Welcome New Members - February 2013

[Polar Bear]

Welcome pike3 and pryor.shan.

Pike3 - you feel you have just the worst rls/wed and I feel for you. Please read the information available and ask questions, that's what we are here for.

pryor.shan - You have had symtoms for so long... I suggest you put the information you gave in your registration in a thread, we all want to help.

[ViewsAskew]

Jude153 joined us today. Welcome. Looking forward to meeting you.

[Polar Bear]

Welcome barbfl - You have been suffering for over 50 years... and are looking for fresh information and support. Please introduce yourself, start a thread or join an existing thread and tell us a little about your journey through RLS/WED. We are all here to support each other.

[ViewsAskew]

Hi janet.peters. The Requip isn't working on its own anymore...hmmmm. My guess is that you might be augmenting. Please do a search on the term augment or augmentation. You'll find many posts about it. Consider starting a new post in the Pharma section. There are links in all of the moderators signatures that all have different and helpful information. Hope we can help.

[Polar Bear]

Eileen07 has joined us today - You are having severe symptoms and trying to deal with the awful insomnia that results. So many of us here suffer the same, please introduce yourself or join a thread, we are here to help and support. There is a lot of information throughout the threads and stickies.

[Polar Bear]

Today our new members are oreosmeow and Irishwoman.
oreosmeow, you are seeking information on stopping mirapex, there will be lots to be found on this subject.
Irishwoman, Mirapex hasn't worked for you. There are other medications available.

We look forward to reading your posts and trying to help with any questions either of you may have.

[oreosmeow]

Thank you for the welcome! My screen name is oreosmeow and I've had RLS/WED (can't get used to that!) since I was a kid. My dad had it, his mom had it, and I was told it was "normal." Finally, sometime in my early 30s, I read an article about it in Prevention, so I finally knew I wasn't "normal."

Typical primary RLS, which has been very well managed with Mirapex and Neurontin for around 13 years. I would very occasionally have some breakthrough during the day, but it was rare, and all I'd need to do was either get up and walk to another office, or engage my brain in something different. Due to major life changes (moving across country to caregive my mother), my RLS breakthrough has become daily and more severe.

My new Neuro/RLS specialist, who I believe is good, has started me on the Neupro Patch, dropping Mirapex, and continuing Neurontin. Today's my first day on the patch (1 mg), and I'm nervous about going without the Mirapex! But so far, so good, with my normal Neurontin dosing...we'll see what happens when bedtime comes around.

[rthom]

Sorry to hear your rls has gotten worse- -thanks for sharing your experience with the meds . Let us know how its working out.

[EeFall]

My new Neuro/RLS specialist, who I believe is good, has started me on the Neupro Patch, dropping Mirapex, and continuing Neurontin. Today's my first day on the patch (1 mg), and I'm nervous about going without the Mirapex! But so far, so good, with my normal Neurontin dosing...we'll see what happens when bedtime comes around.

Sounds like your doctor knows what he is doing. I hope the patch works out for you. Welcome.

[badnights]

oreosmeow: Probably good to get off the Mirapex after 13 years. Most people augment eventually.

Welcome (or I should say, welcome back!) to Ajsison

[Polar Bear]

A new member today - Eveningfog - Nice to have you with us. I hope you find useful information and we look forward to reading your posts. Feel free to start a new thread, or join in with an existing thread.

[Polar Bear]

Welcome tommy41 and karensue66.
tommy41 - you now have symptoms 24/7, many of us on our discussion board are in the same position including myself.
karensue66 - you have had symptoms for 30+ years, your medications are no longer working and you are seeking information to discuss with your doctor. Again many of us have come to our discussion board in the same position.

Please look at the stickies, ask questions, that's what we are here for. We all support each other.

[ViewsAskew]

Today henry ayala, wildflower, zuzie11 and corey cupps have joined us. All have WED (RLS) and are looking for more information on how to deal with it and finding others to connect with. wildflower is stuggling with sleepiness and work and zuzie is particularly concerned about finding a doctor who understands and can help.

Please do any of the following:
1. start a new thread (one is best) telling us about your situation. We'll do all we can to help.
2. read old posts, respond if you like, too.
3. find and read the "sticky" posts (the ones at the very top of each forum). These are loaded with great info.
4. find the links in the moderators signatures - each of our signatures has a link to something really helpful.

We're very sorry you had to find us but very glad to be here for you.

[Polar Bear]

Welcome gentlefinch - you are looking for solutions to deal with RLS/WED. You will find information throughout the threads on how we all deal (often differently) with our symptoms. Also the stickies are very helpful. Please introduce yourself and tell us a little of your journey with WED. Ask questions and we will do all we can to help.

[Polar Bear]

Today we have several new members:
stever - is seeking information and would like to share how to cope.
hwknights - is also seeking information.
bsquare - would like to share ideas.
524Now - has symptoms that have become worse and is seeking help and information.
barbisurf - suffers from several other debilitating conditions as well as RLS/WED.
scash325 - is looking for information.
pkelleytrail - would like to learn more on how to cope.
RileyJean6 - you've had it since you were 2; it went away, but it's back!
pwb - struggles with the disease and hopes to get help and offer it, too.

Welcome to all of you, please read the threads, start a thread, join a thread. Also read the stickies and ask anything that you would like and we will see how we can help.
We look forward to reading your posts.