There is something that has worked with some doctors who don't know the disease, depending on their personalities, and that's to take a medical publication about WED/RLS in to your appointment. Before you go, you read it and highlight the parts that are relevant to you. Keep the highlights to 2 or 3 key things, because the doctor will skim, not really read. Tell your doctor you found this paper(s) about RLS (which has been re-named Willis-Ekbom disease), and you think some of it applies to you. Then say something like "could you tell me what you think?".
I am not sure what your focus should be, without knowing more about your situation (eg. your answers to Ann's questions) but for example, if you are augmenting, you could take in the augmentation brochure printed by the WED Foundation. This is a copy of it with highlights on some pertinent parts:
For a clean copy that you can print and highlight different parts of, click the first link directly under my signature below.
The brochure on iron might be relevant to you, as well:
Understanding WED/RLS and IronMirapex/pramipexole and Requip/ropinirole are both dopamine agonists (DAs) also used in Parkinson's. They are notorious for causing augmentation of WED/RLS after a time, and studies show that people with low ferritin levels are more susceptible to augmentation on DAs.
Augmentation, if mild, can be treated by taking an additional, earlier dose, but raising the dose more than once to accommodate augmentation is now regarded by specialists as counter-productive, since the augmentation escalates and eventually other problems emerge as side effect of high doses of DAs. This might be what you have heard of.... pramipexole especially but also ropinirole can cause impulse control disorder, which manifests as a loss of control over impulses. For some people, this is eating, for others, shopping, sex, gambling; for some people, it ruins their lives; for everyone who experiences it, it is destructive to some degree.
About 75% of people on DAs for RLS/WED will eventually augment, according to a fairly recent study that looked at long-term DA use. It used to be thought that only 20-30% would augment. Despite all that, some people use daily DAs successfully.
Hope some of this is helpful.