MAY 2024 - New Members

[Rustsmith]

Saturday, May 25

Welcome to

VVtory, who has suffered for decades off and on, sometimes not just legs but arms or torso. Gabapentin helps right away but would rather find more holistic remedies.

There are only a few non-pharmaceutical treatments that have shown good effectiveness. You can read more in our forum on Non-Prescription Meds and Physical Treatments. In general, iron supplements help for those with lower ferritin levels, soaking in very hot water and the new prescription TOMAC version of TENS treatment are the ones that are most frequently reported to help. If you have any questions, feel free to post a message.

[Polar Bear]

Monday 27 May 2024

Welcome today to

forbayer131021 who is a retired healthcare provide asissting a friend through augmentation and has become his healthcare advocate. They have worked through a rather debilitating period and now things are stabilized with the help of a competent and empathetic primary care physician who was willing to listen and update himself on current treatment guidelines.

Your friend is very fortunate that you are willing to be his healthcare advocate. It is great that his primary care physician was willing to learn. Willingness goes a long way. We hope you find the information on rls to be useful and supportive. Please do feel free to make a post at any time. We are always interested to hear the experiences of others, either as an rls sufferer or as a supporter.

[Rustsmith]

Monday, May 27

Welcome to

knorman, who has severe refractory RLS. knorman's symptoms started over 40 years ago and have escalated. It has profoundly impacted day to day living.

Many of us here on the discussion board have severe, refractory RLS. If you have any questions about treatments or need suggestions on how to live with severe RLS, just post a message so that we can try to help you out.

[Polar Bear]

Thursday 30 May 2024

Welcome today to

donalamo1 who is tapering from Ropinirole with little hope in sight regarding chronic symptoms.

You are doing the right thing by tapering from your Ropinerole. This is not easy and well done for making the decision to do so. Are you having the support of your GP as you do this and are you taking any other medication to help as you reduce your Ropinerole. Were you augmented.
Many members have made this journey, including myself. Please feel free to make a post on a relevant thread, or even better, start your own thread. Ask any questions you may have, giving a little background information about your RLS management and symptoms helps.

[Rustsmith]

Thursday, May 30

Welcome to

Steve Wake, who is 66. RLS and involuntary leg jerks have relentlessly hounded him for the past 27 years. It's not just the physical aspect, but the toll on his mood, personality, outlook on life, and positive mental attitude have been overwhelming. Then there is also the amount of time that he has spent dealing with it rather than doing other things. RLS is one of the most evil curses that there is.

Do you need suggestions on how to improve the management of your RLS? If so or if you have any other questions, feel free to post a message so that we can try to help you out.

[Rustsmith]

Thursday, May 30

Welcome to

missyh, who is a member of the Foundation staff.

Welcome and we look forward to seeing you join in some of our discussions.

[Rustsmith]

Friday, May 31

Welcome to

Ail, who can’t sleep with RLS's severe symptoms

Sleep is a primary problem for most of us with severe RLS. If your RLS is not under control, we may be able to offer some suggestions to discuss with your doctor on how to improve control of your RLS. All that you need to do is post a message and let us know what you are currently doing to treat your RLS so that we know what not to suggest and also asking any questions that you have.