FEBRUARY 2021 - New Members

Whether new to RLS or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
Moderator
Posts: 8008
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to PhyllisV

Post by Polar Bear »

Tuesday 16th February 2021

Welcome today to

PhyllisV - who has had severe RLS for many year and is Searching for any treatments that may help.

We are happy that you have found us. If you start with the Just Joined forum there is a lot of information. When you feel ready you can join an existing relevant thread or start your own thread. Tell us about any treatments you have tried. We are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
Moderator
Posts: 5869
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to suffering on Feb 17

Post by badnights »

suffering has been plagued with this horrendous condition for many years and needs to find remedies - and sleep.

suffering, there is a community of people here who knows what your suffering is like. Browse the forums and post replies or check out the Just Joined forum for useful advice in the Sticky Topic called A Good Place to Start. You can also start your own Topic in this or any forum, introduce yourself and tell us more about your situation. Are you taking medication? It's not working ..... are you taking dopaminergic medication?
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to LivingwithRLS

Post by Rustsmith »

Thursday, February 18

Welcome to

LivingwithRLS, who has had RLS her whole adult life (she is now 52) because she inherited from her father. It's become much worse in the last few years, despite the fact that she runs half marathons, maintains great sleep hygiene, takes gabapentin, uses a weighted blanket, etc. At this point she feels that what she needs more than anything is a community of empathic people who get it. On the one hand this is just an annoyance, she can push through, her life is good and she is healthy. On the other hand, she loses whole days of her life to exhaustion, this impacts her mood, creativity, even the way that colors look (duller). Her husband is so empathic but she is sick of talking about it. Since she knows it can't be cured, she wants at least to develop better strategies to live with it. She is hoping she can find ideas on this forum.

You should be able to find lots of ideas on the discussion board. If you don't find what you think you should find, post a note and ask.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Donna D

Post by Rustsmith »

Saturday, February 20

Welcome to

Donna D, who gets almost no sleep, usually no more than 2-4 hours per night and even that is broken up. It is effecting her overall health.

Sleep issues are what drove most of us to seek medical help for our RLS. If there is any information that we can provide that will help you out, just post a note and ask.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Walk247

Post by Rustsmith »

Saturday, February 20

Welcome to

Walk247, who has had RLS for 35+ years with sleep 4-6 hrs per night. She recently had surgery which resulted in 16 hrs of intense RLS in post-op.

We hope that you are doing better now. Please post a note if there is anything that we can to do help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to Buzz

Post by Rustsmith »

Tuesday, February 23

Welcome to

Buzz, who has had RLS for many years but seems to be getting worse maybe with age. Buzz is now on ropinirole, but has increased the mg.

If you have been on ropinerole for a while and are finding that you need to increase the dose, you may be experiencing augmentation rather than disease progression with age. Take a look through our forum on Augmentation and feel free to post a note with a few more details if you would like to hear our suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8008
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Tialoca1

Post by Polar Bear »

Wednesday 24th February 2021

Today we welcome:

Tialoca1 - Tialoca's WED/RLS has gotten so bad that Tialoca1 only gets two hours sleep per night and can’t function in the day time. He/She feels desperate and unable to go on like this.

We all understand exactly how you feel and would love to try and help you. Lack of sleep is one of the major factors of WED/RLS that drives a sufferer to seek information and support and that is exactly what we try to do. Please take a look at the Just Joined Forum for useful information. When you feel ready, if you make a post telling us how you have coped so far and what medications you have tried (if any). We will do our best to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to mbddenhagen51

Post by Rustsmith »

Friday, February 26

Welcome to

mbuddenhagen51, who has had RLS for many years; it has gotten worse and so is looking for information and help.

We would be happy to try to help you out. If you would like answers to specific questions, just post a note and we will try to provide the answers.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to SaraA

Post by Rustsmith »

Saturday, February 27

Welcome to

SaraA, who has had RLS for decades but in the last fifteen years it has gotten bad enough to be absolutely disruptive to her health. The last year has been so hard. She despairs and wishes it would kill Her. I need help with morale.

We will be very happy to provide any help that we can. If you will post a note telling us a bit about what you are doing to manage your RLS and with any questions that you have, we will do anything we can.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 5138
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Welcome to sallyrae

Post by Rustsmith »

Saturday, February 27

Welcome to

sallyrae, who gets no sleep for days and can't function.

We all know the feeling of trying to function with sleep deprivation. If you would like to hear some suggestions that could help you get some sleep, just post a note and give us an idea of what you are currently doing to manage your symptoms so that we will know where to start.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

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