Vacation and RLS

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Oozz
Posts: 4
Joined: Wed Oct 11, 2017 8:09 pm

Vacation and RLS

Postby Oozz » Thu Oct 12, 2017 5:36 pm

Hello,

New to the forums here. I’ve had primary RLS for about 2-3 years now. I’ve noticed that when I go on vacation my RLS clears up entirely! From the night I land to a few days after I get home. I’m not really sure how to interpret this. This isn’t just a one time thing, it’s been this way for every vacation over the past 1.5 years.

Could this mean my RLS is strictly stressed based? Is that even possible? Or, do you think it is some other factor that I am not accounting for?

I spoke with my doctor, who leads research at Johns Hopkins, and he attributed it to sleeping more when on vacation, thus alleviating the RLS cycle. However, that doesn’t make full sense because I am able to sleep the first night we land despite being sleep deprived.

Overall, I eat very healthy - less so I’m vacation. I’ve done several food restrictions and supplement regiments, but none worked. Neupro was working, but it was dopamine overkill and made me very socially anxious.

Isn’t RLS has been very bad lately, and I’m struggling at work, so any insight would appreciated.

Rustsmith
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Location: Pueblo, Colorado

Re: Vacation and RLS

Postby Rustsmith » Thu Oct 12, 2017 5:46 pm

Welcome to the board.

It is hard to say why your RLS would clear up while you are on vacation. Part of it depends upon your vacations. Years ago I noticed that my allergies cleared up while I was on vacation. My allergist figured it out, as a scuba diver, my vacations tended to be on liveaboard boats at sea. The amount of pollen in the air 50+ miles at sea was much less.

In your case, it could be the stress. It could be that if you traveled far enough to experience a time change that your internal clock that drives the RLS may have still been adjusting. Before I retired, I traveled extensively. So much so that I think that was aways jet lagged. It took about 2 months after I retired to sort of catch up and that is when my RLS went from being a minor annoyance to a major problem.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Vacation and RLS

Postby Polar Bear » Thu Oct 12, 2017 6:00 pm

I have heard of RLS sufferers having a change in symptoms according to altitude, be it where they live or where they visit/holiday. High altitude having a negative effect on the RLS symptoms.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
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Posts: 14794
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Location: Chicago

Re: Vacation and RLS

Postby ViewsAskew » Thu Oct 12, 2017 8:17 pm

Activity also can affect symptoms. People who are more sedentary because of work, say, may be more active on vacation. A moderate level of aerobic activity is associated with fewer RLS symptoms for many.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
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Location: Northwest Territories, Canada

Re: Vacation and RLS

Postby badnights » Fri Oct 13, 2017 4:35 am

I can't think of any other reasons, except perhaps food or medicine - not in terms of healthier vs less healthy diet that you've already mentioned, but are there specific substances that you abstain from while on vacation that could be triggers for RLS/WED?

It's disconcerting to think that stress might have that much impact, but I suspect it can. My symptoms are much better now that my circadian cycle has synch'ed with the daylight cycle. Being out of sync was a huge physiological and psychological stressor.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

debbluebird
Posts: 1659
Joined: Mon May 21, 2012 3:27 pm

Re: Vacation and RLS

Postby debbluebird » Sat Oct 14, 2017 1:39 am

I believe stress plays a big part.

Oozz
Posts: 4
Joined: Wed Oct 11, 2017 8:09 pm

Re: Vacation and RLS

Postby Oozz » Wed Oct 18, 2017 6:16 pm

Thanks for the responses everyone.

@Rustsmith - The locations have been so varied in terms of altitude, weather, and season, I have to say its an internal factor. The one instance we changed time zones dramatically (EST > Alaska) didn't really have an effect on me.

@polarbear - similar to above.

@badnights - I agree. I've eliminated nuts and lactose from diet as I rarely eat either on vacation. So far it has been a week and there has been no change in my RLS. I think stress is the underlying cause.

@debbluebird - thanks. This is what my intuition has been telling me.

I'm going to see my neurologist Friday to hopefully get an RX for relaxis. Since my RLS is only at night, I'm hoping this will help. Aside from that i'm going back to mediation regularly and potentially picking up a hobby for stress. I'll be sure to keep a log of what works and doesn't work. The worst thing about RLS is how isolating it can be when you try to describe it to people.

Polar Bear
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Location: N. Ireland

Re: Vacation and RLS

Postby Polar Bear » Wed Oct 18, 2017 7:05 pm

Oozz ---- Ahh.... and there we come to another difficulty.
Trying to describe RLS to a non sufferer. Beyond understanding.
If I am suffering and need to get up and move about I do so, often just saying ""you must excuse me as I have a movement disorder and walking/stretching may give me temporary relief"".
That might take care of my behaviour but does not really explain the need.

Very occasionally I have come across a very good description of RLS Symptoms. Not only trying to explain the actual symptoms but how they pull a person down, how they affect all aspects of life, how one thing leads to another, the lack of sleep etc.
I've often felt that it would be great to have such a description and just reach it to a non sufferer " for your information. "
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 6813
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: Vacation and RLS

Postby Polar Bear » Wed Oct 18, 2017 7:17 pm

I feel this poem expresses very vividly how mean RLS can be.....

Hi my name is restless legs. I am invisible to others.
They can’t see me or hear me but YOUR body feels me.
I can keep you awake until you're exhausted.
Remember when you had energy? In its place I have given you exhaustion.
If you have something planned I can spoil it
If you are looking forward to something I can take that away from you.
You didn’t ask for me but I choose you anyway.
Maybe you have a family history of me or maybe kidney disease or Parkinsons?
Whatever the case I am here to stay.
I can make an outing to the cinema or theatre pure hell.
You want a long car ride –don’t make me laugh!
Holidays ha ha I can spoil those before you even get there. I don’t like travelling.
Work? I can mess up that
You can pretend to others you have to get up during a meeting or a meal because you keep needing the toilet or have to make a phone call but you can never fool me.
You see it makes me laugh when you try to describe me to a non sufferer I make it impossible
You can buy whatever creams lotions and potions you like as I am unbeatable
Your friends and family will listen until they get tired of hearing how I make you feel
Some will say things like oh it’s cramp, you're having a bad day or well you're not getting any younger but not hearing you have had me for 30 years They will say things like just stretch your legs and it will go or just don’t think about it. Some will start talking about you behind your back while slowly you feel you're losing your dignity trying to make them understand
You will be told oh I know someone who had that and she had a paracetamol and she was fine
You might decide to up your game and see a doctor and I will grin as you try desperately to describe the impact I have on your life.
The doctors will have no idea and will put you on all sorts of medications.
They may try you on sleeping tablets or antidepressants but they’re no match for me.
Sometimes they will give you meds which actually make me worse because I am sneaky.
Are you too tired to exercise –that’s me.
Aching back and knees -yes that’s me.
Headache my gift to you.
Red dry eyes- I take the credit.
Irritable - probably me.
Sometimes I will lull you into a false sense of security and you will find a med that helps – you’re getting clever but not as clever as me.
I will up my game.
I will make you need to keep taking more and more.
I will visit you earlier in the day, I will strike other parts of your body your arms neck anywhere I please.

When you try to come off these meds you will realise just how evil I can be and you will need more and more medication. Do not try to explain me or expect any understanding, or people to realise how I impact on your life.
The ONLY place where you will get support and help and understanding is from others who live with me they are the ONLY ones who will understand
MY NAME IS RESTLESS LEGS
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Stainless
Posts: 81
Joined: Tue Dec 01, 2015 9:30 pm

Re: Vacation and RLS

Postby Stainless » Wed Oct 18, 2017 10:21 pm

First, everyone with RLS seems to be different. That said distraction works wonders with me and I am a 50 year victim with serious symptoms. Just a night out on the town will give me a reprieve at least until I get home. A vacation works even better. I'm retired so I should have no stress, in fact vacations are typically more stressful. And my wife says my leg movement while I sleep can still be as bad as ever and recently woke me on vacation in a B&B and said I was kicking the bedframe and was surprised I was not injured.

About two months ago I seriously hurt my leg doing landscaping (lift with your knees). It was like a sports injury with stressed muscles & tendons deep in my thigh. My leg hurt especially while in bed but the RLS was not a problem. Now that my leg is better the symptoms are coming back.

And Rustsmith, I worked as a diver and accumulated several years of a 30 year career at sea, along with Caribbean liveaboards and resorts. When I had to stand night watches my legs would go crazy. Same as when I worked second or God forbid 3rd shift on land. But if I was busy diving all day or doing something to distract me, I usually have no or minimal symptoms until I get in bed. I did not find stress to be the problem but relaxation in a recliner or bed that sets it off.

And finally when I went through benzodiazepine withdrawal spending six months getting off 20 years of clonazepam, my RLS was at a minimum. But as soon as I was over the withdrawal, RLS kicked back in and Gabapentin by itself was useless. Such a strange disease. Best of Luck Oozz.


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