SEPTEMBER 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Aelliott37

Postby Rustsmith » Mon Sep 10, 2018 9:50 pm

Monday, September 10

Welcome to

Aelliott37, who has had severe RLS since she was 17. She is now 7 months pregnant and its only gotten worse, which she didn't think was possible. Just looking for some support and maybe advice as to how to manage it while pregnant, and then while breast feeding since she needs to be conscious of what she is putting in her body.

Take a look around, especially at our forum on Special Populations, which includes issues associated with pregnancy. And please post a note asking any questions that you have so that our members can share their experiences with you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to weh

Postby Rustsmith » Tue Sep 11, 2018 4:45 am

Monday, September 10

Welcome to

weh, for whom RLS is an everyday nuisance that seems to get worse with age. He has had RLS to some degree for 30 years. On the severe nights he gets hardly any sleep unless he take an opioid.

Please post a note telling us a bit more about your treatment(s) and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Tine

Postby Rustsmith » Tue Sep 11, 2018 8:01 am

Tuesday, September 11

Welcome to

Tine, who views the board as a good opportunity to discuss with other sufferers of RLS.

This is probably the best place to discuss RLS with other patients, so please post a note telling us about yourself, how you manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to ppreuss

Postby Rustsmith » Tue Sep 11, 2018 12:27 pm

Tuesday, September 11

Welcome to

ppreuss, whose RLS started several years ago following knee replacement surgery. It has progressed over time to the point where it is a daily presence not only afternoons and evenings but even mornings. The gest antidote is to stand.

Please post a note telling us about any treatments that you are using to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15323
Joined: Thu Oct 28, 2004 6:37 am
Location: Chicago

Re: SEPTEMBER 2018 - NEW MEMBERS

Postby ViewsAskew » Wed Sep 12, 2018 1:19 am

Tuesday, Sept 11

Welcome to alenrobin, who wants to learn as well as join the discussion.

Start a new topic anytime you are ready, alenrobin. Lots to read and learn.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Nitewalker2008

Postby Rustsmith » Thu Sep 13, 2018 1:57 am

Wednesday, September 12

Welcome to

Nitewalker2008, who says that the general public does not value quality sleep therefore when they hear about RLS they don’t understand how it can derail a person's life. Nitewalker wants to visit with others who understand these daily struggles.

Everyone here absolutely understands your struggles. Please post a note telling about your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sleepless in Seattle

Postby Rustsmith » Thu Sep 13, 2018 5:18 am

Wednesday, September 12

Welcome to Sleepless in Seattle, who has struggled with RLS for over 20 years but it’s getting much worse. Sleepless would like to join an active board to learn more and contribute as well.

Take a look around to get an idea of our discussions and we look forward to seeing your contributions to our discussions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lorinlegs

Postby Rustsmith » Thu Sep 13, 2018 4:01 pm

Thursday, September 13

Welcome to

lorinlegs, who suffers from RLS and can't seem to determine what causes it. Also, typical treatments like magnesium and iron don't seem to help. She would like to see if anyone else has any ideas of things that might help.

For some of us, the cause is genetic and there is nothing we can do about it other than go onto prescription medications. Please post a note telling us the various things that you have tried so that we can offer you some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jillanne

Postby Rustsmith » Fri Sep 14, 2018 1:02 am

Thursday, September 13

Welcome to

Jillanne, who first noticed her RLS when she was pregnant 25 years ago with her 1st son. She is now 52 years old and has been taking Requip for her RLS for over 20 years.

Glad to hear that you have had such a long, successful run with Requip. Please post a note telling us about your dose and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sleepless in Florida

Postby Rustsmith » Fri Sep 14, 2018 10:46 pm

Friday, September 14

Welcome to

Sleepless in Florida, whose husband has RLS. They are an older couple but just recently got married. His RLS was extremely severe with violent kicking. She finally had to sleep elsewhere. He blames her for being a light sleeper, which is another issue. They have tried various mattresses but she keeps telling him they need separate (twin) beds. He disagrees. So now the new California Split Twin mattresses have arrived to try out. She is scared and afraid to discuss anything to do with his RLS.

If you use the search function and look for things about sleeping arrangements, you will find quite a bit. I (Steve) and my wife have been sleeping on a pair of California split twins and it allows us to have the best of both worlds, "one" bed but my movements do not bother her because she is on a different mattress. Also, it sounds like your husband has severe PLMS (perioid leg movements in sleep). This is something that is slightly different from RLS, but 85% of us with RLS also have PLMS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Seeingzzzs

Postby Rustsmith » Sat Sep 15, 2018 5:19 am

Friday, September 14

Welcome to

Seeingzzzs, whose RLS has gotten worse for years! And she owns a Sleep disorder center too!

Please post a note telling us about your RLS and what you have tried. Maybe we can offer you some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to redskynite

Postby Rustsmith » Sat Sep 15, 2018 9:17 pm

Saturday, September 15

Welcome to

redskynite, who has suffered with RLS for over 20 yrs and now experiences it with Insomnia each and every night. She walks at night doing what she can to get her legs to calm down. She works 30 hrs a week and her life is working and trying to get more than 5 HOURS A WEEK OF SLEEP! She is a 65 yr old female who is seriously considering retirement because of these two issues.

Please post a note telling if you are taking any medication to manage your RLS. We would love to be able to suggest something to help you get more sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jani67

Postby Rustsmith » Sun Sep 16, 2018 1:36 am

Saturday, September 15

Welcome to

Jani67, whose RLS has disturbed her sleep many times. It was terrible prior to taking a prescription as well as sleeping medication. If this stops working she will want to see other successful therapies.

Take a look around and you will find many discussions about what works and what doesn't. However, also keep in mind that we are all different and that what works for one person may be totally ineffective for someone else.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to anndees

Postby Rustsmith » Sun Sep 16, 2018 11:11 pm

Sunday, September 16

Welcome to

anndees, for whom looking back, has had RLS since early childhood, and now, 50 years later, her life is severely impacted by this condition. Her symptoms usually commence upon waking, and last all day, culminating in horrendous symptoms from about 5pm onwards. She knows we won’t die from RLS, but sometimes wishes she could.

Sorry you have to find us, but glad that you did. Please post a note telling us what you are doing to manage your symptoms and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3387
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Poex6

Postby Rustsmith » Mon Sep 17, 2018 2:40 am

Sunday, September 16

Welcome to

Poex6, who has had severe RLS for 10 years. It's been in her legs, thighs, hips and arms for most of that time. She has daytime symptoms as well as at night and is having symptoms a few times during the day and at night even with medication. She is usually up out of bed between midnight and 3am taking a super hot bath to help alleviate symptoms until she can take another dose of medicine.

Please post a note telling about your medication and the dose. We may be able to discuss some options for improvement to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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