OCTOBER 2017 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mad1949

Postby Rustsmith » Wed Oct 11, 2017 2:39 pm

Wednesday, October 11

Welcome to

mad1949, who realizes some people have it worse, but mad1949's life has definitely been turned upside down. mad1949 is always glad to hear new ideas that work or don't. And forgetting to take Requip results in severe pain & anguish. mad just wants to be normal again!

Don't we all wish for the chance to return to "normal". Please post a note telling us a bit about your RLS, how you are doing and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Oozz

Postby Rustsmith » Wed Oct 11, 2017 9:24 pm

Wednesday, October 11

Welcome to

Oozz, who has had RLS for a bit over two years now.

Please post a note telling us a bit about your situation, what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tmmcwilliams

Postby Rustsmith » Thu Oct 12, 2017 10:38 pm

Thursday, October 12

Welcome to

tmmcwilliams, who has been bothered by RLS for many years, but just had a sleep study to find the cause of my PLM. She is an insomniac, getting maybe 3 hours of sleep a day and functioning (barely) with that. She is happy to find out the cause and is now on the road towards understanding it, trying to find a organic healing and finally getting some sleep. She wants quality sleep and life.

Take a look around and then please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tlm57

Postby Rustsmith » Fri Oct 13, 2017 1:14 pm

Friday, October 13

Welcome to

tlm57, whose RLS has affected sleep, work, family and overall health. When her legs become restless she cannot function and has to stand or pace for hours. She lives in a rural area of upstate NY and medical care is extremely limited. She has been on Pramipexole for 10+ years and it is about 50% effective.

Please take a look around, especially the forum on Augmentation and then post a note telling us about your history with pramipexole and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ramansrini

Postby Rustsmith » Tue Oct 17, 2017 2:26 am

Monday, October 16

Welcome to

ramansrini, who has had RLS for years, and had tried many techniques for control, but one of the techniques worked well. So ramansrini wants to share with others.

Please post a note telling us about your RLS and the technique that you are using to manage it.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ybuchner

Postby Rustsmith » Thu Oct 19, 2017 3:02 pm

Thursday, October 18

Welcome to

ybuchner, whose daughter is 20 and her RLS is plaguing her.

Please post a note telling us about your daughter's RLS and what she is doing to manage it. Also feel free to ask any questions that you have. We would all love to be able to offer some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Colehcole1

Postby Rustsmith » Fri Oct 20, 2017 1:08 pm

Friday, October 20

Welcome to Colehcole1, who often falls asleep when sitting down. His wife says that he moves every 8 seconds while sleeping and he gets up 2 or 3 times a night.

Insomnia and PLMS issues are common with RLS. Please post a note telling us if your have been diagnosed by a physician and if you are taking anything to help improve your sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Scouten

Postby Rustsmith » Fri Oct 20, 2017 1:11 pm

Friday, October 20

Welcome to

Scouten, who suffers from RLS and it is becoming worse with time. Scouten would like to learn how to cope from others.

Please post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have. We look forward to hearing from you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Emjar

Postby Rustsmith » Sat Oct 21, 2017 1:40 am

Friday, October 20

Welcome to

Emjar, who has chronic back pain and arthritis in his knees so the onset of RLS adds to the misery. Not being able to sleep is the worst.

Arthritis in the knees so that walking is painful must be terrible. Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MELODYAJONES1956

Postby Rustsmith » Tue Oct 24, 2017 2:26 am

Sunday, October 23

Welcome to

MELODYAJONES1956, who has had RLS most of her life, but since turning 50 a little over 10 years ago it has ruled her life. Lack of sleep being the major factor and it leads to the rest. She hase been of 6 different medications but relief is always short lived.

Please post a note telling us about your symptoms, a bit about the 6 meds you have tried and what you are currently doing to manage your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Marijke

Postby Rustsmith » Tue Oct 24, 2017 2:30 am

Sunday, October 23

Welcome to

Marijke, who suffered with RLS for many years and finally has some relief in the last 2 years thanks for Sifrol, which doesn't work anymore and oxycodone which she is on now.

Please post a note telling us a bit about how well the oxycodone is working and if you are doing anything else to help manage your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to RaeM

Postby Rustsmith » Tue Oct 24, 2017 7:37 pm

Tuesday, October 24

Welcome to

RaeM, who over the four years that recognized that she had RLS and it has steadily become more troublesome. Her neurologists have changed her medicines and the dosage every four months (on average) to give her some semblance of "control". Nevertheless, she has episodes that surprise her and cause me great pain.

Please take a look around and then post a note telling us a bit more about your history of medications and your current scheme for managing your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Raymond21

Postby Rustsmith » Tue Oct 24, 2017 9:05 pm

Tuesday, October 24

Welcome to

Raymond21, who wants to help others with RLS problem through his experience with the disease and he wants to get help from others who are experiencing the same kinds of pain.

Please post a note telling about your experience, what you are doing to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6889
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Cherylarotsell

Postby Polar Bear » Wed Oct 25, 2017 8:24 am

Wednesday 25 October

Welcome to Cherylarotsell who I has suffered with restless legs for over 10 years. Very little sleep every single night. and at her wits end. Looking for others input on help for rls.

You are most welcome here with us. Please tell us of your symptoms and your efforts to relieve these symptoms. We will try to help. Sleep is a big problem for most of us.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2661
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JANIEDAN

Postby Rustsmith » Fri Oct 27, 2017 10:47 am

Friday, October 27

Welcome to

JANIEDAN, who is experiencing a hypersensitive vasculitis with a positive ANA test and trying to determine the triggering agent. She has found that her 3x a day Mirapex can cause a pseudo lupus reaction but can not find any reported cases of the Synvic or Gel-one triggering vasculitis like she is experiencing now 2 days after the injection.

Please post a note telling us a bit more about your RLS symptoms and asking any questions that we might be able to help with.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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