AUGUST 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
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Location: N. Ireland

AUGUST 2018 - NEW MEMBERS

Postby Polar Bear » Thu Aug 02, 2018 3:28 pm

2 August 2018

Welcome today to

jheath62 - who suffers from RLS and is always wanting to see what the latest ways to deal with it are.

We are glad that you have found us, but sorry that you need us. There is a lot of information here and if you have any questions at all please do ask. We want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Wealden1640

Postby Rustsmith » Thu Aug 02, 2018 4:07 pm

Thursday, August 2

Welcome to

Wealdon1640, who has heard a lot about cannabis oil and wondering if this has helped anyone.

If you search on marijuana you should find some very lengthy discussions, which include comments about the oils. Please post a note telling us about your RLS and asking any other questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dumbbunny

Postby Rustsmith » Fri Aug 03, 2018 1:44 pm

Friday, August 3

Welcome to

dumbbunny, who says that RLS is not the worst disease to have but it is frustrating to know that it can happen at inopportune moments and there is nothing he can do about it. Now he relies on Mirapex daily but that doesn't always tame the beast. At least the disease is not painful, it's just annoying.

Please post a note telling us about your dose of Mirapex and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to merpreb

Postby Rustsmith » Fri Aug 03, 2018 1:49 pm

Friday, August 3

Welcome to

merpreb, who wants to be in touch with others who also have RLS. Also her doctor just switched her to Horizant. Her first time taking it was last night and she found it difficult to get up this AM. She is a 21 year cancer survivor and has had 4 cancers, the last late last year. It's very important for her to keep active and fears that this med will interfere with this. Will the symptoms subside?

You will repeatedly hear that "we are all different". The side effects of gabapentin and Horizant vary a lot between individuals. Hopefully this side effect goes away with time for you. Please post a note telling us a bit more about your RLS history and asking any other questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JayBoy75

Postby Rustsmith » Fri Aug 03, 2018 1:53 pm

Friday, August 3

Welcome to

JayBoy75, who makes sure that when he leaves home to travel that Mirapex is the first thing he packs. The worst thing about his RLS is he has to sleep in a separate bed from his wife due to PLM.

It sounds like you have your RLS under fairly decent control. Separate beds is a common situation for many of us. Please post a note telling us a bit more about how you manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to hubert

Postby Rustsmith » Sun Aug 05, 2018 11:06 pm

Sunday, August 5

Welcome to

hubert, whose RLS is causing serious sleep deprivation every night, which is putting pressure on a relationship and his general health.

Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Donna123

Postby Rustsmith » Tue Aug 07, 2018 6:48 pm

Tuesday, August 7

Welcome to

Donna123, who has been suffering with RLS for a few years. It is gradually getting worse so she is exhausted with getting no sleep.

Please post a note telling us what you are currently doing to manage your RLS. We can probably offer some suggestions to get it under control and give you more sleep than you are currently getting.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MayDay58

Postby Rustsmith » Thu Aug 09, 2018 10:44 pm

Thursday, August 9

Welcome to

MayDay58, who has suffered from RLS for years and is hoping for some new ideas for treatment.

Please post a note giving us an idea of the things that you have tried so that we can offer any new ideas that we have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Emmy5

Postby Rustsmith » Fri Aug 10, 2018 3:08 pm

Friday, August 10

Welcome to

Emmy5, who has RLS and is interested in learning more about it. It started with her 1st pregnancy and she thought it was just her. She started to read about it and realized she was not alone. She has typical symptoms- worse at night, awful on late night flights or car rides.

Unfortunately, you are not alone. Take a look around our files and please post a note telling us what you are doing to manage your symptoms so that we can offer you some specific suggestions to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Motorhome

Postby Rustsmith » Sun Aug 12, 2018 2:00 pm

Sunday, August 12

Welcome to

Motorhome, who cannot set and read a book. She has the worst case the doctors say they have ever seen. she can't sit still.

Your RLS sounds like what many of us experience, so "you are not alone". Please post a note telling us what your doctors have you doing to manage your symptoms. We may be able to suggest some further steps to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Evansrj

Postby Rustsmith » Mon Aug 13, 2018 6:06 pm

Monday, August 13

Welcome to

Evansrj, who has had symptoms of RLS since youth but they would go away after 2/3 days. Evansrj is now going on about 1 month with little relief from medication and so hopes to find alternative solutions through board.

Please post a note telling us a bit about your current medication and symptoms so that we can offer you some specific suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lmason

Postby Rustsmith » Mon Aug 13, 2018 6:10 pm

Monday, August 13

Welcome to

lmason, who unfortunately has this disease and would prefer not to take medication for it. She is currently or Ropinirole and would love to come off of it. She is also slightly anemic.

Please post a note telling us about your anemia (ferritin level if you know it) and your dose of ropinerole so that we can provide you with some of the info that you are looking for.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to vkelley

Postby Rustsmith » Tue Aug 14, 2018 1:06 pm

Tuesday, August 14

Welcome to

vkelley, who has suffered with severe RLS for the last two years. She has a constant need to move her legs and it affects her sleep, which in turn affects her ability to focus during the day. Treatment thus far has been ineffective.

Please post a note telling us what treatments you have tried so that we can offer some suggestions about what should work for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Alexandramm

Postby Rustsmith » Tue Aug 14, 2018 4:52 pm

Tuesday, August 14

Welcome to

Alexandramm, who needs suggestions for non-drug help.

Take a look through our forum on Non-Prescription medications to get an idea of your options. And please post a note telling us about your RLS and what you have been doing so that we can offer some specific suggestions for you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3339
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to TwinkleStar

Postby Rustsmith » Wed Aug 15, 2018 12:46 pm

Wednesday, August 15

Welcome to

TwinkleStar, who daughter has been diagnosed in RLS. She also suffers tremors (jitterings) probably related.

Please post a note telling us a bit more about your daughter (age, current treatment, etc) so that we can offer some suggestions to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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