What can I do???

Please share your experiences, successes, and failures in using non-drug therapies for RLS/WED (methods of relief that don't involve swallowing or injecting anything), including compression, heat, light, stretches, acupuncture, etc. Also under this heading, medical interventions that don't involve the administration of a medicine to the body (eg. varicose-vein operations, deep-brain stimulation). [This forum contains Topics started prior to 2009 that deal with Non-prescription Medicines, Supplements, & Diet.]
Post Reply
Moonlight

What can I do???

Post by Moonlight »

Hi there!
First of all, I´m from germany, so sorry bout my english... :oops:

I´m new in this forum. And I´m new with RLS, cannot sleep at night, so I go jogging at 1 or 2 am.
Please tell me, what else can I do? I read the thread bout magnesium, does it help?
Please help me, cause I´m going crazy... :cry:

Thanks,
Moonlight

sardsy75
Posts: 862
Joined: Thu Mar 18, 2004 8:56 am
Location: Queensland, Australia

What u can do....

Post by sardsy75 »

Hi Moonlight :)

Welcome to the group! We are here for each other day and night so feel free to vent away or bombard us with questions and we will do our best to assist you with advice from our own experiences.

Firstly, below is a listing of RLS Healthcare Providers in Germany. I found their names on this site under the Healthcare Directory. Check through them as there may be one or more that you can get in contact with for some treatment.

MZ Nervenheilkunde
Karin C. Stiasny-Kolster MD
Neurologische Klinik
Rudolf-Bultmann-Str 8
35039 Marburg
Germany
49-642-1286 Ext 5475
Neurology

Krankenhaus Hellendorf
Brigitte Kurella MD
Krankenhaus Hellersdorf
d.b. Wilhelm-Griesinger
Schlaflabor - Myslowitzer Strasse 45
Berlin 1261
Germany
+49(30)/56803812
Sleep Medicine

University of Marburg
Wolfgang H. Oertel MD
Dept Neurology
Marburg, Rudolf-Bultmann Str 8
D-35033 Marburg
Germany
496-421-2866 Ext 279
Neurology

University of Goettingen
Claudia Trenkwalder MD
Dept. Clinical Neurophysiology
Robert-Koch-Strasse 40
D-37075 Goettingen
Germany
00+49551398453
Neurology
Sleep Medicine

Klinikum der Universitat
Magdolnal Hornyak MD
Abt. fur Psychiatrie-Psychotherapie
Hauptstrasse 5
Freiburg D 79104
Germany
761-270-6501
Psychiatry
Sleep Medicine

Secondly, read read and read all you can about RLS.

Below are some links to some excellent RLS sites, including medications & treatments:

General RLS Information:
http://www.wemove.org/rls.html
http://www.jmjudson.com/rls.html
http://www.rlshelp.org
http://www.sleepnet.com/disorder.htm
http://www.rls.org

RLS Treatment Information:
http://www.jmjudson.com/medications.html
http://www.rlshelp.org/rlsrx.htm

Fighting RLS with everything else:
http://www.rlsrebel.com

You might find it helpful to print out any information you think is important and put it together in a folder. If you're GP/Neurologist doesn't know much about RLS, they should be open to learning about it and helping you out.

I highly recommend the rlsrebel site. It has very practical information for "combat techniques"!

If you have a regular GP who you can trust to work with you? If so, it might be an idea for you to print out the RLS Foundations Medical Bulletin and take it with you to your next appointment. The link is as follows: http://beta.restlesslegs.org/literature/bulletin.html It is a very informative bulletin and should provide enough information for your doctor to start assisting you with treatment.

Magnesium may work however, before starting any supplements I suggest that you get a blood test done and have your Iron, Ferretin, Magnesium, B12 levels tested for starters, as well as anything else your doctor might think to be relevant.

My favourite non-drug therapies are massage, craniosacral therapy, reading a really really gripping novel, and long hot baths.

Hope that all made sense and is of some assistance to you!

By all means, keep us posted on your journey as there are many people here who could offer advice about one situation or another.

Take care
Nadia
Nadia

My philosophy is simply this: Life is too short to be diplomatic. Your friends should not care what you do, or say; and for those who are not your friends ... their loss!!!

utahlovesmartina

What works for me

Post by utahlovesmartina »

Welcome,
Yes Magnesium helps me. I take a Calcium and magnesium citrate blend drink before bed and it really works for me. You can order it from www.greatamericanproducts.com. Hope this helps.

Heronak
Posts: 113
Joined: Mon Apr 26, 2004 3:45 pm
Location: Juneau, Alaska
Contact:

Post by Heronak »

Welcome Moonlight, sorry you have to be here! Nadia provided excellent information and links in her post, take the time to read, read, read. The more informed you are, the better.

I have no experience with magnesium, but I think what you'll find is that there are many things to try, many things that work for different people but not all, and work for a period of time before the symptoms come back. You'll have to do some research and trial & error to figure out what works for you. A knowledgeable doctor is a gift as well. All the best,

Heron

Rubyslipper
Posts: 992
Joined: Wed Mar 24, 2004 2:53 am
Location: Missouri

Post by Rubyslipper »

This is a great support group and you have already received excellent advice. About all I can contribute is to keep a sleep diary. It may help you find "triggers" that make symptoms worse or even better, things that help. Moderate excercise is good, too much may cause more problems. Most of us do not tolerate stress, alcohol or caffeine. We're all walking this path together and you can even practice your English with us (although it sure sounds find to me!)

claradragon
Posts: 93
Joined: Wed Jul 21, 2004 5:15 am
Location: kent,england UK
Contact:

Post by claradragon »

i agree with rubyslipper your english sonds good...your spelling is better than mine and i'm english :P welcome and i hope you find this place as welcoming as i have :lol:

Post Reply