Iron Infusion Worked for me

Please share your experiences, successes, and failures in using non-drug therapies for WED/RLS (methods of relief that don't involve swallowing or injecting anything), including compression, heat, light, stretches, acupuncture, etc. Also under this heading, medical interventions that don't involve the administration of a medicine to the body (eg. varicose-vein operations, deep-brain stimulation). [This forum contains Topics started prior to 2009 that deal with Non-prescription Medicines, Supplements, & Diet.]
zeefy
Posts: 19
Joined: Mon Dec 10, 2018 3:55 am

Iron Infusion Worked for me

Postby zeefy » Mon Dec 02, 2019 2:53 am

Hi All. I just wanted to post an update. I finally had an iron infusion and it seems to have cured my severe RLS. I showed improvements within 6 hours and was able to sleep through the night by two weeks. It was prescribed by a hemotologist (Dextran). Hopefully, it will last. I take oral iron supplements now and also changed my diet (I was a vegan for 20 years... I now eat meat). I had to faint, beg and cry to get a doctor to finally prescribe the iron infusion. Just wanted to let you all know what seems to have worked.

stjohnh
Posts: 983
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Iron Infusion Worked for me

Postby stjohnh » Mon Dec 02, 2019 2:41 pm

Yay!!, Glad it helped. Remember the data show that for most people who respond to IV Iron, that benfits keep increasing for about 8 weeks, and that the initial infusion usually helps for a few months. Subsequent infusions last longer, 1-2 years for most.
Blessings,
Holland

ViewsAskew
Moderator
Posts: 15823
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Iron Infusion Worked for me

Postby ViewsAskew » Mon Dec 02, 2019 6:03 pm

YAY!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

QyX
Posts: 577
Joined: Wed Mar 13, 2013 12:53 pm
Location: Berlin / Germany

Re: Iron Infusion Worked for me

Postby QyX » Tue Dec 03, 2019 4:03 pm

I want one, too ... I will also try the crying, fainting and begging strategy. Otherwise doctors just don't seem to get it.

Iron infusion is a somewhat simple and straightforward treatment but it seems harder to access than high potent opioids.

Why is the potentially most effective treatment for RLS so difficult to access?

Why are our doctors so informed? Why do we have to fight so hard to get basic treatment for our symptoms?

zeefy
Posts: 19
Joined: Mon Dec 10, 2018 3:55 am

Re: Iron Infusion Worked for me

Postby zeefy » Fri Dec 06, 2019 5:09 pm

I forwarded the doctor literature, to support my request. I think there's a white paper on the benefits of IV Infusion floating around on this site. I sent it to the doc. I think it helped a lot.

ViewsAskew
Moderator
Posts: 15823
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Iron Infusion Worked for me

Postby ViewsAskew » Fri Dec 06, 2019 9:04 pm

About 4 years ago, I went to yet another neurologist who billed themselves as a "specialist" in RLS. She was maybe in her mid 40s, smart, had a LONG first appt with me, seemed to know the research...and when I brought up iron infusions, you would have thought I was saying I wanted to commit suicide. She immediately started in on the dangers - did I know how I could have organ failure and so on. I was stunned.

I had seen at least 10-15 neurologists in Chicago by that time. And it was my last. I came home and was SO sad, mad, and lost. I could not find ANYONE to work with me in one of the larger cities in the US.

My husband, shortly thereafter, said we should move to be by a doctor who WOULD help. So, 2000 miles later, we live in Southern California now. My husband has had a harder time adjusting than I would have hoped, but for me and the RLS, it was the best decision we have made since I augmented.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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