Posted: Tue Jan 01, 2008 10:56 pm
James it is good to hear from you. As to whether RLS is a disease or disorder, like has been said, it doesn't matter. It only matters that some people who don't really "get" RLS will call it a disorder because it sounds less critical. As for the weights, lots of people have tried somany things but what works for one may not work for another. Usually I have heard only very negative things about restraints, especially if you are in the hospital. You need to carry a card warning that you have RLS and that restraints are not be used unless your safety is truly in question.
You should also carry a card with the medications you are on so that if you are incapacitated, you won't be given medications that could cause further problems. Especially once you have found medication that will work for you. And you will. It may take time, several doctors and lots of frustration but you will find help. Just become very educated as you may have to educate a few doctors along the way.
This is a scary thing that few people understand. But we do because we deal with it all the time. Listen to what we have to say, educate yourself and then decide what is best for you along with good advice from a doctor who cares. We are rooting for you. Just hang in there and let us help when we can. It's okay to vent, fuss, whine, cry, storm, rage, laugh whatever you need to do to get through this.
The moon watches over all of us and keeps us connected. Look at the moon and know we are thinking about you!
You should also carry a card with the medications you are on so that if you are incapacitated, you won't be given medications that could cause further problems. Especially once you have found medication that will work for you. And you will. It may take time, several doctors and lots of frustration but you will find help. Just become very educated as you may have to educate a few doctors along the way.
This is a scary thing that few people understand. But we do because we deal with it all the time. Listen to what we have to say, educate yourself and then decide what is best for you along with good advice from a doctor who cares. We are rooting for you. Just hang in there and let us help when we can. It's okay to vent, fuss, whine, cry, storm, rage, laugh whatever you need to do to get through this.
The moon watches over all of us and keeps us connected. Look at the moon and know we are thinking about you!