SEPTEMBER 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Polar Bear
Moderator
Posts: 7220
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to MarciaG

Postby Polar Bear » Mon Sep 17, 2018 3:25 pm

17 September 2018

Welcome today to....

MarciaG - who loves to read at night but RLS has made this very difficult. Gabapentin has helped but the persistent urge to move legs crops up several nights a week.

These symptoms are very typical. As you make your way around the forum/s you will probably find questions to ask. Please don't hesitate to join a relevant thread or to start your own thread.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Polar Bear
Moderator
Posts: 7220
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to RLSexplorer

Postby Polar Bear » Mon Sep 17, 2018 5:13 pm

17 September 2018

Welcome today to:

RLSexplorer who has recently begun to experience symptoms of pain and real difficulty sleeping, after many years of foot/leg fidgeting when sitting or lying down. At this point, RLSexplorer is self-diagnosed and doing research to see if symptoms really match what is considered RLS.

Take a look in the 'Just Joined' forum and go to 'RLS, A Good Place to Start'. There will be a lot of useful information there. Please do post and we will do what we can to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to luciekitty04

Postby Rustsmith » Mon Sep 17, 2018 11:21 pm

Monday, September 17

Welcome to

luciekitty04, who is joining because she would like to get advice on her undiagnosed RLS.

Please post a note telling us about your symptoms and asking any questions that you have. We would love to be able to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dave851

Postby Rustsmith » Mon Sep 17, 2018 11:39 pm

Monday, September 17

Welcome to

dave851, who has RLS with Periodic Leg Jerks. He has gone through the mill from Sinemet to Mirapex and now Lyrica. He needs to find the right dosage and "cocktail" that works for him. He hates evenings - can never relax. He hopes he can get some suggestions via of the forum.

Please post a note telling us about your treatment history and doses. Many of us find that we need a cocktail of meds to get things under control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to szigmond

Postby Rustsmith » Thu Sep 20, 2018 1:12 am

Wednesday, September 19

Welcome to

szigmond, who is up most nights with RLS. Pramipexole helps some. Recently szigmond took a trip that required various air flights on 4 separate days-- usually RLS does not occur much in the day but each day szigmond had RLS on either the first or second flight or both. Was wondering if support hose would work-- why should it be worse on a flight. Of course most days szigmond doesn't sit for long periods but still this seemed unusual.

Many of us have issues when faced with conditions where we cannot get up and move around, with airline flights, movie theaters and concerts being the most common complaints. Some find that compression hosiery helps. Others simply double up on their meds prior to the "event". Please post a note telling us a bit more about your situation since pramipexole only helps some. What is your dose, etc. We may be able to offer suggestions to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Mellie

Postby Rustsmith » Thu Sep 20, 2018 10:32 pm

Thursday, September 20

Welcome to

Mellie, whose RLS keeps her from sleeping. She can't sit for very long, so airplane rides can be excruciating/embarrassing.

Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions, which would include making airplane rides more bearable.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to gowacky

Postby Rustsmith » Fri Sep 21, 2018 6:02 pm

Friday, September 21

Welcome to

gowacky, who feels that life with RLS is miserable. Life when always deprived of enough sleep is very hard.

Please post a note telling us a bit about what you are doing to manage your RLS so that we might be able to offer some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Bruffie

Postby Rustsmith » Sat Sep 22, 2018 1:11 pm

Saturday, September 22

Welcome to

Bruffie, who wants pass on information about an instant relief cream that he bought in France a couple of years ago. As an occasional sufferer of RLS, he finds that this "Kamol" cream gives relief/cure every time.

Glad you found something that works for you. Please post a note with some of the details about this cream.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bgrm84

Postby Rustsmith » Sat Sep 22, 2018 1:15 pm

Saturday, September 22

Welcome to

bgtm84, who has had luck with treating severe restless leg.

Please post a note telling us about how you have been treating your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to tweedy333

Postby Rustsmith » Sun Sep 23, 2018 12:40 pm

Sunday, September 23

Welcome to

tweedy333, who would love to get ideas from others who are suffering.

Please post a note telling us what you are doing for your RLS so that we can provide you with some ideas.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Faulk52

Postby Rustsmith » Mon Sep 24, 2018 8:36 pm

Monday, September 24

Welcome to

Faulk52, whose RLS is just annoying and causes anxiety. Faulk52 had a stroke and since then been bothered with RLS.

Please post a note telling us about what you do to manage your RLS. We may be able to offer some suggestions to make it less annoying.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Denise Marie

Postby Rustsmith » Mon Sep 24, 2018 9:57 pm

Monday, September 24

Welcome to

Denise Marie, whose RLS has impacted her family for so long - longer than we even knew what the heck it was. Her mom had the “heebie-jeebies” for lack of a better name to described the sensation of bugs crawling on her legs that she would unsuccessfully try to alleviate by slapping her thighs and pacing the floor all night long. She is quite like her mom and happy to find this community.

Please post a note telling us what you are doing to manage your symptoms so that we can offer some suggestions of things to try.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Nickmav

Postby Rustsmith » Wed Sep 26, 2018 8:31 pm

Wednesday, September 26

Welcome to

Nickmav, who has had RLS for the past 8-10 years and it runs in the family. Nickmav has been on Mirapex, now on gabapentin and is looking for solutions or remedies to RLS. Plus after having a beer or a glass of wine: which Increases the RLs symtoms it takes 2+ hours to fall asleep.

Take a look around to get an idea of what others do to manage their symptoms. As for alcohol, many find it to be an RLS trigger. Please post a note telling us a bit about your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Lands_soontobeparty5

Postby Rustsmith » Wed Sep 26, 2018 10:35 pm

Wednesday, September 26

Welcome to

Lands_soontobeparty5, who has had RLS since she was a child and it has progressively got worse with age, especially with being pregnant. She does not sleep. If she does, it's no more than 45 mins at a time, and the she wakes up jerking her legs non stop. It is absolutely miserable.

Please post a note telling us if you are currently taking or doing anything to manage your symptoms. We may be able to offer some suggestions to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3332
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Farles

Postby Rustsmith » Fri Sep 28, 2018 12:59 am

Thursday, September 27

Welcome to

Farles, who was just diagnosed with RLS after over 2 years of poor sleep. Farles is retired so it is possible to sleep more during the day but still only gets about 5 hours a night. So, Farles can't imagine how people continue to work with this.

Take a look around and please post a note telling about your treatment and how things are going for you. That way we can offer you some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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