CONSUMER REPORTS BAD PRESS -- WE NEED YOUR HELP!

Anything on your mind that isn't about RLS? It's nice to realize that there is life beyond this disease and have an opportunity to get to know our online family in a different context.
ctravel12
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Post by ctravel12 »

Ruby no truer word were spoken. We WILL never get rid of you. Love you
Charlene
Taking one day at a time

wkitsteiner
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Post by wkitsteiner »

Thought you all might be interested in reading the replies we collected that were sent to us. Thanks for helping with this fight!

http://www.rls.org/NETCOMMUNITY/Document.Doc?&id=974

Rubyslipper
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Post by Rubyslipper »

The response from CR is the same one all of us who emailed/wrote to them received. I doubt that they read more than the first two-three and then convinced themselves that the positive responses they received far outweighed the negative. Pity that they couldn't do anything except justify their stupidity.
You've always had the power my dear, you just had to learn it for yourself! (Glinda of Oz)

tazzer
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Post by tazzer »

GOD I LOVE BEING A SMART "do not bypass the swear filters" TO THOSE WHO DESERVE IT!!!!!!

they received a lovely message from me. just makes me want to take that person and b*i*t*c*h slap them!!!!!

d
I feel like a science project!!!

“The syndrome is so common that it should be known to every physician.”
Dr Karl Ekbom, 1945

Aiken
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Post by Aiken »

wkitsteiner--

I'd think an organization like the RLS Foundation should be able to personally contact Mr. McKean, by voice or in person. I may not be able to get past his assistant, but I suspect you can, if you are persistent.

I think you *must* do that.

Sending them letters or email will be completely fruitless. People can ignore letters, or ignore their contents, as I'm sure you see. People can make statements you cannot respond to. You must have a live person in order to make an argument. Until you can accomplish that, I don't think you'll have any success at all in having that video removed.
Disclaimer: I often talk about what I do and what works for me, but these are specific to me and you should always consult a healthcare professional before trying these things yourself, lest you endanger your health or life.

ctravel12
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Joined: Mon Jul 03, 2006 2:02 am
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Post by ctravel12 »

Oh Tazz you sounded like my sister-in-law saying b*i*t*c*h* slap them. Love it. LOL It is so great to see you posting again.
Charlene
Taking one day at a time

tazzer
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Post by tazzer »

is this the same reply everyone else got

Dear Ms. Dee J:

Thank you for contacting us to share your feelings regarding the Consumer
Reports AdWatch video on Requip. We take the comments that we receive
quite seriously as we allow them to shape all of the work that we do.

First, while we appreciate the points you make, we believe that the video
clearly does not make light of RLS or at anyone who suffers from the
problem. As the video and accompanying introduction both note, RLS is a
real condition that afflicts some 3% of Americans. We have great sympathy
for all who suffer from this syndrome and other chronic diseases, and agree
that many people get relief from prescription drugs.

The point of the video has to do instead with the marketing of this
product, and of the disease. We feel, and say in the video, that the ad's
description of RLS is so vague that almost anyone might come away wondering
whether they have it. We feel that the drug's side effects include some
that can in fact be troubling. And we try to point out how the ad, in our
opinion, manages to downplay these problems through the use of a gentle
soundtrack and relaxing imagery while listing them.

We also feel that by focusing solely on a pharmaceutical remedy, the ad
overlooks various non-medicinal treatments that are probably worth
considering in evaluating a proper therapy.

All of the above are important points, and we think they come through
plainly to viewers - an impression that is backed up by the many favorable
comments about the video that have appeared on our weblog and on others
that follow this industry.
We don't hope to change your mind about this point, but we do want to make
clear that projects like AdWatch are part of the mission of an independent,
non-ad-supported, consumer organization like Consumers Union, the publisher
of Consumer Reports. Direct-to-consumer (DTC) drug ads have become
increasingly common on TV, in magazines and newspapers, and on the Web. It
is the responsibility of groups like Consumers Union to provide
counter-perspective where we believe it could be valuable, and this is one
of those instances.

Thanks again for taking the time to write. Your interest in our work is
greatly appreciated.

Sincerely,

Mary Palumbo
Customer Relations Representative
1099006
I feel like a science project!!!

“The syndrome is so common that it should be known to every physician.”
Dr Karl Ekbom, 1945

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