General Questions

Anything on your mind that isn't about RLS? It's nice to realize that there is life beyond this disease and have an opportunity to get to know our online family in a different context.
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coppertop
Posts: 1
Joined: Sun Jun 11, 2006 5:53 am

General Questions

Post by coppertop »

Hi, I am new to this website and I need help. My daughter has started having jerking episodes. Her head will jerk from side to side. She also had this to happen about 3 months ago when her newborn daughter was placed in a childrens hospital for a heart abnormality. Needless to say the stress level was extremely high. After the baby was released the episodes seemed to go away and now they have started up again. To me it doesn't sound like RLS but I am not a doctor. Does anyone have any suggestions? I also have personal issues with Sleep Apnea, High Blood Pressure, and all the usual ailments of aging, is there anyone out there in this same boat? Thanks for listening. :? :?

ksxroads
Posts: 645
Joined: Tue Aug 02, 2005 8:19 pm
Location: Kansas

Post by ksxroads »

Dear Copper...

It doesn't sound like RLS to me. The criteria for RLS is found in the New to RLS section in the sticky posts.

Your observation that is may be related to stress is probably right, though I am not a doctor. She might be experiencing muscle spasms.

"What causes muscle spasms? Spasms are triggered by physical and emotional stress. Here is an article that has some suggestions for reducing the muscle spasms in the neck, upper back and shoulder muscles in fibro patients. It might be helpful in your situation.

Hazey

Treating Headaches & Muscle Spasms in Fibromyalgia
ImmuneSupport.com

10-02-2002

By Dr. Richard L. Bruno
At least once a week I get a sharp pain on one side of my head, sometimes the left, most often on the right. I sometimes I wake up with a headache, but also get one at the end of the day when I am tired. My neck also hurts on the side where my head hurts and I often feel nauseated. One doctor says I have fibromyalgia. Another says migraines. But I don't have flashes in front of my eyes and I don't throw up. Is my headache a migraine? Is it due to fibromyalgia? Probably neither. Patients tell me they have migraine headaches because there is pain on one side of the head plus nausea. But despite nausea, most people with headaches don't have migraines. Headaches are most often the result of muscle spasms in the neck, upper back and shoulder muscles. When a muscle on one side of the neck goes into spasm it causes not only a one-sided headache but also pushes on the vagus nerve in the neck -- the nerve that makes the stomach "turn on" -- and causes nausea. Such single-sided headaches sound like migraines, but aren't. What's more, we see many people with headaches, back and neck pain who are diagnosed with fibromyalgia but whose pain is actually due to muscle spasms.

What causes muscle spasms? Spasms are triggered by physical and emotional stress. Physical stress can be doing too much and becoming fatigued or having "painful" posture. Painful posture is sitting or standing with your back looking like a C: your head falling forward, upper back curled over, shoulders elevated, being bent forward at the waist or tilting to one side (by the way, sitting at the computer may be the #1 cause of painful posture.) Emotional stress can be anything from the slings and arrows of living in the 21st century to the hard-driving, pressured, overachieving, work-till-you-drop Type A lifestyles that many CFS/ME patients have.

How do you treat headaches and other muscle spasm pain? First you need to make sure that the pain is indeed caused by a spasm. A morning headache can be a symptom of a sleep disorder like sleep apnea. A daytime headache can be a sign of high blood pressure or hypoglycemia. Having a breakfast with 16 grams of protein and an 8 gram protein snack at 10:00 am and 3:00 pm can significantly decrease spasms and pain.

If spasms are causing pain you need to take the stress off yourself and your muscles. You need to slow down, pace activities and rest during the day, even lie down to take the load off your muscle for 15-minute rest breaks, one in the morning and one in the afternoon. You also need to balance your body -- front to back and side to side, while sitting, standing and walking -- so that muscles don't have to fight gravity to keep you upright.

A physical therapist (PT) with lots of experience treating chronic pain can help you turn off long-standing spasms. PTs can teach proper posture and suggest assistive devices to balance your body while standing and walking. Using a lumbar cushion while sitting, and a contoured, fiber-filled cervical pillow while sleeping on your back, insure good posture and turn off back and neck spasms day and night. Since heat is usually more helpful for spasms than is ice, PTs can do ultrasound (the deep heating of muscle using sound waves) and you can warm your muscles at home by taking a hot bath or shower and by using a heating pad.

Actually, you always need to keep your painful muscles warm, especially those in your neck and shoulders, since cold also triggers muscle spasms. The change of seasons -- especially the transition from summer to fall -- is very troublesome for those with spasms since your body isn't sure just what the temperature is. Dress in layers and bring along a sweater to keep your cold-sensitive muscles warm wherever you are, inside or out.

And be careful if you go to a physical therapist. Too many PTs use the "shake and bake" method: gentle massage after your muscles have been heated by a hot pack. Although massage and heat can relax muscle spasms and make you feel better for a few hours, if you don't take the stress off your muscles and change your posture all day long the spasms and pain will return.

Once your spasms start to relax a home stretching program is indispensable. With help from your PT you can find a few stretches for the specific muscles in spasm. Stretch just before bed, first thing in the morning, every half hour during the day and whenever you feel muscles tightening. A handful of stretches combined with reduced physical and emotional stress, proper posture and staying warm will keep muscles relaxed day and night and stop muscle spasm pain, including those nasty headaches.

About the author: Dr. Richard Bruno is Director of Fatigue Management Programs and The Post-Polio Institute at Englewood (NJ) Hospital and Medical Center. His new book, THE POLIO PARADOX: UNCOVERING THE HIDDEN HISTORY OF POLIO TO UNDERSTAND TREAT "POST-POLIO SYNDROME" AND CHRONIC FATIGUE, is published by Warner Books (AOL Keyword POLIO PARADOX.) E-mail questions to Dr. Bruno at PolioParadox@aol.com.
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation.

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