Spinal Stimulator
Re: Spinal Stimulator
Wishing you success and also a suggestion. Have you tried acupuncture while reducing the Methadone? After three spinal surgeries I had horrible withdrawal from the opioids. It was only acupuncture that finally ended the physical dependence. I've tried acupuncture for many things in my life since it's covered by my insurance and at the very least, I feel relaxed after. The only thing it every completely knocked out was the opioid dependence.
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Re: Spinal Stimulator
I tired it years ago. It hurt like crazy. I am so pain sensitive. Also not sure if insurance would cover it.Fishfood wrote: ↑Mon Mar 15, 2021 5:17 pmWishing you success and also a suggestion. Have you tried acupuncture while reducing the Methadone? After three spinal surgeries I had horrible withdrawal from the opioids. It was only acupuncture that finally ended the physical dependence. I've tried acupuncture for many things in my life since it's covered by my insurance and at the very least, I feel relaxed after. The only thing it every completely knocked out was the opioid dependence.
I am stopping the methadone today. It will take a week for it to get out of my system. I talked to my stimulator rep today. It was my decision to stop today. I wanted it out of my system. We will work to find the right position with the stimulator. Then I will deal with the gabapentin. I took it last night so I could get some sleep. They stimulator worked before and it will work again.
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Re: Spinal Stimulator
Acupuncture drove my RLS crazy, lol.
Deb - hope it goes well!
Deb - hope it goes well!
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: Spinal Stimulator
It hasn't been easy. I am now off methadone. I have another few days before it is totally out of my body but I think the worst withdrawals are over. I was up all night Wednesday but I feel better today. I know it wouldn't be easy.
I had to add back gabapentin but only 600 mg am and pm. I have been on a higher dose of that before. I think I will decrease that when I can. Stimulator was adjusted at pain Doctors appt today. Things are good !
I had to add back gabapentin but only 600 mg am and pm. I have been on a higher dose of that before. I think I will decrease that when I can. Stimulator was adjusted at pain Doctors appt today. Things are good !
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Re: Spinal Stimulator
debbluebird wrote: ↑Fri Mar 19, 2021 9:26 pmIt hasn't been easy. I am now off methadone. I have another few days before it is totally out of my body but I think the worst withdrawals are over. I was up all night Wednesday but I feel better today. I know it wouldn't be easy.
I had to add back gabapentin but only 600 mg am and pm. I have been on a higher dose of that before. I think I will decrease that when I can. Stimulator was adjusted at pain Doctors appt today. Things are good !
YAY!
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: Spinal Stimulator
Now you will have some peace in your life
- BIG HUG -
- BIG HUG -
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
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Re: Spinal Stimulator
This is not an easy thing to go through, but it is worth it to me. We are still working out which program and level will work best for me. It is getting better. It through a monkey wrench into everything when It weaned off the methadone.
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Re: Spinal Stimulator
I can imagine that getting off the methadone has been a bit troublesome!
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
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Re: Spinal Stimulator
Spinal Cord Stimulation for Restless Legs Syndrome: Case Series and Mechanistic Hypothesis
Abstract
Background: Spinal cord stimulation (SCS) is a well-established therapy for chronic pain syndromes, with growing applicability to other conditions. Restless legs syndrome (RLS) is a widespread, chronic movement disorder managed primarily and incompletely by medication, and its etiology can be classified as idiopathic or secondary.
Methods: Three patients underwent SCS implantation for chronic back and/or leg pain with concomitant targeting of RLS: (1) a 34-year-old man with sporadic RLS symptoms that strongly intensified after military-related spinal fractures, (2) a 54-year-old man with RLS likely secondary to meralgia paresthetica, and (3) a 42-year-old man with low back and right lower extremity pain after a military motor vehicle accident.
Results: Continuing through 40-month, 2-month, and 28-month follow-ups, respectively, the patients experienced exemplary relief of their RLS symptoms. Notably in the case of patient 1, this benefit appears separate from his pain relief, as during the 5-month period directly after surgery but before adjusted targeting, he only experienced pain alleviation.
Conclusions: To our knowledge, this is the first reported case of using SCS as a potentially long-lasting, safe, and highly effective therapy for RLS of mixed etiology. Additionally, 2 patients with RLS possibly secondary to chronic pain also benefited from the therapy. This success may be due to increased inhibition from hypothalamic cells controlling dopaminergic input to the spine.
Keywords: Chronic pain; Neuromodulation; Restless legs syndrome; Spinal cord stimulation.
Link:
https://pubmed.ncbi.nlm.nih.gov/3094722 ... %20therapy.
I wanted to share.
Abstract
Background: Spinal cord stimulation (SCS) is a well-established therapy for chronic pain syndromes, with growing applicability to other conditions. Restless legs syndrome (RLS) is a widespread, chronic movement disorder managed primarily and incompletely by medication, and its etiology can be classified as idiopathic or secondary.
Methods: Three patients underwent SCS implantation for chronic back and/or leg pain with concomitant targeting of RLS: (1) a 34-year-old man with sporadic RLS symptoms that strongly intensified after military-related spinal fractures, (2) a 54-year-old man with RLS likely secondary to meralgia paresthetica, and (3) a 42-year-old man with low back and right lower extremity pain after a military motor vehicle accident.
Results: Continuing through 40-month, 2-month, and 28-month follow-ups, respectively, the patients experienced exemplary relief of their RLS symptoms. Notably in the case of patient 1, this benefit appears separate from his pain relief, as during the 5-month period directly after surgery but before adjusted targeting, he only experienced pain alleviation.
Conclusions: To our knowledge, this is the first reported case of using SCS as a potentially long-lasting, safe, and highly effective therapy for RLS of mixed etiology. Additionally, 2 patients with RLS possibly secondary to chronic pain also benefited from the therapy. This success may be due to increased inhibition from hypothalamic cells controlling dopaminergic input to the spine.
Keywords: Chronic pain; Neuromodulation; Restless legs syndrome; Spinal cord stimulation.
Link:
https://pubmed.ncbi.nlm.nih.gov/3094722 ... %20therapy.
I wanted to share.
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Re: Spinal Stimulator
Debbluebird - Thank you for this, it is always good to hear of some positives.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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Re: Spinal Stimulator
Only an n of 3, but great results. Hope they keep trying it. Seems that this would be wonderful for a certain subset of folk.debbluebird wrote: ↑Fri Apr 09, 2021 2:46 amSpinal Cord Stimulation for Restless Legs Syndrome: Case Series and Mechanistic Hypothesis
Abstract
Background: Spinal cord stimulation (SCS) is a well-established therapy for chronic pain syndromes, with growing applicability to other conditions. Restless legs syndrome (RLS) is a widespread, chronic movement disorder managed primarily and incompletely by medication, and its etiology can be classified as idiopathic or secondary.
Methods: Three patients underwent SCS implantation for chronic back and/or leg pain with concomitant targeting of RLS: (1) a 34-year-old man with sporadic RLS symptoms that strongly intensified after military-related spinal fractures, (2) a 54-year-old man with RLS likely secondary to meralgia paresthetica, and (3) a 42-year-old man with low back and right lower extremity pain after a military motor vehicle accident.
Results: Continuing through 40-month, 2-month, and 28-month follow-ups, respectively, the patients experienced exemplary relief of their RLS symptoms. Notably in the case of patient 1, this benefit appears separate from his pain relief, as during the 5-month period directly after surgery but before adjusted targeting, he only experienced pain alleviation.
Conclusions: To our knowledge, this is the first reported case of using SCS as a potentially long-lasting, safe, and highly effective therapy for RLS of mixed etiology. Additionally, 2 patients with RLS possibly secondary to chronic pain also benefited from the therapy. This success may be due to increased inhibition from hypothalamic cells controlling dopaminergic input to the spine.
Keywords: Chronic pain; Neuromodulation; Restless legs syndrome; Spinal cord stimulation.
Link:
https://pubmed.ncbi.nlm.nih.gov/3094722 ... %20therapy.
I wanted to share.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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Re: Spinal Stimulator
wow. Wonder if it would be effective for any of us who don't have a known spinal injury.
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
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Re: Spinal Stimulator
I don't have a spinal injury. I have osteoarthritis which has affected my spine.
This is a gamble but worth a try. I had to adjust my stimulator several times before finding the right place. The reps work close with me. Last night wasn't so great for me but then the two previous nights, I slept all night. My condition changes constantly. If I can get more good night's than not so good nights, it was worth it to me.
This is a gamble but worth a try. I had to adjust my stimulator several times before finding the right place. The reps work close with me. Last night wasn't so great for me but then the two previous nights, I slept all night. My condition changes constantly. If I can get more good night's than not so good nights, it was worth it to me.