APRIL 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
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Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

APRIL 2018 - NEW MEMBERS

Postby Rustsmith » Tue Apr 03, 2018 3:13 pm

Tuesday, April 3

Welcome to

saint, whose RLS has escalated to the point where saint only gets sleep once or twice a week and is therefore hoping to get some ideas to help the situation.

Please post a note telling us about your current RLS treatment(s) so that we can offer you some specific suggestions to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to debocontreras

Postby Rustsmith » Tue Apr 03, 2018 7:38 pm

Tuesday, April 3

Welcome to

debocontreras, whose RLS has affected her life. She was diagnosed 13 years ago, and started taking Requip. Since then, life changed because she could sleep and have a normal life. Now she is experiencing augmentation. She in the Dominican Republic, where this desease is not known, so she doesn't have a support group to talk to and so hopes to express herself in this group, and get the information she needs to cope with RLS.

You have found the right group, since we serve as a support group for those who do not have local support groups available to them. Many of us have also been through the problem of having augmentation and the problem of finding a doctor who understands RLS and augmentation. Please post a note telling us a bit about your current situation and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7222
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to Constantmotion

Postby Polar Bear » Thu Apr 05, 2018 10:32 am

5th April 2018

Welcome today to:

Constantmotion - who since a young child has had a constant need to move legs. Now they contract, and tingle and drive Constant crazy every single night. And most days.

Please do make a post and tell us how you have managed for all these years, are you on any treatment, how do you get some relief. We are all here to help and are very glad that you have found us.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to janicedesigns

Postby Rustsmith » Sat Apr 07, 2018 6:45 pm

Saturday, April 7

Welcome to

janicedesigns, who has lived with RLS since childhood and is encouraged that sufferers no longer need to hide their symptoms for fear no one will understand.

The public is starting to understand, but it is unfortunate that more doctors still do not know how to provide care. Please post a note telling us a bit about yourself and what you do to manage your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to s44lyt

Postby Rustsmith » Sun Apr 08, 2018 3:44 pm

Sunday, April 8

Welcome to

s44lyt, whose RLS has caused too many sleepless nights with quality of life is suffering and is unable to visit theatre or cinema.

Those are complaints that all of us have. Please post a note telling us a bit about your symptoms and what you are doing to manage them.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kaseyr

Postby Rustsmith » Mon Apr 09, 2018 10:23 am

Monday, April 9

Welcome to

Kaseyr, who has been on Mirapex for 15 years, augmentation is a huge concern now as experiencing symptoms earlier and now occurs in the back and legs. Kaseyr can fall asleep while driving and at most any time or placebut lives in an area that is deprived of specialists of any kind.

Many of us travel to see a specialist, often for great distances. The other option is to educate a doctor in your area, but it can be difficult to find one who is willing to learn. Please post a note telling us more so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Laurele

Postby Rustsmith » Mon Apr 09, 2018 10:26 am

Monday, April 9

Welcome to

Laurele, who can’t sleep and is miserable. She got off opioids but ran out of pramiprexole which mostly still works.

Please post a note with some information about where you live and whether you will be able to reach your doctor first thing this morning for a new supply of medication.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to freshair

Postby Rustsmith » Mon Apr 09, 2018 9:03 pm

Monday, April 9

Welcome to

freshair, whose RLS has been with her for many years, but in the past few years, her symptoms have gotten increasingly worse. She now makes all her decisions with her RLS symptoms, medication schedule (and the need to eat dinner simultaneously) and the side effects from the meds in mind. Until now, she's never needed to take any medication on a regular basis.

Please post a note telling us a bit about your meds (and schedule) and asking any questions that you have. We would love to be able to help you out in some way.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Janet65

Postby Rustsmith » Tue Apr 10, 2018 10:10 am

Tuesday, April 10

Welcome to

Janet65, who has had RLS for fourty years and now she is in augmentation. She doesn’t sleep, can’t sit through a dinner with friends and family. She is tired, just so tired.

Please post a note telling us about your current medication. Most of us have been through the horrors of augmentation and now have revised RLS treatments that are effective. We would love to be able to provide you with some suggestions to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Mordechai.Schwartz

Postby Rustsmith » Wed Apr 11, 2018 10:34 pm

Wednesday, April 11

Welcome to

Mordechai.Schwartz, who has had problems sleeping, which has effected his work and social life. He was grumpy all the time and ended up in a divorce. Although work has suffered he is still employed.

Please post a note telling us a bit about what you are doing to manage your RLS symptoms. There is almost always some way to improve your situation, so we would love be able to provide some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to LMP

Postby Rustsmith » Fri Apr 13, 2018 10:44 am

Friday, April 13

Welcome to

LMP, who needs help with Remedies for RLS symptoms.

Please post a note telling us a bit about your symptoms and what you are currently doing to manage them. We would love to be able to offer some suggestions to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to KySue43

Postby Rustsmith » Sun Apr 15, 2018 12:29 pm

Sunday, April 15

Welcome to

KySue43, who has had RLS for over 60 years and is constantly looking for help. Her RLS seems to have moved into full body mode. She has tried so many things to reduce her RLS/insomnia.

Please post a note giving us an idea of the things that you have tried so that we can offer you some suggestions of new things to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Michelleh

Postby Rustsmith » Mon Apr 16, 2018 12:25 am

Sunday, April 15

Welcome to

Michelleh, who wants to help her husband, who suffers from severe rls. He had been on neupro patches for about 3 years and has just been put on mirapex instead of the patch that was no longer working.

Please take a look around and then feel free to post any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3347
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bluejay 61

Postby Rustsmith » Mon Apr 16, 2018 12:20 pm

Monday, April 15

Welcome to

bluejay 61, who has had RLS for over forty years. He is 75 now and is looking for less meds to take and wants to know what is helping others.

You will find that the meds that we take vary depending upon how serious our RLS is and the side effects that we had. Please post a note telling us about your symptoms and your current meds so that we can offer you suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7222
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to: Jeannechx

Postby Polar Bear » Tue Apr 17, 2018 11:03 am

17 April 2018

Welcome today to:


Jeannechx - who has difficulty sleeping like everyone else. All grandchildren live overseas and it is very difficult to complete 8-10 hour flights.

Many of us totally understand the difficulties of long flights and have posted about how we try to cope. Please do post and tell us how you have dealt with your RLS so far. We hope to be able to help you.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


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