relationships

Share how living with this disease can and does impact your relationships. How do you cope? What questions to you have?
helenjamieson1965
Posts: 7
Joined: Tue Aug 02, 2011 5:05 pm

relationships

Postby helenjamieson1965 » Wed Aug 10, 2011 5:36 am

Yes, relationships are a challenge to say the least. Colin and I have been together for 3 years, I have had RLS for the last two. I had to admit defeat and we now sleep in separate bedrooms so that at least he can sleep even if I can't. He is very understanding, but it the RLS does affect his life too. The whole thing just breaks my heart.

Polar Bear
Moderator
Posts: 6702
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Postby Polar Bear » Wed Aug 10, 2011 11:36 am

I to go bed as normal with my husband and if my symptoms are too bad during the night I get up. I may stay up for a while or I my go into the spare room but generally I try and go back to our own bed before hubby gets up. This way he can get some uninterrupted sleep.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Betty/WV
Posts: 587
Joined: Mon Nov 29, 2004 11:11 pm
Location: West Virginia, Wild and Wonderful

Postby Betty/WV » Wed Aug 10, 2011 11:48 am

WED/rls affects EVERY part of our lives. Our relationships with our mate, our children, our social life, our jobs and on and on. We only had 1 daughter and when she entered school my WED/rls was very bad. I would be up all night, it was horrible. And around 5 am I would fall asleep. So when she had to get up to get ready for school, I would be a zombie, after the dreadful night I had just experienced. So when she really needed me to get her day at school headed in the right direction---I wasn't there for her like I should have been. That has alway broke my heart as I look back.

I am just very very tired and wore down after 40 years of this night mare.

BETTY/WV
Thanks to rls.org, I have learned so much about my condition. I have received encouragement from my friends here. This is a site I can come to when I am up most of the night, and I vent, and know those who read my messages understand

sleepdancer
Posts: 104
Joined: Wed Dec 08, 2010 8:09 am

Relationships

Postby sleepdancer » Wed Aug 10, 2011 11:55 am

Just thinking, you say you've been married 3 years and have had RLS for 2 so is there something that has changed to cause this fairly recent onset? Hopefully you have had iron studies as well as made sure you are nutritionally sound. Also, be sure you're not on any meds known to cause or exacerbate RLS.

helenjamieson1965
Posts: 7
Joined: Tue Aug 02, 2011 5:05 pm

relationships

Postby helenjamieson1965 » Wed Aug 10, 2011 8:00 pm

Sleepdancer, my Ferratin levels are very low, they were initially measured at 13, then went even further down to 11. The reason for this was a gynaecological problem not being addressed. I have started tackling this problem too, and my Ferratin levels are now up to a great big(??) 27!! Long way to go, but at least it's going up and not down now. I dread the nights as the Ropinirole only works until the wee small hours, and I don't want to increase the dosage any more because of the Augmentation I've beeen having. I feel my life is totally not in my control. I miss the person I was 2 years ago, I liked her..

ViewsAskew
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Posts: 14645
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: relationships

Postby ViewsAskew » Thu Aug 11, 2011 4:44 am

helenjamieson1965 wrote:I feel my life is totally not in my control. I miss the person I was 2 years ago, I liked her..


Oh, how many times have I felt that way????? More than I care to remember. And how I wish I never would have to hear that from anyone else ever again. It's just so heartbreaking.

Hang in there, Helen. It can get better. That's the good news about me saying that I've felt that way before - I don't now. I probably will again in the future, but I'll gladly take anytime feeling better than I can get.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4370
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Postby badnights » Fri Sep 02, 2011 8:19 am

The ferritin going up is a positive sign, too. You shouldn't ever have been given ropinirole with such low ferritin, since (admittedly recent) research sugggests that people with low ferritin are more likely to augment on that type of drug.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice


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