July 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
Moderator
Posts: 6861
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to tulegoose

Postby Polar Bear » Sun Jul 09, 2017 9:56 pm

9 July 2017

Welcome to:

tulegoose - who has had RLS and insomnia for many years. In the past two months RLS has become chronic (almost every night) and tulegoose is searching for answers and solutionsfor relief. Lucky I get anywhere from two to five hours sleep a night and sometimes no sleep at all.

Most of us feel like this or have felt like this. If you look in this Just Joined Forum at the 'Good Place to Start' you will find a lot of good information. Please ask questions. When you are ready if you start a thread or join a thread, tell us a bit about your symptoms and what you have already tried.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 14865
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Welcome, Karrierac

Postby ViewsAskew » Mon Jul 10, 2017 4:33 am

Hi, Karrierac. Sounds as if this is a very rough time - 9 months pregnant and with horrible RLS. Please let us know - in a new topic - what you are doing and how it is going. We may have some ideas. Several of us have gone through pregnancy and know how hard it is.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6861
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to mjcjjd

Postby Polar Bear » Mon Jul 10, 2017 9:26 am

Monday 10 July 2017

Welcome to:

mjcjjd - who has horrible restless leg/arm syndrome. Has been on all the meds read in the forum with no refief and currently recovering from spinal surgery which makes it very hard to move about. mjcjjd feels to be going crazy.

Please do start a thread on the Just Joined Forum, tell us what meds you have tried. We are all sufferers here and want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Aurelius

Postby Rustsmith » Tue Jul 11, 2017 12:28 pm

Tuesday, July 11

Welcome to

Aurelius, for whom RLS has been a major detriment to the quality of every aspect of life, personally, socially and professionally. Personally he lost sleep, is unable to complete a meal, drive a car (100% dependent on his wife to drive him) and socially because he routinely turns down invitations for dinner with friends, vacations or anything longer than 30 minutes.

Please take a look around and then post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MichelleRenee'

Postby Rustsmith » Thu Jul 13, 2017 12:52 pm

Thursday, July 13

Welcome to

MichelleRenee', who has suffered with RLS for a few years and feels like it is becoming much worse the last month or so. She feels she has tried so many different ways to manage her RLS and her normal dosage of meds isn't working . So, she is hoping to get some insight on what dosage others take.

Please post a note telling us a bit about what you are taking and the dose so that we can offer you some suggestions and comments about what some of us take. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dixielee

Postby Rustsmith » Thu Jul 13, 2017 12:59 pm

Thursday, July 13

Welcome to

dixielee, who is a 56 year old who has struggled with RLS for many years. She resisted medication and tried over the counter health supplements, but now takes Mirepex and it has helped. But some nights she still has to get up and walk. She has never talked to another person who struggles with this disorder and looks forward to the discussion boards.

Please take a look around and then post a note with any questions or rants that you have. We are always glad to do whatever we can to help and share.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Martann

Postby Rustsmith » Thu Jul 13, 2017 8:49 pm

Thursday, July 13

Welcome to

Martann, who started having restless legs when in her 40's. Her mother also had it so there is a strong genetic component to the problem. She uses Clonazepam at bedtime and that has worked for many years.

Please take a look around and feel free to post a note with any questions that you have or to simply join in on one of the ongoing discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to docdollar

Postby Rustsmith » Thu Jul 13, 2017 10:54 pm

Thursday, July 13

Welcome to

docdollar, who has suffered from WED for several years and recently it has affected, not only docdollar's ability to sleep, but also the waking hours. It has made life miserable and painful.

Please take a look around and then post a note telling us what you are doing to manage your WED and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Timfitzgerald96

Postby Rustsmith » Fri Jul 14, 2017 12:37 am

Thursday, July 13

Welcome to

Timfitzgerald96, who is a combat veteran with major injuries to the lower spine. As a result he has dealt with RSL for some time. He was on masssive amounts of pills thanks to Army but since being retired is down to two. He is looking for natural relief.

Take a look at our forums on Physical Treatments and Non-prescription medications to get an idea of what can work and just as importantly, what doesn't. And please post a note telling us about the 2 meds you are on and asking any remaining questions that you have. We would love to be able to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kathycoexists

Postby Rustsmith » Fri Jul 14, 2017 1:03 pm

Friday, July 14

Welcome to

Kathycoexists, who can't sleep through the night, is very uncomfortable and always tired.

After you have a chance to look around, please post a note telling us what you do to manage your RLS and asking any questions that remain.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to KG_DFW

Postby Rustsmith » Sat Jul 15, 2017 10:43 am

Saturday, July 15

Welcome to

KG_DFW, who is the 3rd generation affected. She often kicks violently into the air every 20 seconds if laying down, is on medication and It affects her energy level.

After looking around, please post a note telling us about your treatment and asking any questions tat you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dlafalce

Postby Rustsmith » Sun Jul 16, 2017 11:13 pm

Sunday, July 16

Welcome to

dlafalce, who has had RLS for the past 10 years and it has recently gotten worse. dlafalce has augmentation and can't seem to get consistent relief. dlafalce is hoping to get some answers from others who have the same issues and perhaps get a recommendation for a Dr in New Jersey.

Please post a note telling us a bit about your current treatment that has lead to your augmentation and also repeat your request for help finding a doctor in New Jersey. In the meantime, please take a look at the list of doctors on the RLS Foundation's website (www.rls.org) to see if there is one who is close to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Deedle

Postby Rustsmith » Mon Jul 17, 2017 10:16 pm

Monday, July 17

Welcome to

Deedle, who goes to bed every night hoping that medication holds and that Deedle is not awakened with legs and body moving uncontrollably. Deedle has always been athletic and hates having to take medication but also doesn't want to deteriorate because of lack of sleep and rest.

After you have a chance to take a look around, please post a note telling us a bit about your current scheme for managing your RLS and asking any questions that you have. Several of us here are also athletes, so we can relate.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2635
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Obriensk

Postby Rustsmith » Tue Jul 18, 2017 7:12 pm

Tuesday, July 18

Welcome to

Obriensk, who has been on mirapex for 9 years taking it four times a day. She experienced horrible augmentation and yesterday started Horizant. Am in horrible pain with stopping mirapex and waiting for horizant to hopefully work and for the augmentation symptoms to subside. She is a nurse practitioner and still would love to be involved with real people who are struggling with RLS.

Please take a look through the forum on Augmentation, especially the discussions about getting off of pramipexole. You will find that Horizant is not strong enough to overcome the withdrawal issues of pramipexole. You either have a week of very little sleep ahead or else you need to get your doctor to provide you with an opioid to help you get off the pramipexole. Horizant will not do it. And please post a note telling us where you plan to go from here and asking any questions that you have. We would love to be able to help you through the very difficult time that you have in front of you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6861
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Vichic

Postby Polar Bear » Thu Jul 20, 2017 11:52 am

Thursday 20th July 2017

Welcome today to

Vichic - who has had RLS on & off since Puberty. It has ruined her life. It is in her family. Vichic also has chronic Insomnia which is only made much worse by RLS. She has tried every possible remedy & medication.

Please do read the 'Good Place to Start' at the top here in this Just Joined section. If you start a thread ad tell us some of your experience with medicaions we will try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


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