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autumnj · Post by **autumnj** » Tue Nov 11, 2008 10:02 pm

I need help. I have a low ferritan level of 19 and have RLS. I kick my legs in my sleep. I was unaware I was doing it until I had a sleep study done to find out why I wasn't sleeping very well. I have tried Requip, Mirapex and Neurontin in the past few months since being diagnosed and none of them have worked for me. Now I have a constant throbbing headache, not sure why.

Nicky · Post by **Nicky** » Tue Nov 11, 2008 10:08 pm

Hi autumnj I'm sure you'll get lots of help here. If your ferritin levels are considered low I'm suprised you've not been given some sort of iron treatment in a clinical setting rather than the meds you describe. I'm sure one of the seasoned people on this board will be able to help you.
Best wishes Nicky

autumnj · Post by **autumnj** » Tue Nov 11, 2008 10:09 pm

Oh, I am on an iron supplement, 3x's a day. My ferritin level started at 6 4 months ago. So it is slowly increasing.

Post by **ViewsAskew** » Wed Nov 12, 2008 5:19 am

Yeah, it really can take a long time to get it up. I think I got from 8 to 34 in 8 months...

autumnj, would you mind sharing why they didn't work? Was it from side effects? How long did you try them? Anything like that might help people to help you better.

autumnj · Post by **autumnj** » Wed Nov 12, 2008 11:15 am

The Requip did nothing for me, no weird side effects, just did absolutley nothing. With the Mirapex, I wasn't able to sleep at night on it. The Neurontin made me really groggy all day. I do not feel refreshed in the morning and now I have horrible headaches on a daily basis.

Post by **ViewsAskew** » Wed Nov 12, 2008 8:12 pm

Sounds like the Requip dose may not have been high enough dose since the Mirapex worked...but, I certainly am not a doctor. Just thinking that since they both work in similar ways, except for side effects, usually if one helps, the other will, too.

When taking Neurontin, I'm told, it can take a few weeks before that daytime grogginess goes away. Some people, however, still feel it. But, a lot do not. It's really hard sometimes to sit out some of these side effects and wait to see if it's effective.