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Posted: Mon Jun 08, 2009 7:49 pm
by kay3914
I just found this group. I have had RLS as long as I can remember but up until now it was manageable. For the past few months it has gotten much much worse: every night, all night.

I had already tried many of the remedies I saw here, including quinine water, which works instantly on leg cramps but not RLS; Icy Hot, likewise; massage; calcium, stopping aspartame, and others.

I also tried TEDS (elastic stockings) that I had left over from surgery last year and found they made it worse. In fact, wearing pantyhose or tight jeans often trigger RLS.

My doctor prescribed medication which works initially -- one dose lasts about two nights -- but the RLS seems to bounce back with symptoms starting earlier and lasting longer.

I am getting desperate to find out what has caused it to be so much worse all of a sudden and equally desperate to find some kind of relief. I will continue to follow suggestions I find here.

Posted: Mon Jun 08, 2009 9:50 pm
by Betty/WV
Hi Kay: Been there, done that. I wish I could give you some wonderful advice that would help you.

I now take Mirapex .25mg twice a day, plus .5 mg. klonopin. And at least I am getting some sleep. I am much better than I have ever been, and have had RLS for 30 or 40 years. I've tried everything, been to many doctors. Thats the key, finding a doctor that will work with you. Not an easy task.

When my RLS was at its worse, the only thing that would help me, was I would run the bath tub full of hot water, as hot as I could stand it. And most of the time it would relax my legs and eventually I could go to sleep.
Also, another thing that would help was my doctor had given me vicodin, and that would help. But some doctors are stingy about giving you a narcotic. But it helps, and I never increased the dose, or got addicted to it.

Read as much as you can about RLS. And try to find a doctor that will be sympathic.

I wish you the best, and please let me know how things turn out.

I recently read this and thought it was so appropriate.

"O, Sleep, rest of all things, mildest of the gods, balm of the soul"
Iris to Hypnos. Ovid Metamorphoses.

BETTY/WV

Posted: Fri Aug 28, 2009 10:00 am
by thib2
I am new to this message board and have suffered with RLS my entire life , even as a child my mother would not let me sleep with her because she said I 'kicked all night". I am 58 years old. The things that have worked for me are lying on my stomach, getting up and moving around, no caffine. But these were not solutions. I have also in the last year or so discovered Restful Legs at CVS and Walmarts. It is a homeopathic remedy and works most of the time, or at least eases the sensation. I have noticed that statins have made my RLS worse and now I take just fish oil. The fish oil has helped my hot flashes and the RLS. I have not even had to take the Restful Legs lately. I hope this is helpful to someone.

A Big Thank You

Posted: Thu Sep 22, 2011 2:01 pm
by brona44
I have just registered with the discussion board and to log on and find this most useful list - well I am very grateful. Thank you Ann! :D

Posted: Thu Sep 22, 2011 3:44 pm
by Polar Bear
bronagh44, thanks for your good comments, we hope the site continues to prove useful and supportive. Even if you feel like having a good rant ..... use us. :)

Posted: Thu Sep 22, 2011 8:59 pm
by ViewsAskew
Polar Bear wrote:bronagh44, thanks for your good comments, we hope the site continues to prove useful and supportive. Even if you feel like having a good rant ..... use us. :)


You are very welcome. I wish I had time to do more things like this for the board.

Re: Compilation of what's worked

Posted: Mon Jan 16, 2012 4:33 am
by prisjohn
Thank you Ann. You did a great job with this.

As for the Red Bull, I used it as a last resort when I had to make an emergency long distance trip during early morning hours. That and sheer adrenaline, I guess, seemed to help.

Re: Compilation of what's worked

Posted: Mon Feb 13, 2012 4:17 am
by PhilGB
Wow, this is quite a list! If I did not suffer from this disease and know its misery, and only read about the variety of "cures" in this thread, I would swear RLS was a joke. Personally I put my faith into the scientific method and professionally managed clinical double blind trials. Of course that is not to say the magnetized Reiki-blessed soap placed under the sheet next to my holographic energy bracelet on my ankle does not work. I am just saying, your mileage may vary.

Re: Compilation of what's worked

Posted: Mon Feb 13, 2012 4:40 am
by ViewsAskew
PhilGB wrote:Wow, this is quite a list! If I did not suffer from this disease and know its misery, and only read about the variety of "cures" in this thread, I would swear RLS was a joke. Personally I put my faith into the scientific method and professionally managed clinical double blind trials. Of course that is not to say the magnetized Reiki-blessed soap placed under the sheet next to my holographic energy bracelet on my ankle does not work. I am just saying, your mileage may vary.


PhilG - it's a strange disease, isn't it?

As someone for whom only the double-blind proven pharma methods have worked, I'm actually envious. I'd love to have one of these solve my problems!

Locking it

Posted: Mon Oct 22, 2012 2:57 am
by ViewsAskew
This was created to provide a 'quick' glance at what people have posted about. It really isn't for discussion. It's also a bit outdated, as it's been a long time since I've reviewed everything.

I think locking it makes sense now so that it doesn't start accumulating ideas that would be more easily found in their own threads.