Dec 13, 2016 7:44 pm
Forum: Prescription Medications
Topic: Methadone complications - not medical
Replies: 36
Views: 6371

Re: Methadone complications - not medical

Yankiwi, I was shocked and saddened to read this. Your husband's death seemed to come very quickly. I am thinking of you.
by legsbestill
Wed Dec 07, 2016 2:38 pm
Forum: Prescription Medications
Topic: Improved symptoms - what now?
Replies: 43
Views: 4991

Re: Improved symptoms - what now?

Thankyou all so much for very helpful replies. I think you saved me a trip to Belfast, PolarBear! I remember now that I had already heard that it was now banned in UK. Steve, it is thanks to another post of yours that I started using Lyrica to help overcome alerting/induce sleep and it was transform...