CONSUMER REPORTS BAD PRESS -- WE NEED YOUR HELP!

Anything on your mind that isn't about RLS? It's nice to realize that there is life beyond this disease and have an opportunity to get to know our online family in a different context.
SquirmingSusan
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Post by SquirmingSusan »

jan3213 wrote:[b]My original email was returned, as well. I have now used the link you suggested, Susan.


Gotta give credit where credit is due, that was KBear who posted that link. :wink:
Susan

SquirmingSusan
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Post by SquirmingSusan »

Another great letter, by the way, Jan! Thanks for writing. Someday, if we keep it up, they'll 'get it.'
Susan

KBear
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Post by KBear »

SquirmingSusan wrote:
jan3213 wrote:[b]My original email was returned, as well. I have now used the link you suggested, Susan.


Gotta give credit where credit is due, that was KBear who posted that link. :wink:


As long as we are giving credit where credit is due, the link was originally posted by Wkitsteiner on page one of this thread. :wink:

I just reposted it for convenience sake.
Kathy

Link to the Mayo Clinic Algorithm:

http://www.mayoclinicproceedings.com/pd ... 907Crc.pdf

jan3213
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Post by jan3213 »

I've been gone for Thanksgiving--just got home.

Sorry, KBear, I just got that link quickly the other day and guess I didn't pay close enough attention.

Anyway, glad to do my bit for all of us. It's the least I can do. I hope, some day, we never have to worry about writing a letter like that. Wouldn't that be wonderful?

Hope you all had a good Thanksgiving.

Jan
No one is alone who had friends.

SquirmingSusan
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Post by SquirmingSusan »

Hmmm, I just received a letter from Consumer Reports begging me to renew my membership, since I let it lapse a while ago. Instead of a renewal form, they're going to get a copy of my letter. :twisted:
Susan

ctravel12
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consumer bad press -- we need your help?

Post by ctravel12 »

I got an answer back from consumer reports. Does anyone know how I can copy and post it on the board. Need help. thanks
Charlene
Taking one day at a time

Neco
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Post by Neco »

Go to the starts of their text reply, and click /hold down your left mouse button and drag your mouse down over the entire reply.. The screen should scroll with it, if necesarry (but sometimes programs don't...so maybe not).

Then you should be able to right click on the highlighted text, and select "copy" or "cut" and be able to "paste" it into a forum post..

You can also try CTRL+A to highlight the entire document window, but you will likely have to trim off all the extra text you don't want when you paste it here

ctravel12
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Post by ctravel12 »

This is my reply



Dear Ms. Charlene Travelstead:

Thank you for contacting us to share your feelings regarding the Consumer
Reports AdWatch video on Requip. We take the comments that we receive
quite seriously as we allow them to shape all of the work that we do.

First, while we appreciate the points you make, we believe that the video
clearly does not make light of RLS or at anyone who suffers from the
problem. As the video and accompanying introduction both note, RLS is a
real condition that afflicts some 3% of Americans. We have great sympathy
for all who suffer from this syndrome and other chronic diseases, and agree
that many people get relief from prescription drugs.

The point of the video has to do instead with the marketing of this
product, and of the disease. We feel, and say in the video, that the ad's
description of RLS is so vague that almost anyone might come away wondering
whether they have it. We feel that the dr ug's side effects include some
that can in fact be troubling. And we try to point out how the ad, in our
opinion, manages to downplay these problems through the use of a gentle
soundtrack and relaxing imagery while listing them.

We also feel that by focusing solely on a pharmaceutical remedy, the ad
overlooks various non-medicinal treatments that are probably worth
considering in evaluating a proper therapy.

All of the above are important points, and we think they come through
plainly to viewers - an impression that is backed up by the many favorable
comments about the video that have appeared on our weblog and on others
that follow this industry.
We don't hope to change your mind about this point, but we do want to make
clear that projects like AdWatch are part of the mission of an independent,
non-ad-supported, consumer organization like Consumers Union, the publisher
of Consumer Reports. Direct-to-consumer (DTC) drug ads have become
increasingly common on TV, in magazines and newspapers, and on the Web. It
is the responsibility of groups like Consumers Union to provide
counter-perspective where we believe it could be valuable, and this is one
of those instances.

Thanks again for taking the time to write. Your interest in our work is
greatly appreciated.

Sincerely,

Stephanie Moreira
Customer Relations Representative
1069962
Charlene
Taking one day at a time

ctravel12
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Post by ctravel12 »

Thanks Zach for your help
Charlene
Taking one day at a time

Rubyslipper
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Post by Rubyslipper »

Exact same answer that everyone is receiving, me included. I fired back a reply but it will be ignored. Anyone have any other ideas to try?
You've always had the power my dear, you just had to learn it for yourself! (Glinda of Oz)

Walking After Midnight
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Post by Walking After Midnight »

Rubyslipper wrote: Anyone have any other ideas to try?


Hire a terrorist group?

ctravel12
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Post by ctravel12 »

I guess they think that this will justify everything. WAM love your idea LOL

They do not know us do they???????????
Charlene
Taking one day at a time

becat
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Post by becat »

WAM, the foundation only has so much money, come on, we'll never get a terriost group.........LOL :D

We could hit them a mini version of Quality of Life statements, I'd gladly head the project. NNoy using our previous packages, due to privacy.

I'm talking about one full page or not, of, "walk dozen miles in our shoes...for one night"

Maybe ask for own 15-30 minute sot at telling our story. Why maybe the commerical helped and hurt us?

These are things we can, and the more the better. Group leaders here could help as well.

Anyone wanna?

hug Lynne

Rubyslipper
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Post by Rubyslipper »

Count me in! If that doesn't work, let's try the terrorist approach. We could do a fund-raiser to pay them off.
You've always had the power my dear, you just had to learn it for yourself! (Glinda of Oz)

lyndarae
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Post by lyndarae »

I'm in.................

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