FEBRUARY 2020 New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Sleepy65

Post by Rustsmith »

Saturday, February 8

Welcome to

Sleepy65, who has been on meds for 18 yrs and is trying to find the right protocol. It is the most difficult challenge in his life since childhood.

Please post a note telling us about your current meds so that we can offer some suggestions on possible directions to pursue for the right protocol.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Leshutchens

Post by Rustsmith »

Sunday, February 9

Welcome to

Leshutchens, who wants to learn more about RLS & or assist others.

Please post a note telling us how you manage your RLS and asking any questions that you have. And feel free to jump into any of our ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to kalenac

Post by Rustsmith »

Sunday, February 9

Welcome to

kalenac, whose RLS prevents the ability to relax after work or to have a good night's sleep. kalenac has RLS everyday, it affects the ability to do work when it strikes during work hours. It is miserable and kalenac would do almost anything to make it stop.

Please post a note telling us what you are currently doing to manage your symptoms so that we can have an idea of what to suggest to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Murphwill

Post by Rustsmith »

Sunday, February 9

Welcome to

Murphwill, who has had RLS for most of his life, but since turning 60 it has gotten WORSE ×10. The meds his is on do not work. He can fall asleep but cannot STAY ASLEEP, 2 hours is his longest, so he is very frustrated....

Please post a note telling us about your meds (including dose) so that we can offer some suggestions for you to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to JimHCNMT

Post by Rustsmith »

Sunday, February 9

Welcome to

JimHCNMT, who when first diagnosed, experienced several months of 2-3 hrs sleep/night, rendering him almost non-functional. He was put on ropinirole, good results that lasted for 10-12 yrs. Then his situation got worse and was put on higher dose, which helped for another year. Then was switched to pramipexole, which worked well for another yr. Then developed what turned out to be augmentation. Indescribably excruciating sensations in his legs. Getting up and walking no longer helped. He would lay there massaging his legs with a rolling pin, even punching his leg muscles as hard as he could. Which was painful and left his legs aching, but it momentarily took the sensations away. After this had gone on for 2-3 hours each night, he felt like he was going insane from torture and started planning suicide. It took a month to wean off the pramipexole, another 3-4 months to get up to a dose of gabapentin that was mostly effective (1800 MG/day). This last year has been life altering and hellish. "Restless Legs" is a horrible misnomer.

Please feel free to post a note with any questions that you have. Many of us have been through experiences very similar to your, so we totally understand and may be able to offer some suggestions for improving where you are today.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Lynn

Post by Rustsmith »

Monday, February 10

Welcome to

Lynn, whose husband has severe pain from restless legs every evening and no medication seems to help.

Please post a note telling us what meds he has tried that did not work. If his pain is due to RLS, there are several meds that will help. They each have different side effects, but there is help available and it just requires some experimentation to find the right solution.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to JPolley

Post by Rustsmith »

Wednesday, February 12

Welcome to

JPolley, who is struggling with RLS to sleep, new symptoms keep rising. So, she finds it very frustrating and needs support.

Please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have so that we can provide the support that you need.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to nguyen2020

Post by Rustsmith »

Thursday, February 13

Welcome to

nguyen2020, whose RLS causes legs to spaz out most nights and makes it harder to sleep.

Please post a note telling us what you do to manage your RLS and asking any questions that you have so that we can try to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7842
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to anniemcpt

Post by Polar Bear »

15 February 2020

Welcome today to

anniemcpt who I has had RSL and PLM all her life. Mom and some sibs have it. Tried everything and then Lunesta and opioids worked until new sleep Neurologist changed her meds with terrible results. Now without any meds, Now- looking for solutions.

annie not all doctors are good with treating RLS. We are so sorry your symptoms are so bad at present. Please start a thread in the Just Joined Forum giving your details, your meds, what has and has not worked. We will do our best to help you gain back control.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to RbdHarley

Post by Rustsmith »

Saturday, February 15

Welcome to

RbdHarley, whose RLS causes issues with sleep, flying, reduced social life and work.

Please post a note telling us what you do to manage your RLS so that we can offer some suggestions for reducing problems with sleep, flying, socializing and work.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to abart

Post by Rustsmith »

Saturday, February 15

Welcome to

abart, who has had RLS for over 15 years. He has been on meds to treat it for 5 and it's getting worse. He would love to read about others' experiences as it is ruining his life. He is always tired and can't sleep.

Please post a note telling us about your meds and asking any questions. We would love to share our experiences as well as suggest ways to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to scarp6566

Post by Rustsmith »

Sunday, February 16

Welcome to

scarp6566, who is almost 55 and has had RLS for 15+ years. Scarp has just augmented out on the 3rd medication,doesn't don't sleep, but cries, and has walked the streets before and when its real bad. Work is rough!!!

We have all been there. I have walked outside all night long when the weather permits and in circles in the house when it doesn't.

Please post a note telling us about the three meds so that we can offer you some suggestions to discuss with your doctor to get your RLS under better control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to RLKamm

Post by Rustsmith »

Monday, February 17

Welcome to

RLKamm, who has restless leg syndrome most nights. It keeps RLKamm awake despite taking many meds for it.

Please post a note telling us about your meds (including the dose). There is a good chance that we can offer some suggestions to discuss with your doctor to change meds and gain better control of your RLS and to get better sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to hammerbeam

Post by Rustsmith »

Monday, February 17

Welcome to

hammerbeam, who just found a "cure" for their RLS and wanted to share it with the community.

We look forward to finding out what has worked to control your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4653
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Barfourm

Post by Rustsmith »

Thursday, February 20

Welcome to

Barfourm, who is having trouble with RLS and it is turning into restless body syndrome. Barfourm wants other options and possible help with medication suggestions due to being so tired and sleep deprived. Use to have it once in awhile now it’s going on 8 days straight.

Please post a note telling us about your current medications (including dose) so that we can know what to suggest to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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