DECEMBER 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

DECEMBER 2019 - New Members

Postby Rustsmith » Tue Dec 03, 2019 1:22 am

Monday, December 2

Welcome to

mkarp, who can't sleep due to aches during rest and leg drags while walking.

Please post a note telling us if you have officially been diagnosed with RLS and what you are doing to manage the symptoms
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to T-Rich

Postby Rustsmith » Wed Dec 04, 2019 7:11 pm

Wednesday, December 4

Welcome to

T-Rich, who has had severe RLS for approximately 5 years and has tried almost everything with varying results.

Most of us have found that it takes some experimentation to find our individual treatment plan. If you will tell us what you have tried, what works and what doesn't, we can probably offer some suggestions of things to try that may work better for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Starkloph

Postby Rustsmith » Thu Dec 05, 2019 10:38 pm

Thursday, December 5

Welcome to

Starkloph, who has had RLS for several years and it is getting worse. Stark dreads each night due to not knowing if it will be easy to sleep or not. Most nights it is not. Stark cannot sit for long before the RLS starts up and so is looking for possible ways to minimize its impact.

Please post a note telling us what (if any) treatment that your doctor has provided and whether you know your ferritin (an iron blood test) number. That info will give us an idea of where we can start with our suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to SCHNIBBLER1

Postby Rustsmith » Thu Dec 05, 2019 11:05 pm

Thursday, December 5

Welcome to

SCHNIBBLER1, whose RLS keeps her awake at night. Sometimes when she is sitting for prolonged times it'll also kick in.
She is currently doing Physical Therapy for it and it's helping.

Please let us know what sort of therapy that you are doing and whether you are getting any other sort of treatment. We may be able to offer some other suggestions that will help you get better sleep and to be able to sit for longer periods.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jqrestless

Postby Rustsmith » Fri Dec 06, 2019 4:47 pm

Friday, December 6

Welcome to

jqrestless, who is experiencing augmentation and can't find relief.

Please post a note telling us which dopamine agonist is causing your augmentation, your current dose and what instructions you have been given. That way we can offer some suggestions on how to survive withdrawal from DAs.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to js1589

Postby Rustsmith » Sat Dec 07, 2019 1:08 am

Friday, December 6

Welcome to

js1589, who has had RLS and PLMS for about two years, controlled at the present time through medication overseen by a neurologist. JS is concerned about augmentation and how to deal with that. RLS is a maddening condition, and it's important to understand more about it and how to control its symptoms.

Please take a look through our forum on augmentation. And please post a note telling us what you are taking, including the dose, and your ferritin number if you know it. That way we can know what sort of suggestions to make to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Carolynbtt

Postby Rustsmith » Mon Dec 09, 2019 4:06 pm

Monday, December 9

Welcome to

Carolynbtt, who has RLS and wants to keep up with treatment developments.

You can get an idea of the latest research by looking at our General Topics Forum's Published Research discussion.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to irazig

Postby Rustsmith » Mon Dec 09, 2019 10:55 pm

Monday, December 9

Welcome to

irazig, who has suffered with RLS & is seeking ways to control it.

Please post a note telling us a bit about your symptoms and what you are currently doing to manage them so that we can know where to start with our suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to kshowen

Postby Rustsmith » Wed Dec 11, 2019 4:29 am

Tuesday, December 10

Welcome to

kshowen, who has had RLS since childhood. It affects her quality of life (lack of sleep, social barriers, travel barriers, depression, etc). She has refractory RLS; many medications tried; they work for a while, then a new med needs to be tried, so on and so on.

Please post a note giving us an idea of what meds you have tried. Many of us have refractory RLS and have found that we need a cocktail of meds that are constantly being adjusted so that we can maintain control of our symptoms.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to henrydavidthoreau

Postby Rustsmith » Wed Dec 11, 2019 4:49 pm

Wednesday, December 11

Welcome to

henrydavidthoreau, who has had RLS for about 20 years and always thought it was associated with sertraline. She takes DA meds and id curious to know more about RLS. Experience strong symptoms immediately if she doesn't take her DA meds every night.

Please post a note telling us which DA you take and what the dose is so that we will know more about what to tell you about your RLS. And please feel free to ask any questions you have or simply jump into any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to perchi

Postby Rustsmith » Thu Dec 12, 2019 2:59 pm

Thursday, December 12

Welcome to

perchi, who wakes in the night and wondered what everyone else does.

We all have something that each of us uses to kill time until we can get back to sleep. Some walk, others read or play games, etc. If you post a note I am sure that you will get a multitude of different answers.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jeff63

Postby Rustsmith » Fri Dec 13, 2019 1:24 am

Thursday, December 12

Welcome to

Jeff63, whose RLS is killing him. He needs relief.

Please post a note telling us what you are currently doing to try to control your RLS so that we know where to start with our suggestions for relief.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to psagot

Postby Rustsmith » Sat Dec 14, 2019 3:03 pm

Saturday, December 14

Welcome to

psagot, who suffered from RLS two years ago but with meditation it is has practically disappeared for 18 months now.

Congratulations on finding a method to control your RLS. If you have any questions, please feel free to post a note asking them.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JanM

Postby Rustsmith » Sun Dec 15, 2019 12:25 pm

Sunday, December 15

Welcome to

JanM, who was diagnosed in 2017 with RLS. Prior to being on her current medication (Sifrol), she was exhausted and depressed due to lack of sleep. Her current medication is working so far.

Glad to hear that you are doing well and that you realize that they may be a time limit on how long Sifrol works for you. Please get us involved when that time comes so that we can help you understand the options you have for the next phase of treatment.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4249
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LaurieB

Postby Rustsmith » Sun Dec 15, 2019 12:30 pm

Sunday, December 15

Welcome to

LaurieB, who has RLS and it is getting worse. She feels she could benefit from other RLS sufferers as she does not know how to make it better or if she can. It disrupts her life and well being.

You can definitely make it better. Please post a note telling us what you are doing to manage your RLS so that we know where to start with our suggestions for improving your well being.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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