Sleepless In America

Anything on your mind that isn't about RLS/WED? It's nice to realize that there is life beyond this disease and have an opportunity to get to know our online family in a different context.
debbluebird
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Re: Sleepless In America

Postby debbluebird » Wed Oct 28, 2015 7:43 am

My husband finally had surgery on his neck and a month later lower back. It seems that those were the areas that the spinal fluid was being blocked. It has been several months. He is a little better but still has pain. There is no nerve damage. Maybe by next summer he will be a little better. We finished the house.

Polar Bear
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Re: Sleepless In America

Postby Polar Bear » Wed Oct 28, 2015 2:23 pm

Happy to hear that your DHs surgery is safely over and hope that his pain eases eventually.

Reading back over this thread and the matter of sleeping - where you said that your room was too small for twin beds. Views was saying that she'd consider twin beds put together. I would also like that.
However, with your lack of space, what about two small singles pushed together. I think they measure 2'6" wide which would equate to 5' wide, but with two separate mattresses which could be memory foam. Individual beds but 'up close' .... such a shame to have to consider separate rooms.
(Even though I on occasion spend a few hours in another room)

Just wonder how you are managing your sleeping arrangements at present so that you both cope.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
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Re: Sleepless In America

Postby debbluebird » Wed Oct 28, 2015 4:53 pm

We are sleeping so much better. The main bedroom would not fit two single beds. We wouldn't be able to walk into the room or get to the closet. I've got my room all set up. I have my sewing and painting in there too. Of course I can only have one thing out at a time. He is actually sleeping at night instead of during the day.
I am hoping with a few more months his pain will get better. But also he is going to try a drug holiday so his receptors will reset.

Polar Bear
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Re: Sleepless In America

Postby Polar Bear » Wed Oct 28, 2015 6:11 pm

So nice to hear that you are sleeping, sounds like you have a lovely little den for yourself :)
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Re: Sleepless In America

Postby ViewsAskew » Fri Oct 30, 2015 4:12 am

You go! House is done, both of you are doing better. Must feel nice to catch a bit of a break finally.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
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Re: Sleepless In America

Postby debbluebird » Mon Nov 23, 2015 11:36 am

Well, tonight I am wide awake, but my legs are quiet. I've been trying to lose weight, as usual for several months. For the last couple of weeks I was eating 400 to 500 more calories than I really wanted to. Before that it's been up and down, but I have been loosing weight. So yesterday I ate pretty much what I should, finally. But I have been so wired tonight. Feels like I've had caffeine, but I haven't.
I hope tomorrow night will be better. Good news, my legs are in a good period. I've lost 20 pounds so far. More to go.

Polar Bear
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Re: Sleepless In America

Postby Polar Bear » Mon Nov 23, 2015 10:21 pm

You are at - 20 pounds..... whoop whoop ... well done !
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Sleepless In America

Postby debbluebird » Tue Nov 24, 2015 3:02 am

I mostly feel really good. I am more active and seem to have the food a little more under control. It's nice to be off medication that causes weight gain. I had no idea at the time. I just thought I was gaining.
I'd like to loose 50 more.
I am so tired tonight, from not sleeping last night. Hope tonight is better. At least my legs are still good for now.

ViewsAskew
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Re: Sleepless In America

Postby ViewsAskew » Tue Nov 24, 2015 5:50 am

Great news!
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
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Re: Sleepless In America

Postby debbluebird » Sat Nov 28, 2015 11:24 am

Lately I've been getting itchy after 3 am. I thought maybe it was my Methadone, since higher doses will do that. Tonight I only took 10 mg instead of 15 mg. I'm still itchy. It's not the RLS sensation I sometimes get in my arms that sort of feels itchy. This is different. Definately itchy all over.
I'm also been having the alertness after 3 am without the RLS for a couple of hours. This doesn't bother me so much, since I am sleeping before and afterwards. The itchyness bothers me more.
I'm also making a significant effort to stop all sugar intake, including eating foods that are supposed to reduce inflammation. I've tried to do this before, but ths time I am succeeding. I really feel that inflammation contributes to my RLS and PLMS.
I will see how it all progresses during the next few days and nights.

debbluebird
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Joined: Mon May 21, 2012 3:27 pm

Re: Sleepless In America

Postby debbluebird » Tue Dec 01, 2015 8:10 pm

I'm pretty sure the itchyness is from the Methadone. It only happens after I take my third dose of the 5 mg tablets. It only lasts for the remainder of the night. By morning it's gone. If this gets worse I don't know what I will do. My RLS /PLMs returned after a few nights of the reduced dose of Methadone.
I also get the same thing from Morphine and Oxycodone, if I take more than one. It feels the same. I am very sensitive to medications. It is different from the RLS itchy feeling I get in my arms sometimes.

ViewsAskew
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Re: Sleepless In America

Postby ViewsAskew » Wed Dec 02, 2015 5:36 am

Oddly, the itchiness I get with it seems to come and go. Sometimes it's terrible, othertimes not.

I can take one of the newer antihistamines, though, and it really helps.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1716
Joined: Mon May 21, 2012 3:27 pm

Re: Sleepless In America

Postby debbluebird » Wed Dec 02, 2015 11:42 am

Which ones ?

ViewsAskew
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Re: Sleepless In America

Postby ViewsAskew » Thu Dec 03, 2015 6:44 am

I think it's Zyrtec...It was my husband's script for allergies and I was desperate when I first started taking methadone. The first few weeks, for me, were horrible. The itching was so bad I was sure the doc was going to tell me to stop. I was so glad he didn't. But, I couldn't tolerate it - I was scared to take the Zyrtec, but it was so bad I had to do something...and it worked! After a time, the itching stopped. Once in awhile it comes back - very odd - and then I use the Zyrtec again.

Recently, though, I am pretty sure I used Allegra and I was OK.

Some people are still bothered by the newer antihistamines - I appear not to be.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

debbluebird
Posts: 1716
Joined: Mon May 21, 2012 3:27 pm

Re: Sleepless In America

Postby debbluebird » Fri Dec 04, 2015 12:04 am

Thank you


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