March 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to rvjimzhr1

Postby Rustsmith » Thu Mar 16, 2017 7:50 pm

Thursday, March 16

Welcome to

rvjimzhr1, who has RLS and lots of information and advice to share.

Please take a look around to get an idea of what is being discussed and then feel free to jump in or to start a new discussion topic.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6622
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to: suttmes66xx

Postby Polar Bear » Thu Mar 16, 2017 8:50 pm

Thursday 15 March

Welcome to:

suttmes66xx who is woken every night by RLS. It disrupts sleep. settmes55xx is desperate to find some treaetment, hopefully homeopathic or over the counter.

You might have already had a look at the Just Joined Forum, it's a good place to start. Please tell us how you are coping at present,
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to BazB44

Postby Rustsmith » Fri Mar 17, 2017 7:11 pm

Friday, March 17

Welcome to

BazB44, whose RLS so far does not affect life too much. But it could get worse.

Sounds like you are fortunate not to have a severe case, so far. Hope it stays that way. Take a look around and please feel free to post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4296
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to EDI

Postby badnights » Sun Mar 19, 2017 5:21 am

Welcome today to EDI, who has had RLS/WED for years and has suffered greatly from it.

EDI, we're glad to have you with us, and hope you will start a Topic and tell us a bit about your experiences.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to cervelo01

Postby Rustsmith » Mon Mar 20, 2017 10:56 pm

Monday, March 20

Welcome to

cervelo01, whose RLS has caused a lack of sleep and decreased daily joy of life.

Take a look around and then please post a note telling us a bit about yourself and what you to do manage your RLS
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jimena

Postby Rustsmith » Mon Mar 20, 2017 11:00 pm

Monday, March 20

Welcome to

Jimena, who is hoping to find cure for her husband. When she sees him suffering with RLS, she prays to God to have mercy and help her to find something to make him happy again.

Take a look around to get an idea of what others do to manage their RLS. And then please post a note telling us what your husband is currently doing to manage his RLS so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to timetraveler900

Postby Rustsmith » Tue Mar 21, 2017 12:05 am

Monday, March 20

Welcome to

timetraveler900, who has had RLS for almost 20 years, is now 61 and nearly going crazy with it. traveler is taking more and more medication (carbidopa-levidopa). traveler doesn't know anyone else with RLS and would love to hear what others do.

Please take a look around, especially the section on Augmentation. Carbidopa-Levidopa is almost guaranteed to cause problems, especially if you have been taking it regularly for an extended period of time. And please post a note telling us a bit about yourself and giving us a few more specifics about your RLS treatment so that we can offer some specific suggestions for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to TomNOVA

Postby Rustsmith » Tue Mar 21, 2017 12:07 pm

Tuesday, March 21

Welcome to

TomNOVA, has been dealing with RLS for about 11 years and it's beginning to impact much of his life. RLS impacts his sleep, relationships, work, and overall enjoyment of life. Nothing really works 100% and each treatment seems to bring about new challenges.

Please take a look around and post a note telling us about your current RLS treatment and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6622
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to aebarth

Postby Polar Bear » Thu Mar 23, 2017 9:55 am

Thursday 23rd March 2017

Welcome today to:

aebarth - whose mother has RLS. aebarth would like to learn more about the disease.

The Just Joined Forum is probably the best place for you to start. You may already have done a lot of reading on it. When ready please tell us a little of your mother's difficulties and how she has been coping with her symptoms.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Grammie12

Postby Rustsmith » Sat Mar 25, 2017 3:58 pm

Saturday, March 25

Welcome to

Grammie12, who awakens pacing the floors til the wee hours of the morning then has to sleep til mid day.

This is a common complaint. Take a look around to get an idea of what others do to counter this problem. And then please post a note telling us about what you do to cope with your RLS so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jono

Postby Rustsmith » Sun Mar 26, 2017 9:52 pm

Sunday, March 26

Welcome to

Jono, who has joined looking for help and support.

Take a look around to what you can find that might help. And please create a new post asking any questions you have so that we can provide you with some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6622
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome dulcelvspablo

Postby Polar Bear » Wed Mar 29, 2017 11:32 am

29th March 2017

Today we welcome:

dulvelvspablo - who recently started suffering about 18 months ago from diagnosed RLS and is grateful it isn't every single night, .... in fact would rather not sleep at all that night or even have a migraine flare accompanied with vomiting than the experience of RLS.

I'm glad you found us and hope that we can help you. Just Joined has a great deal of useful information, please feel free to tell us how you have coped and what has and has not worked.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tabmab

Postby Rustsmith » Wed Mar 29, 2017 9:33 pm

Wednesday, March 29

Welcome to

tabmab, who has had RLS for several years and finds it helpful to read other people's stories and get insights on treatments etc.

A great deal of our role is sharing. Hope you find some useful information and will be willing to share your story.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to KYO

Postby Rustsmith » Thu Mar 30, 2017 6:03 pm

Thursday, March 30

Welcome to

KYO, who has suffered with RLS for about 20 years. He is currently take Ropinirol, and has undergone several series of iron infusions. The RLS is getting worse, and he wants to see what other RLS sufferers are doing.

Please take a look around and then post a note asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2333
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tiredofit

Postby Rustsmith » Thu Mar 30, 2017 11:30 pm

Thursday, March 30

Welcome to

tiredofit, who can't relax at night and enjoy time with family, can't take long car rides, and can't go to the movies.

We all understand. Look around and then please post a note telling us about what you do to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


Return to “Just Joined?”

Who is online

Users browsing this forum: No registered users and 1 guest