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relationships

Posted: Wed Aug 10, 2011 5:36 am
by helenjamieson1965
Yes, relationships are a challenge to say the least. Colin and I have been together for 3 years, I have had RLS for the last two. I had to admit defeat and we now sleep in separate bedrooms so that at least he can sleep even if I can't. He is very understanding, but it the RLS does affect his life too. The whole thing just breaks my heart.

Posted: Wed Aug 10, 2011 11:36 am
by Polar Bear
I to go bed as normal with my husband and if my symptoms are too bad during the night I get up. I may stay up for a while or I my go into the spare room but generally I try and go back to our own bed before hubby gets up. This way he can get some uninterrupted sleep.

Posted: Wed Aug 10, 2011 11:48 am
by Betty/WV
WED/rls affects EVERY part of our lives. Our relationships with our mate, our children, our social life, our jobs and on and on. We only had 1 daughter and when she entered school my WED/rls was very bad. I would be up all night, it was horrible. And around 5 am I would fall asleep. So when she had to get up to get ready for school, I would be a zombie, after the dreadful night I had just experienced. So when she really needed me to get her day at school headed in the right direction---I wasn't there for her like I should have been. That has alway broke my heart as I look back.

I am just very very tired and wore down after 40 years of this night mare.

BETTY/WV

Relationships

Posted: Wed Aug 10, 2011 11:55 am
by sleepdancer
Just thinking, you say you've been married 3 years and have had RLS for 2 so is there something that has changed to cause this fairly recent onset? Hopefully you have had iron studies as well as made sure you are nutritionally sound. Also, be sure you're not on any meds known to cause or exacerbate RLS.

relationships

Posted: Wed Aug 10, 2011 8:00 pm
by helenjamieson1965
Sleepdancer, my Ferratin levels are very low, they were initially measured at 13, then went even further down to 11. The reason for this was a gynaecological problem not being addressed. I have started tackling this problem too, and my Ferratin levels are now up to a great big(??) 27!! Long way to go, but at least it's going up and not down now. I dread the nights as the Ropinirole only works until the wee small hours, and I don't want to increase the dosage any more because of the Augmentation I've beeen having. I feel my life is totally not in my control. I miss the person I was 2 years ago, I liked her..

Re: relationships

Posted: Thu Aug 11, 2011 4:44 am
by ViewsAskew
helenjamieson1965 wrote:I feel my life is totally not in my control. I miss the person I was 2 years ago, I liked her..


Oh, how many times have I felt that way????? More than I care to remember. And how I wish I never would have to hear that from anyone else ever again. It's just so heartbreaking.

Hang in there, Helen. It can get better. That's the good news about me saying that I've felt that way before - I don't now. I probably will again in the future, but I'll gladly take anytime feeling better than I can get.

Posted: Fri Sep 02, 2011 8:19 am
by badnights
The ferritin going up is a positive sign, too. You shouldn't ever have been given ropinirole with such low ferritin, since (admittedly recent) research sugggests that people with low ferritin are more likely to augment on that type of drug.