What they really mean is that they haven't discussed it enough with those of us who experience it.This leads me to believe that when they say that WED only occurs when awake, what they really they mean is that there is NO way our bodies can stay asleep with it happening. - we MUST be awake when it's active, eve if it started while we were sleeping.
sleep issues
-
- Moderator
- Posts: 6259
- Joined: Tue Mar 10, 2009 4:20 pm
- Location: Northwest Territories, Canada
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
-
- Moderator
- Posts: 8821
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Just to update, I have been on the amitriptyline for fibro and especially for sleep for about ten weeks. Started at 10mg, upped to 20mg, and last night upped to 30mg. My sleep is so much better, usually just one awakening which is brief and I get back over to sleep, averaging about 7 hours.
If the dose of 30mg does not improve on the one/two awakenings that I have during the night, then there is no reason to keep it at 30mg and I may go back down to 20mg.
I had refused amitriptyline from the doc several times as I was so afraid of it and it was in desperation that I agreed to try it, having first gotten the doc's ok to up my tramadol if it gave me a bad time and until I could see her.
Fingers crossed that it continues to have no effect on the WED.
If the dose of 30mg does not improve on the one/two awakenings that I have during the night, then there is no reason to keep it at 30mg and I may go back down to 20mg.
I had refused amitriptyline from the doc several times as I was so afraid of it and it was in desperation that I agreed to try it, having first gotten the doc's ok to up my tramadol if it gave me a bad time and until I could see her.
Fingers crossed that it continues to have no effect on the WED.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
-
- Moderator
- Posts: 6259
- Joined: Tue Mar 10, 2009 4:20 pm
- Location: Northwest Territories, Canada
this is such good news, pb! sleep is a wonderful thing ....
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.
-
- Moderator
- Posts: 16581
- Joined: Thu Oct 28, 2004 6:37 am
- Location: Los Angeles
Great news, PB!
And a wonderful reminder that we shouldn't refuse anything even if it does have adverse effects on some people. Sure, avoid the things that affect 80-100% of us! But, trying the ones that affect 50% or less mean that there is a 50/50 or better chance that it WILL work.
And a wonderful reminder that we shouldn't refuse anything even if it does have adverse effects on some people. Sure, avoid the things that affect 80-100% of us! But, trying the ones that affect 50% or less mean that there is a 50/50 or better chance that it WILL work.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 8821
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
*&^%$£$%^&*
For whatever reason despite having taken 30mg amitriptyline last night I didn't get to sleep until 4am. So got only 4 hours last night. I guess there still has to be a hiccup now and again.
For whatever reason despite having taken 30mg amitriptyline last night I didn't get to sleep until 4am. So got only 4 hours last night. I guess there still has to be a hiccup now and again.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
-
- Moderator
- Posts: 16581
- Joined: Thu Oct 28, 2004 6:37 am
- Location: Los Angeles
And, if you're like me, I am SO intolerant of those hiccups!
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Re: sleep issues
I took a capsule of melatonin at bed time-just once in my life, many years ago. I didn't sleep a wink all night.I've heard other people say the same thing.